I have been battling UTI's for over 3 years. I had them prior to my hysterectomy 4/1/2004. At the time of Hyster I also had TVT done. Happy I don’t have leakage when I laugh, cough, or sneeze, but I don’t like the feeling I have lost when I urinate. It takes a long time to Pee and I don’t know when I am done, I have lost all feelings.
I do not empty my bladder leaving about 1/4 full. I also have a kidney stone 10cm. I now take Nitrofur 100mg every night to prevent UTI's and Flomax to help empty the bladder. (I don’t know if it helps, I have lost feeling). I was told to take 81mg of aspirin. Aspirin has something in it to make acid in our urine to help (per pharmacy). So here is another pill!
I have had my kidney stone zapped 2 times and it still does not want to leave the kidney. So I will go one more time. And if not passed then I will have it taken out the surgery way…yuck
Kidney stone’s (can cause infections) and you can take meds to prevent infections from happening. I don’t like taking meds, but if it stops infections then I will.
If once the stone is gone and if I continue with infections then it could be from not empting the bladder. I will have the TVT snipped and again wear panty liners or pads. Don’t know if that will work, but trying everything and trying to stay sane in the mean time. I cry just typing this……It is so frustrating……
Sorry for your troubles. I noticed (how the heck could I not!!!) that when I cough I wet myself. I go in for a second post-op on the 4th so I will ask questions then. I know they have a pill for such a case. I hope it will work since I have bronchitis right now!!!!! Your TVT caused you to loose sensation??? Hope your kidney stone decides to evacuate soon. They are painful. Good luck and keep posting what happens with you. I need all the info. I can get on this. Thanks.
I'm sorry you are suffering from so many bladder issues at once. I don't know much about the loss of sensation but I do know about kidney stones. I have passed all but one but my urologist isn't concerned because in his opinion, if you mess with them when they are not causing a problem they form scar tissue and cause worse problems. So... for the time being, we are keeping an eye on it via x-ray and an occasional IVP. Have you thought about getting a second opinion? Sometimes, two heads are better then one and you might prevent having your sling cut. I hope you find a solution soon. Keep us informed
I am so sorry all this is happening to you! I have a similar story. I had a hysterectomy, Burch, A & P repair, and synthetic mesh on Dec. 6th. I have also had no sensation in my bladder since the procedure. I did not have a kidney stone, but I did have scar tissue form in the part of the ureter that connects to the bladder causing hydronephrosis and kidney infection. I had a stent put in and it supposedly cleared the blockage and then a day later it was back and I had the infection. I just got another stent and a balloon dilatation of the ureter and urethra two days ago. Before this last surgery, I had a video urodynamics study which showed my bladder muscle to have lost all function. During the balloon dilatation, my doc. checked out the bladder lift and said it looked perfect. He does not believe my retention issues are because of the lift, especially since he did the urodynamics which showed it was the bladder muscle itself was the problem. He also said that if he loosened or released the lift I would only get the leakage problems and he does not believe it will correct the bladder problems.
I am starting Flomax and a drug called Bethalechnol on Sunday (he wanted to wait at least 3 days after the surgery to let my bladder rest before starting the meds). If the medication does not work, next I have a device like a pacemaker put into my back with wires that go to the nerves in my spine that stimulate the bladder to work.
Anyway, I would ask around and get a second opinion before having any more surgery. I have seen three kidney/urologist specialists now that all agree that losening the lift or removing it will not solve the bladder issue nor will removing the mesh even if that is what caused it in the first place. These are not the answers I wanted to hear, but I think today I am feeling better about it. At least there are options and hope we can get it working again.
Also, ask about the balloon dilatation. I don't know if that will help with a kidney stone, but it got rid of my obstruction. And, it is done endoscopically, so there are no incisions. I did have to be under general anesthetic and it was VERY painful the first two days, but I am better today. But, I also had to get a stent and I think that is what is causing my pain more than just the procedure. I don't do well with stents. :0)
I will keep you in my prayers and I hope you do not have to have another surgery. I also hope you feel better soon. Just know you are not alone! I found this sight three days ago, the night before my fourth surgery and it has been a lifesaver! There are more of us with bladder problems too!
I will keep you in my prayers, lots of hugs!
It has been a few years since I first posted this info. Today it has been 4.5 years since all of the procedures. I still have no feeling when I pee.... I have gotten use to it for the most part. For the bladder infections I now take Macrobid everyday, and been UT free for a long time. I did quit taking the Macrobid, after my husband died and 4 months later a bladder infection. Back on the pills and I do not miss a day!
Good luck to all who read this post. I do check back here about once a year.