Frozen Pelvis

Has anyone heard of a frozen pelvis? Doc says this is what I have. I guess everyting is the right size, in the right place, just fused together with endo/ando, adhesions, and scar tissue. I swear I remember the surgeon that did my last laporoscopy telling me that he removed as much the fusion of bowel to the uterus as he was comfortable doing. This was approx. 10 years ago. I think, but hope I don't, need a bowel resection. Doc is preparing for the worst but, hoping for the best.

I could had the surgery in March if I hadn't opened my mouth about the bowel involvment. He wanted to see if he could get more paper work on my last surgery. I guess the 2-inch stack of reports, office visits, and surgical notes I walked in with on my first appt. with him, many moons ago, wasn't enough. It also gave me chance to see if Lupron would help reduce some of the endo pre-op.

I've never heard that term & I had basically the same issues as you. Before surgery doc suspected endo & adhesions & fibroid. I didn't have endo but did have adeno & fibroids & adhesions. (Adhesions are scar tissue by the way, they aren't 2 different things.) I like that term though, it fits. I couldn't pull, reach, twist, etc without extra pain...my pelvis was frozen.

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Originally Posted by itstime I've never heard that term & I had basically the same issues as you. Before surgery doc suspected endo & adhesions & fibroid. I didn't have endo but did have adeno & fibroids & adhesions. (Adhesions are scar tissue by the way, they aren't 2 different things.) I like that term though, it fits. I couldn't pull, reach, twist, etc without extra pain...my pelvis was frozen.

What about bowel involvment. I am pretty sure I have a fibroid on R ovary or uterus. I'll be 43 in Sept. and have been dealing with endo pain and problems since I was 19.

I have never heard that term either. but, one thing I have learned is that the docs sometimes have "pet" names for certain conditions that make it a little confusing for us. I think they come up with these terms to make it easier for us to understand, but being researchy hystersisters, it really just makes the research more difficult.
I hhope all goes well for you!

dgs63, I guess I was fortunate in that I didn't have any bowel movement issues, even though I had adhesions on my bowel. Fibroids are only on the uterus, if you do have a cyst or tumor on your ovary it's not a fibroid, it's something else. They cannot tell exactly what you have until they actually go in there. When I had a fibroid a few years ago, that doc thought from the ultrasound that my right ovary was very enlarged & I had surgery 6 days later. Thankfully it turned out it was a fibroid on my uterus that was blocking the "view" of the ovary on the ultrasound. My ovary was fine.

It sounds like the guy that did your lap didn't get all the adhesions off of your bowel & I bet it has grown. Hopefully that's all it is & you can get it removed & not have your bowel operated on.

Frozen pelvis refers to your uterus,tubes,ovaries etc. being fused together by endometriosis,adhesions,and/or scar tissue. I had the same thing. Hurts like the dickens with everything stuck together like that.

Best wishes for your surgery and for a speedy recovery!!!

Bellyache, It sounds like the same. Doc couldn't come up with words to describe it. He even used his hands to explain it, I think more for his benefit than mine. I told him that the times I need to be off my feet, I feel I need to hold my belly. That's it!!

My last GYN unfused as much of the endo from where the bowel was attached to the uterus as he felt comfortable doing. He was afraid of nicking the bowel. He said to do it properly I was have had a hysterotomy. As it was, my 45 min. procedure took 3 hrs. because he found more than he expected. He is also the Dr. that stood at the foot of my bed as I woke up in recovery and asked "What happened to your left ovary"? He kept me out pain for over 5 years without any meds.

When I started with the unbearable again, I had to get a new doc and was on and off BCP's until I started the Lupron in Febuary. I hope when everything is out, that my current GYN sees the left ovary hiding in plain site so I don't need to take HRT.

dgs63,

I know exactly what you mean about the belly pain and holding your belly! My uterus and left ovary were both attached to my large intestine and the right ovary had twisted around behind my uterus and was stuck to the back of the uterus and they were both stuck to my intestines too. And since my uterus was also prolapsed it was also stuck to my bladder. Every place that my "parts" weren't supposed to be,they were lol. I had endo. all over the place. It got to the point where I couldn't walk without holding onto my belly. I had 2 gyns and a general surgeon during my hyst. The gyns to do the hyst. and the general surgeon to do the bowel repairs. They did a fantastic job!

I wonder what your other gyn. meant by "What happened to your left ovary?" Did he NOT look for it?...Sorta like a Where's Waldo type thing?

My ovaries(the evil little beasts) were always hiding at some time or another. Alot of times when we have ovarian cysts,that causes the ovary to twist and be in some oddball position. I had had an abdominal ultrasound one time with one of my old gyns and had both the ultrasound tech. and the Dr. both asking,"Where on Earth is that ovary?" They then did a vaginal ultrasound and then they found it hiding behind my uterus with a big ol cyst on it. The Dr. said,"Well what on Earth is it doing THERE!!? Wow I bet that hurts!" I told him "DUH!Ya think!??" and that it was just camera shy. Sometimes I think that if I didn't maintain my sense of humor with these things,I'd most likely go completely bonkers!

I sure hope that they find that pesky little ovary of yours and get things fixed for ya.

Bellyache,
The left ovary is kinda "Where's Waldo"? The last guy said it might be a cyst growing where the ovary should be. I had a hernia when I was a baby and it may have been accidentally removed when that was fixed. The surgical report from the hernia surgery said something about an unknown mass, ovary? Scar is on my left side, in that area.
I hope it is playiny Hide & Seek. No HRT for me!!

Hello Girls! I too have been diagnosed with a frozen pelvis due to severe endometriosis (I had no idea). When I went for my annual in November '05, I told the doctor that my right ovary hurt at times (I have not had the usual endometriosis pain or heavy bleeding), thus began 3 ultrasounds and a CAT Scan. He decided to take out the right ovary. That was abandoned when he got "inside" because he found out that my pelvis was frozen, so he did nothing except take a small cyst off the right ovary. In my last follow-up visit, he said we would take no course of action - when the pain got so bad, he would do a TAH. So I began alot of research and talked to a transcriptionist of another ObGyn (actually she's the wife of a guy I work with). Anyway - long story - short, I went to another doctor for a second opinion. He told me doing nothing was the absolute worse thing, so he explained the treatments and we settled on Seasonale. He said hopefully we could "buy time" (I'll be 46 next month) and I'd hit menopause and surgery could be avoided. Well, I was thrilled to say the least. That was until July 13 (towards the end of my 7th week on Seasonale), when Aunt Flo came calling (I hoped I was going to be one of those that didn't have ANY bleeding at all while on the BCPs ) . The doctor, Seasonale brochure and video all explained about possible "break through" bleeding, but this has been the worse one I have had in quite a very long time - on Saturday the 15th (thank God it was on the week-end) I took pain pills, slept and laid around all day. The bleeding was very heavy. On Monday morning I had "tissue loss" - scared the you-know-what out of me . I didn't tell my husband about that. Anyway, I am still bleeding - it gets less and less everyday - I've made up my mind that if it has not quit by Monday, August 1 I will call the doctor (video said to call if it hadn't stopped by the 7th day). So I just wonder if I would have been better doing nothing as the first doctor said or continue on with the Seasonale and my second doctor. I do believe if the second doctor wants to switch me to one of the other more drastic treatments, then I would rather not be on any treatment at all. Any suggestions?! Thanks for all of your help and advise!