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Hi there, I have just joined this site in hope of getting some advice re: Cervical Cancer,
3 years ago I had an abnormal smear, which I had to have a colposcopy done to determine what was wrong, the results from that came back as CIN1 CIN2 CIN3 CIS And dysplasia, I had a whole heap of treatments including lletz, punch biopsy, and cone biopsy, which cleared it all for me, unfortunatly I have now had another abnormal smear, this time the colposcopy has showen CIN2 only, my specialist has given me until the 15th September to make my mind up on weather I want just another cone biopsy done to fix the problem or have a hysterectomy, I have finished having children so I dont mind having the hysterectomy done, but I just want to hear from others who have had same/similar happen and what their thoughts on a hysterectomy are?? Thanks
The decision is yours to make...I chose to have the hysterectomy since I was finished with my family, but I did NOT have my surgery performed by a GYN/ONC, and I regret that as I am now having ovarian problems that may or may not be due to cancer that was left behind. I go for a CA125 in a couple of weeks. So please, seek an opinion from a GYN/ONC. My Gyn is great, but not experienced in cancer. Good Luck, and I will be praying for you! Have a good day and keep us informed of your progress!!
Hi. I was diagnosed with Cervical Cancer and I was not done having children but I have had to make the choice you are making. In January when I was diagnosed the gyn/onc said that the cancer they found in the Leep was very small and felt I could be cured with a Cone. I got another opinion from another doctor who recommended a hyster. I went with the cone in hopes of saving my fertility. Even though things did not work out and there was more cancer than anyone thought I am glad I took the chance. I think if you can avoid major surgery and be cured than you should do it. But you will have to be watched by a doctor closely. If you think that you will always stress about it than you should go with the surgery. This is of course just my opinion.
Thanks for that
I am leaning towrads a hysterectomy at the moment, as my thoughts are that I have already had alot of treatments for it the first time round and it has come back again and I dont want to go through all that again to find out in another year or two that yet again it has come back, my specialist just gave me my options and didnt recommend either as he cant tell me what to do just give me the options?!, I do understand that it will take a while to recoup after the op but then I look at the bright side of it......no more colposcopys or biopsys and once Im feeling better I'll be real happy within myself, it will be my specialist who preforms the op, I think here in NZ our health system differs from the US, my specialist is the one who does all the colpscopys and biopsys also, so I fully trust him
Hi I am also in Auckland! I had hysterectomy in March after a stage 1a1 cancer was found on lletz, it was completely removed. When thay ddi the hysterctomy they were still looking for more in the specimen...so I guess it can always lurk elsewhere. Hysterectomy is a big operation but at least you can have the peace of mind that it's all gone. I'm from the Uk and flew back to have op done there. My NZ gynae is also English and says that NZ has a very much more laid back protocol to cervical cancer and dysplasia.
Yes I have noticed that they are laid back here on that subject!!, my family Doctor is totally awesome I cannot praise him more than I already do he is so onto things especially with my history etc he keeps a real close eye on me, I had the recent smear done last December which came back as abnormal (again) and my Doctor sent a referral off to the hospital that same day as the results came in........it wasnt until June/July I was finally seen by the specialist, all because they had ""lost"" the referral and hundreds of phone calls to him later he still wasnt in a rush to see me!!!, then when he did was when we discovered I have CIN2 back again!!, like I said earlier he has now given me the choice of a cone biopsy or hyst, but he seemed very laid back about the whole thing and I felt as if I was 'just another number' I really do think I want the hyst done, looking at all the up sides of it for me ie: no more contraceptives, no more colposcopys, no more bleeding etc so its looking good that way for me, I just need reasurrance that what Im doing is the right thing to do in my situation
The other thing to bear in mind is that they don't offer hysterectomy lightly,but they don't want to be seen as needlessly taking a woman's womb but it will stop you from ever having cervical cancer,all these delays in apppointments etc and one day there might be the tiniest speck of cancer. However each and every woman recovers from hysterectomy differently they will probably go for a vaginal one in your case which aids the recovery(I believe).Preumably you are in the public system and you must think...why are they offering me the op? That answer might help your decision.
I'm having to make the same decision as you, Chickette. My oncologist said I could wait to have a hysterectomy, but I would have to have a much more extensive cone (am currently pregnant) and he does not recommend it. My OB also does not recommend waiting. She said I would spend more time in the oncologist's office that out. It's tempting to put off major surgery, but I think I'm going to go forward with the hysterectomy. I don't want the pre-cancerous cells lurking around and turning into cancer that will later require me to have chemo and radiation. Good luck to you.