TAH and BSO coming up - Hysterectomy Options and Alternatives - HysterSisters
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  #1  
Unread 03-02-2005, 09:16 AM
TAH and BSO coming up

Dear Sisters,
I am scheduled for a TAH and BSO on April 14. I guess what I want to know is........and this has all happened so fast. Do I really have to have it done!? I feel fine and don't have the pain issues so many women have, but my diagnosis is CAH which is complex atypical hyperplasia. An ultra sound showed a thick urterine wall and I have post menopausal bleeding. Had a D&C last week, lab came back with CAH finding. Doctor says it can go to cancer so I didn't want to mess around but can hormone therapy work? I have an appointment next monday to go over all this but wanted to put it on this site for feedback.
thanks
Paula
  #2  
Unread 03-02-2005, 07:08 PM
TAH and BSO coming up

Hello, Paula and

We're so happy you joined the Hyster Sisters community! There is a plethora of great information on the site, and the members here have unlimited hugs to dispense to you at all stages of your journey to good health!

First of all, I want to mention that since you posted this exact same message in our Pre-Op Forum, I deleted that one. I will answer you here. Because you still seem unsure as to whether you want to proceed with having a hysterectomy, I hope that you will obtain several independent medical opinions regarding your health situation. Since it can be so life-altering, a hysterectomy should be a "last resort" surgery after other remedies have been investigated.

Because we are not doctors, no one here can tell you whether or not you should have a hysterectomy. We hope that, in partnership with your doctor, you make the decision that's best for you.

Many s and Best Wishes!
  #3  
Unread 03-05-2005, 09:25 AM
TAH and BSO coming up

Hi ((Paula,))
A year and half ago I had the same DX as you and I also was post-menapausal wanting to try hormone therapy so there are many similarities in our cases. I know so very well how very scary and confusing it can be to suddenly find oneself in this situation.
My only symptom was ever so slight spotting and even that would be there one day and gone for up to a week or more. In fact the first time I presented my PCP with these symptoms she though it was a UTI and in fact my test for that was positive so I went on meds for that and the spotting stopped for almost 6 weeks but began again, and ever so light. This time she said it were best for me to see a gyn which I did and the vag.sonogram showed a very thick (like 31mm) lining so gyn ordered a D&C with hystoscope(spl?. Following this procedure, I awoke to her by my side and she compassionately said while she could not say cancer was there she could not say it was not and she wanted me to have surgery soonest; she knew how I wanted to avoid those very words.
The next day I hightailed it to a gyn/onc who to my chagrin also said" have the surgery and soon;" went to gyn/onc no 2. and he gave the same verdict. I asked about hormone therapy and while all three doctors said we could try BUT it was not recommended since HT does not have a very good success rate with women over 50 and, more importantly, while we waited 3 months to see if the HT might work, we might be allowing possible cancer cells to grow. All three also told me that if a close family member had my dx they would insist on a TAH/BSO soonest.
My gyn and a gyn/onc, the latter assisting at her insistence, operated on me (this was about 3 weeks after the D&C) and they found a low stage cancer. After the final path report and staging both said they were confident the operation had been the cure.
All docs also mentioned that endometrail cancer is the one to get, if cancer were in the cards, as it often is discovered in an early stage. I am on a "5 year follow-up" plan which actually for me is reassuring since if cancer dared to rear its ugly head again it would be promptly found and treated most likely at a very early stage again when cure rates usually are highest.
FYI, Early stage endometrial cancer almost always does not present with pain; the latter usually indicates a later stage cancer. Please consider, at least, consulting with a gyn/onc and even having him/her do, or at least assist, with your surgery just in case a low grade cancer might be lurking. I will keep you in that you have an easy surgery and your path report shows an "all clear". Please feel free to PM me if you want to.
s, peggiesue
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