Well, I have been doing as told- and as usual- resting. You all were right in saying that the med and days before the Colonoscopy were the worst. I told my PCP that I NEVER want to go through THAT again. I know alot of family who have had one, but they were not ill and with painful diareah BEFORE they had to have a scopy. You cannot imagine. DH got home (worked a half day so I could clean house) and took me back down to the same city he works in to the hospital for the specialist (same hosp. I had all my hearing testing done when I was young). I don't like that place though. WE did ALL the paperwork. They left it with us and didn't go through much. And then... Nurse: ok, we'll get you going soon. Me: Well I need the IV for antiobiotic an hour before. Nurse: There is no such order on here for that. Me: Well, LOOK AGAIN. I have loss of immunity from Rheumatic Fever and also heart murmer and problems and NEVER have ANYTHING done without ab. Nurse: Welllll, I'll have to CALL him and ASK and he's in surgery now... Me: Well YOU DO THAT hon. So she did and it came out that yes, he DID send an order for that. So it was too late to have it in the IV and she would just have to give me a shot in the butt and said so. Me: Oh, that's ok- I am VERY used to this after 25 years. I've had those shots quite a bit.
Like she thought it was going to upset me with that.
But a GOOD Nurse was also there and she was nice and tried to make me at ease and let DH be with me the entire time until I was asleep. She even put his face up on the screen using the scope ! Kind of funny but kind of GROSS ! The Dr was there and the med went in and I was "OH MY....." and DH laughed and he later said I was holding his hand and he tried twice to let go and finally I was out and let go of him and they sent him out. I was in there about 25 mins and then came back totally still out. I remember a few things- I woke up once with a jabbing pain and "OUCH!" (upper left side) and saw the screen and a tube like place lit up. Then I must have fallen asleep again and had another jab (that lower right side pain) and said "OUCH !" so they must have given me more med and then waking up and DH holding my hand and talking to the Dr.
He said the Dr only spoke a minute and only said "Everything went fine and it looks ok so far. You'll hear from the lab report on the biopsy by Friday."
And that's it. Nothing yet. But he did think if it is Crohn's Disease, then it is VERY early and he did not SEE any evidence of it but took samples to rule it out completely or not.
I had a Dr appt the very day after (OMG- I really hurt too) and he was at his Mom's funeral and although he knew I was referred to this Specialist from the Surgeon, he was a little taken aback that they went and did that and he had no idea it was that day before and was upset that I was there in his office instead of in bed. He really thinks all the tests so far show I am ok- for ME. And that the hyst just really shocked my body and has not begun to recover yet. He thinks the pain I feel is VERY REAL, but he also thinks it will go away in time if I just let go of things and take it easy and just rest as I need and not drive places, lift things, or take on large projects. He also wants to try fiber diet and supplements because I lost another two pounds and he is very concerned my being so underweight and weak. He doesn't want me to have another surgery (Lap) but if this pain is still ongoing at my one year mark, then we will go ahead and look then, but he thinks it will make me worse for now. He did send in a non-narcotic pain killer to help me with the pain during my day. He let me go ahead and have Flu Shot now too.
But this morning, the pain in my pelvic area and the puffiness in my bladder and what I know now is the area OUTSIDE of my vagina- not the inside- is all VERY painful and feels swollen. I could hardly get up to go to the bathroom last night. I told DH during the night when he woke up with me once, to tell the Specialist that he is NOT done- I still want him to look at my bladder which I think is causing the problem. I still feel like rubber bands are pulling on everything and that feeling has now spread from that lower right side to also the lower left and behind my belly button where they cut for the LAVH. I think it is adhesions- really. PCP said although he didn't want to consent for a Lap, he would ok it if the Surgeon said he would. I don't have another appt with the Surgeon yet- waiting on the Uro/GI Specialist and what the scopy found, but PCP wants me to STAY with the Surgeon until all this is resolved one way or another. So I will stay under the Surgeon's care also until they say there is nothing to be done. I just can't see living like THIS- hardly able to walk with the pain in the morning and the nighttime.....It is KILLING ME !! I feel like a pot of water inside that is roiling and splashing back and forth in a storm everytime DH rolls over or anyone TOUCHES the bed. I never had that before the hyst. In fact, alot of this pain- I NEVER EVER had any of it before the hyst. So I know it is not normal and DH is going to push them to find out why. But he does agree with PCP that I am a very slow healer (I get Flu three or four times even after Flu Shot and it takes a month to get over a cold) and that all the ab could have built up in my body and with the massive amount I had with the surgery, it could ahve caused the bowel problems. And that I NEED to rest and not go back to things yet. DH was told time and time again by three Drs now, that it will take a full year for me to get back up again as I have alot of immunity problems. Normal people vary in that time but they think I am going to take a long time. The specialist thinks there is still a problem that has not been found yet that is causing the lower right side pain and he aims to find it. So that is good and I will see what happens from here.
Thanks for the Sisters who made it all the way to the end of this. haha