Hello there. I'm having a tough time trying to figure out what is happening to me. I thought my hystersisters could help. Last fall I started having terrible shooting pain in my groin and crotch area after sitting for long periods of time on hard surfaces and then standing up...like on bleachers. It's now happening more frequently, like sitting in a restaurant and then standing up. The pain is so severe that I can hardly walk, but after a few steps it mostly goes away. I now have a constant pain in my left groin area that sometimes radiates to my butt cheek and down my leg. And at times I get stabbing and shooting pains up my vagina. Even my butt hole hurts at time. My last two periods were two weeks late. I do have fibroids, an enlarged uterus and a "boggy" uterus according to my obgyn. I have an appt. for my annual "inspection" next week, but I'm racking my brain trying to figure out what is going on with me. Any thoughts? I'd like to do some research on the internet prior to my appt. but I'm coming up empty. I'm beginning to get worried about these pains. Something seems wrong, definitely. Thanks for your help. Tootser.
Well, I think we might almost be twins! I sometimes get pains that feel like some has grabbed on to something inside with both hands, and is squeezing the life out of it. It usually passes very quickly, but it definatley gets my attention. My uterus is: enlarged,mulifibroids, bulky, dense and lobular. You're the only person that has posted many of the same descriptions; I don't feel so alone. I hope you feel better soon!
It could be pudendal nerve entrapment. Maybe your fibroid is pushing on the pudendal nerve.
I have severe pudendal nerve damage from my surgery and it sounds a lot like my pains. (My case gets confusing though because it also involves other nerve damage that has left me without any sensations what so ever in some areas.)
About your upcoming hysterectomy, is this a definite or are you still researching? Have you considered or explored myomectomies or the ultra sound treatments for fibroids (no surgery involved with last one) or tried hormone treatments to shrink them?
If you already have nerve involvement, you may want to look even closer at other options before you make a final decision.
Oh, Lucille, I have no words to describe what I felt when I read your lines.
But, yes Tootser, I can relate to all of your nasty symptoms, my left leg was so numb at times that I went to a cardiovascular specialist, I thought it was going to burst. The stabbing pain in the vagina - I have felt it again yesterday, but then, I also had cramps last week in a virtually non-existing uterus... I think it's mirror pain, like people who get a member amputated but that member hurts? (Does anyone recognise that, by the way?)
Those and many other symptoms and syndromes are gone now - the same way they sneaked in along the past few years.
Anyway, this is just to comfort you. I am happy that you have an appointement coming soon.
Thanks so much for the replies. I will look up PNE and see if that could be the culprit. Lucille, to answer your question, I opted NOT to have a hysterectomy when I was having problems last year. I had exploratory surgery where he found fibroids and endometryosis which was scraped away...don't know the right terminology. My periods were better since that surgery. I think the uterus will have to come out sooner or later. And with these new problems, maybe sooner. I will look into the treatment options you mentioned also. Althought hormone therapy scares me the most. I'm 46 TODAY and I'm plucking away at my beard daily!!!!! Not a pretty sight! I'm thinking about going to my family dr. today just to rule out anything with bladder. To my twin, Marco.....I hope you feel better soon. I could deal with the pain if I knew what it is. I worry about cancer, etc. since my mother died of ovarian cancer. To Vitral - thank you for stating that your symptoms have come and gone. Sometimes when you are experiencing symptoms, you feel like you are alone with no end in sight! Did any of you feel pressure on your bladder or anus with this condition??? Thanks to all.
That does not mean you have the same thing I did!!!!!!!!!!!! Just that I can relate to your symptoms.
I kept waiting for menopause to settle in so I would not have to have the surgery - but as it turned out - it could have cost my life as I could not stop the bleeding in the end - I was close to incontinent and....oh....I looked awful, too.
This sounds crazy, but I swear, cod liver oil capsules help me! They work by reducing the inflammation (proven benefit of cod liver oil) which, in turn, reduces the pressure and pinching of the nerves. You can usually pick them up at the store and the good news is they're inexpensive and healthy in many other ways!
(For other sisters who may not know, PNE is pudendal nerve entrapment.)
I've posted about this in other threads but don't know if you've ever read them. Anyway, it's worked so well for me that I was able to get off the Neurontin that I was taking for the pain and that makes me very happy!
I'm sorry you have to deal with this too. Hope you can get some relief soon.
Tootser..... I had alot of the syptoms as you and I was dx with andeomyosis. Do a search on it and see if you can relate to alot of the syptoms. Andeo can sometimes show up on a ultrasound or a MRI, but I believe (could be wrong) the only sure way to dx is by removing the uterus and sending it to pathology.
Good luck with your research and everything else!!