endo pain

Hi everyone!
I had TAH/BSO on April 12th due to endo. My recovery has gone really well thus far. For the last couple of
days I have had a tremendous amount of back pain,
just like before my surgery. My doc told me to give
it another few weeks. Has anyone else that had endo
had this pain come back after surgery? I am on premarin .625 mg. Pain meds don't seem to be helping.
If any endo was left does it go away or continue to cause pain? I'm soooo confused.
Thanks for your continued support!

AnnieS

Annie, I really don't have a clear answer for you on your back pain. I had lower back pain before my surgery and it has improved vastly since I have had the surgery. I have degenerated discs in my back so I do have a history of problems with my back. I have had no flair ups thank god. A few ideas might be how old is your mattress? An older mattress might not be giving you the support you need. Do you have any history of previous back problems or injuries that might might be causing flare ups now? If you have a regular doctor such as a gp or internalist maybe this is the time for them to research the symptons you may be having. It might not be related to your endo at all. Maybe you have a slight strain or a disc that is flaring up. The main thing is get to a doctor for them to evaluate your symptons so a treatment plan can begin. Back pain can be helped and prevented once the proper diagnosis is made. I know this doesn't take the pain away for you but I can understand how awful you feel. Lets us know how you are feeling soon. Diane

the first month after my surgery i was amazed that the back pain was gone. but it has come back. not as bad but its there, im sure i will be on pain meds the rest of my life. i try to atleast wait until the evening time to give in and take it. i dont want to have to be on pain killers all the time. it cant be good for u. and when these run out im afraid i wont get anymore since my surgery supposedly took care of this problem. whats a girl to do. i just figure its a part of getting older. i dont mean to bring u down, but im just sick of the back pain to. take care.

Hi there

Endometriosis doesn't go away on its own. It feeds off oestrogen and mulitiplies. If your ovaries are left they produce oestrogen, and also HRT contains oestrogen. I am not sure what your HRT contains, but I have read a lot of ladies who had endo have been given this, so it must be one of the best for it!

Did you get your operation notes/report? Do you know if DD saw any deposits of Endo and if they removed any?

There is no guarentee that a TAH/BSO will "cure" Endo. If you want to know more about what they did during the operation, you must speak to DD.
This, of course, is not medical advice, just my opinion!

But try not to worry. Your DD knows what he/she is doing!!(?) And it is early days yet. Keep a record of any pains that you get and see if they are cyclical. This is usually a good indicator, and gives you something to show the Doctors.

Email me if you want to chat!!

i had a TAH/BSO due to severe endo and my gyny consultant told me before my hyster. that he could not put me on oestrogen and endo. thrives on it.

Yet after my operation he informed me that he had put an oestrogen implant in my abdomin wall (apparently it is made from the cactus plant and soya).

I too am very worried that the endo will return, if it does who do we see???

I would hate to think that i have been through all this pain and the endo return...

i hope for all us endo sufferers that it doesn't

keep smiling

chrissie


chrissiehawk@aol.com

Hello fellow endo sisters!

I am 3 weeks today post op TVH/BSO. I have also had back pain. Doc says it's because the abdominal muscles are weak and I'm over-compensating by using my back.

Makes sense to me! It's all in the healing process! I need to take it easy.

I am also scared to death of the endo returning. I'm on the patch--plan to talk to the doc about this in 2 weeks. He says I don't need the patch, so what then-- just go into surgical menopause?? That is a tough decision--

More endo vs. surgical menopause. I'm 42.

Back pain and joint pain is a common problem after tah/bso. I'll list a link from the hormone jungle about that one.
http://www.hystersisters.com/vb2/sho...?threadid=2366

http://www.hystersisters.com/vb2/sho...threadid=23043


Also, endometriosis never really goes away unless it was surgically removed. The chance of it causing pain after hysterectomy is considered to be rare, but it does happen. I'll list some links about that too...http://www.hystersisters.com/vb2/sho...threadid=26066

This close to surgery (it's just been a few weeks) it's probably the healing process. If it concerns you please contact your doctor. I have read that they do alot of re-arranging and cutting certain ligaments that may cause the pelvis to "settle" in some women and cause pain. If it gets worse, doesn't improve, or is concerning you now -- dont' wait call you doctor.

That's another "theory" in the medical profession. There seems to be a lot of theories but nothing proven. There's a lot of research that must be done. I will list some links here about the nature of endo and the theories behind each treatment option.



http://www.centerforendo.com/QandA.htm

http://www.scmc.org/endo/html/question9.html

www.endometriosisassn.com
www.endometriosis.org

Keep in mind that your doctors have all been schooled in different theories of treatment which results in varying advice. They don't really know what causes endometriosis, just how it behaves. They're are some theories out there that say endometriosis creates it's own hormones/estrogen. The studies backing that up are limited. Which theory is the correct one? No one knows.

If you've already had a hysterectomy, are trying to make your decision, or your decision is made -- the best advice I can give you is to find out all you can about hysterectomized women and potential benefits and problems there. There's a wealth of information on the post op board, the hormone jungle and the road less traveled. Check out the archives, and ask questions. The support here has been wonderful for me....and quite frankly, saved my life.