Bad Day at the Clinic

Today was treatment #3. Had to be up at 4 AM to take medication, then leave home at 7 to be at clinic for 8. Had blood work done, then waited until 10:30 for my 8:45 appointment with the oncologist. Didn't get started chemo until 11:45, so it was 5 by the time I was finished. And they tell us not to get overtired?
For some reason they had overbooked, so they were constantly moving in more chairs and beds and everyone was tripping over everybody, and when you tried to doze, somone would be banging into your chair.

My own oncologist was not there, so I asked some questions of the onc they gave me. He didn't know, so he got a copy of my last CT scan, which he let me have. It revealed a lot of information which my own onc had not shared or had sugar-coated. Why can't these doctors just give us the straight story on our own health? Of course this was the one time my DH couldn't accompany me, so I was rather upset after reading this report and being alone.

On the upside, the new Onc gave me a prescription for some lower strength steroids to keep taking for a few days after the other ones are done, to hopefully avoid the terrible leg pains I've been experiencing after treatments.

Oh, well, off to bed. Tomorrow will be a better day.

awww, #9, I"m sorry you had such a rough time of it today. It was a LOOOOOOONNNNNNGGGGG day for you!

Rest up and remember to drink plenty of fluids. Better days are coming your way!

XOXOX
K9

Glad you're home and hoping you are in bed, resting comfortably, by now. I remember how stressful the whole magilla is. Let's hope for a better day tomorrow!

I too am sorry that you had such a bad day but think of it this way.....another treatment over and done with. You are now half way there.

Rest up. There is a bright side to all of this.

Rosalie

Number9,

Aw sweetie, it breaks my heart that you had such a difficult emotional day. After reading your post, I said a little prayer for you. I wanted to give you some s , s too. I will continue to pray for you.

God bless you and keep you

I am so sorry you had such a rough and long day today. You are halfway done with your chemo! Make sure you take that report with you next time and ask you doctor about the report.

Rest and drink fluids.

Take Care
Jane

s Number9

Sorry you had such a rotten day.
Chin up!! You are halfway done the treatments.
You can do this. If treatments stay on track, you'll be done in six more weeks.
Don't fret too much about the CT report.
But do ask your regular doctor for a more thorough explanation.
Was the CT done after surgery but before chemo started???
It may just be used for comparison after chemo is completed.

oxoxox karenann

That is a VERY long day! Now it's your turn to rest and let others wait on you. I'm sorry if you found out some extras and feel things were sugar coated. When you see your regular onc. do explain your feelings and ask for more open-ness. I know it sounds hard to do, but after Cyndy died I had a conversation with my onc. and said no matter what, I want to know everything, even if I say I don't or say I'm afraid, because I need to know. He said he would. In my last CT scan there was a note of some gallstones. They weren't mentioned in February and I was kind of shocked. Then I figured in the overall picture they were nothing to get upset about.

Next time--everything on schedule, no banging and crowding, and you get treated like a queen.

Number 9 - I always watch for your posts as we are doing this chemo thing almost on the same timing. I am so sorry you have such a gruelling day. Sounds like a real traffic jam. I am do for my 3rd treatment on June 8. Hopefully that will be your worst experience and now it is over. Did you doctor ever mention having 8 treatments instead of 6? My doctor said he might consider that and I ONLY want 6. My stage is 1C but it is clear cell so maybe that is why, I say enough already. I suppose the CA125 will tell the answer and then the CT or PET scan.

In answer to your question, Chris, my onc only mentioned 6 treatments, but when that is done we will have to see if that did the trick or if more chemo or radiation needs to be done.

Unfortunately my particular OVCA is a bit of a mystery to them, and nothing shows up on any of my blood tests to indicate any change, or that it was even present to begin with, so the whole thing is a bit of a guessing game.

I'm keeping my fingers crossed that 6 will be enough. I'm hesitant to even consider radiation afterwards, as I understand that it is one of the few options if there is a recurrance, and that you can only take it once.

Who'd have ever thunk we'd have to become quasi-medical specialists? I hate making decisions!

Thanks to everyone for your support. I know that yesterday was only a bump in the road and that next time will be better. We are supposed to be moving into a new state of the art clinic in July, complete with windows, so that will be a big improvement.