Hi sisters....I hope you all can help me. My doctor thinks I have ovarian remnant syndrome based on a follow up CAT scan...i go meet my surgeon/specialist that I was referred to on Aug 16th to find out what we're going to do. I understand this tentative diagnosis, especially because I've been on very high dose estrogen since my hysterectomy (about 8 months)...and I had very active endo that loved to grow and multiply and spread....plus tons of endometriomas and hemorraghic cysts all over my ovaries, so they weren't really identifiable (neither was my uterus, although I'm sure that's not even related). Is this really possbile? Could they have left my ovaries in on accident? How could whatever is growing inside me get into my stomach and my blood vessels? I'm so confused. Is ovarian remnant syndrome different from endometrosis? Can it be actually ovarian cancer? If anyone could at least point me in the right direction, I'd appreciate it. It's hard to find info on this. I guess I just want to know what I'm up against....will there ever be an end to this??????????????
I too was recently diagnosed with ORS. My doctor told me that with all the adhesions and endo, finding the border of the ovary is very hard to do,and sometimes a little gets left behind and regenerates.
I had been having pain on my right side a month or so after my RSO but figured since I had bad adhesions on that side, that the adhesions had come back. Boy was I shocked when she told me I had ORS ( I had had an U/S for left ovarian cyst when it was diagnosed).
I go next week for my second shot of lupron (for the endo) and we will discuss when I will have more surgery to remove my left cystic ovary and also the remnant.
s and good luck
I to have had ORS and it's no fun!! More and more info is becoming available. When I had it...the only info was for dogs!!
Ovarian remnant syndrome occurs in patients who have had one or both ovaries surgically removed, but have small pieces of ovarian tissue left behind. These remnants of ovarian tissue, which can initially be microscopic, respond to hormonal stimulation, and can grow, become cystic, or hemorrhage producing pain. Ovarian remnants can reimplant anywhere in the abdominal cavity including the bowel and ureters.
Unfortunately, I might be in this crowd! I had a FSH test done last Thursday to check for ORS. Please, please keep your fingers crossed for me that the results indicated MENO! I've been through (and am still going through) enough without adding this to it.