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Endo with other issues (rheumatoid arthritis and fibromyalgia) Endo with other issues (rheumatoid arthritis and fibromyalgia)

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  #1  
Unread 10-10-2006, 09:06 AM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

My TAH/BSO is coming up on November 1st, and I have a question for the sisters: I am having my hysterectomy because of endo, but I also have rheumatoid arthritis and fibromyalgia (and their attendant issues). Has anyone else been in this similar situation, and how was your recovery?
  #2  
Unread 10-11-2006, 12:51 AM
Endo with other issues (rheumatoid arthritis and fibromyalgia)



My situation was different from yours and I don't have any answers for you. I just wanted to send you a big and I hope someone will come along and share their story with you!

s, Deb
  #3  
Unread 10-11-2006, 02:23 AM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

I have endo and myofasical pain syndrome, a "kissing cousin" to fibro (to quote my neurologist!), and fibro could be in my future.

Here is my best advice -- coordinate with all of your medical specialist. Make sure each one is completely aware of your complete medical situation and let them all know about your surgery. Ask their advice on what to expect -- how will surgery affect your other medical conditions. Having all your drs involved will aid in insuring that you will be given the meds you need while in the hospital and during recovery.

Let the operating room staff know you have health issues and they will be especially careful with your body position during surgery. Even talk to the anesthesilogist. I did not do this for my lap prior to my hyst and ended up with horrendous neck pain that was far beyond what I should have had. For my hyst, I told the OR nurses that I have a neck/shoulder injury and explained what happened with my lap and they positioned me better and I did not have the terrible pain after surgery as I had had with the lap.

Many best wishes to you for your upcoming surgery. I wish you the very best! Do take time to visit our Resource Database where you will find many helpful resources. And if you do not have an endometriosis specialist, you might want to see if you can find one.

s
  #4  
Unread 10-12-2006, 01:47 PM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

I had a TAH (uterine fibroids) 3 weeks ago. For the last year + I have been in flare-up with fibro. I am unable to work, with each day being a challenge. As suggested, I made sure that all of my specialists were aware of everything that was happening AND exactly what medication I was on. That's really important.

The surgery was fine and the painkillers (given through epidural, IV or orally) really curbed the fibro pain nicely -for about a week!! After that, it was back to fibro pain and post-op pain. But here's the good part....the post-op wasn't bad at all. Maybe because we're so used to pain, or maybe because people with fibro 'feel' pain differently - I don't know. I was off of all painkillers 5 days after my surgery. They had taken the edge off when needed, but after that, I felt I could cope without relying on medication. I saw my rheumatologist today and he just shook his head - he thinks his fibro patients are amazing!!

The real drawback, of course, is that we're used to plodding along regardless of the pain and you can't do that after your TAH. And, because fibro may be an auto-immune type of syndrome, you have to watch your incision really carefully. Keep it clean and dry because it may take a bit longer than normal to heal.

Good luck with your TAH. I'll keep you in my prayers!!
  #5  
Unread 10-12-2006, 02:48 PM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

I have fibro and myofascial pain in my right shoulder and neck. My experience is similar to Weiser's. I had wrenching pain in my shoulders and neck after my lap, and made sure the anesthesiologist knew this before my hysterectomy. No problems. I did find the hospital bed to be uncomfortable, and the heating pad the hospital had was big and bulky. I wish I would have brought my own. Aside from a 5 day post-op sinus infection and and 2 cold viruses, recovery has been great for the most part. My advise would be to PACE, PACE, PACE!!!

This is what I've been trying to adhere to:
* For the first 2 weeks, I did next to nothing except for walking.
* I make sure to plan out my week so I'm not doing more than 1 big activity every other day. This is easier if you actually print out a calendar month and pencil things in as you schedule them (doctors appointments, etc).
* I alternate more energy consuming tasks with less energy consuming tasks to allow myself rest in between. This one may sound like a no-brainer, but I find myself mindlessly caught up in household tasks and before I know it, I'm in pain. For example, I make a mental list of things I want to do for the day, and figure out what order I am going to do them. Example: Paying bills (less energy), then sweep floor (more energy). Also, if you figure out ways to make a task easier, you will spread your energy out enough to make it through the whole day. This includes practicing proper body mechanics and using tools like the grabber, etc to conserve energy.

Those of us with chronic pain know that it zaps us of energy. The more tired we are, the more we hurt. Make sure to actually PLAN for rest time, instead of looking at it as a bonus after everything else is done and there's extra time left in the day. All of this sounds so elementary, but so many of us put the needs of others above everything else and feel like we need to be superwoman no matter what. Those of us with chronic pain have an extra challenge when it comes to recovery and it requires us to put more effort into planning daily tasks. I hope this helps you in some way! Wishing you an uneventful surgery and recovery...
  #6  
Unread 10-12-2006, 03:27 PM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

I have rheumatoid arthritis, and was worried about having a "flare" due to not being able to take my normal NSAIDs the day of my surgery. I made sure I told everyone about this, I told the nurse at the pre-op interview, I told my surgeon, and right before the surgery when you meet with the anesthesiologist, I told him too. The anesth. put Torodol (sp?) in my IV, it's an anti-inflammatory, and I got I think 2 additional doses of it IV while I was in the hospital (I was discharged the next day). I didn't have any problems. I really don't feel that my recovery has been too hampered by having RA, but I have been very conservative about doing things. I didn't go back to work until 7 weeks, I probably could have gone back earlier. When I went back, I did half days at first. I tried to come home and take a nap everyday. I went to bed early (like 8:30 or 9 pm). Although with the night sweats, I haven't been sleeping very well.
If you take good care of yourself, and don't try to do too much, it will help your recovery!
  #7  
Unread 10-12-2006, 03:28 PM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

Hi, I, too, have fibro and the myofascial pain in the upper body. I just had my hyster a little over a couple of weeks ago. I was really worried how my fibro would do after the surgery. I am happy to report I have had very little fibro pain. I am really surprised at this cause I was expecting a doozey of a flare up, but so far nothing bad..just very mild soreness, which my bed buddy helps a lot...this is my time of the year my fibro likes to act up cause of the season change and cold moving in..so what I have is normal for this part of the year and not from surgery...but as I said..my fibro is very mild.

You should do ok, but mention it to you doc. They can do things to help you. I told my doc, the nurses and the anthesiology dr. the day of surgery about how bad my upper shoulders/neck get and to support it...so they all said they'd be extra careful with my body and put a pillow under to support it...they did good!!!!

Good luck to you.

Hugs, love and prayers!
  #8  
Unread 10-12-2006, 06:27 PM
Endo with other issues (rheumatoid arthritis and fibromyalgia)

I am sorry that you have so much pain. I have stage 4 endo, and just the pain from that is enough. You have a lot on your plate! Just wanted to send you best wishes, ! Take care of yourself.
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