I have been in pain for 17 months now and I'm scheduled for a possible hysterectomy in April. The thing that concerns me more than anything is that I have these horrendous, constant full body aches that accompany my pelvic pain and I have not heard much from others who have this symptom.
They have done every test imaginable to rule-out chronic fatigue, fibromyalgia, interstitial cystitis, pelvic floor spasm, pelvic congestion and so on and so on. We know I have endometriosis but the doc's don't think it's the source of my current pain. We are thinking it is most likely adenomyosis at this point. We also know it isn't some form of arthritis because it's not joint pain and I feel my best in the morning (compared to arthritis sufferers who wake up with stiffnes and pain).
This symptom is almost worse than the pelvic pain. At least the pelvic pain is centralized! I was just wondering if others have experienced this or if I'm missing something obvious that I should be checking into.
I have been on so many sites and still find that I get more information from this source than any other. Thank you!
I had endo and adeno but have not seen full-body aches mentioned as a being related to these conditions. Chronic pain can be very frustrating and confusing. It's always harder dealing with pain when we don't know what's causing it, don't you think?
As you may know, a hyst is no guarantee against further endo problems and surgical menopause has a whole slew of potential problems too. Other than my GYN problems I was in good physical condition before I had my hyst. Even so, it took its toll on me. I feel like I've aged a decade this year! I have to keep reminding myself about my days of embarrassing flooding and clotting, horrid cramps, diarrhea etc. to feel better about my newly menopausal body.
I can tell this has been a long road for you Heather. I'd hate to see things get even worse for you if a hyst didn't help your pain or caused more problems than it solved. It’s a big decision. Maybe a new Dr. for a 2nd or 3rd opinion would be helpful, or maybe a Pain Management Specialist might have had other patients with symptoms similar to yours. Please take all the time you need before you decide so that you feel comfortable with your choice.
I hope the future holds answers and good health~
s & ers,