I've been guided to this site in the past for endometriosis-related questions, and here I am again - now faced with the dreaded hyst.
My quickly-summarized story: I am 36 yrs old, and was finally diagnosed with stage 4 Endo in 2004.
I was going thru fertility treatment (unsuccessful), in 2005, and my RE had seen structures in my lower ab on ultrasounds that he kept thinking were blocked tubes. My HSG tests kept showing that they were not. He suggested we just keep an eye on them and not do anything b/c they could only be investigated via surgery - which would eliminate any possibility of conceiving.
We stopped the fertilty care, and I basically forgot the structures (he thought they were fluid from past surgery). A few weeks ago, I went to my primary care doc for a yearly exam and asked if we could do another u/s to ensure they were gone.
Had the u/s and, lo and behold, they did not show - but a 5 cm complex cyst/endometrioma on the left showed.
I was referred to a gyn, and she talked hyst, hyst, hyst.
A couple days after our meeting, I had to visit the ER with severe lower ab pains (first time in my long bout with endo). The pain subsided after a couple hrs (and morphine!).. and the CT scan showed nothing - no cysts, etc.
I had a follow-up u/s a few days later to ease my mind, as I figured the cyst ruptured (so did my gyn, who I'm sure thought I was being completely over-concerned), but I was afraid the fluid structures might now show up.
The u/s showed a host of new problems. Or rather, probs that were probably there and not found during the first u/s because this u/s was done at the gyn's office and not a random imaging location.
Now they found: the 4 cm complex endometrioma (left), a smaller 2-3 cm cyst (left), at least one complex endometrioma on the right (I saw the u/s and it looked like there were more than one - but maybe they were small normal cysts), and 2 structures that look like fluid-filled fallopian tubes (but as we know, they might not be).
So now.. I have an MRI scheduled on Tuesday to get a better idea of what is going on. My gyn said 'hyst' or MRI. I said MRI!! Hello - not rushing into a hyst.
So here I am. Trying to squelch fears that anything is cancerous (as reproductive cancers run in my family).. and wondering what in the world is going on inside my body. I know it's Endo-related, but criminy. I really don't want to have a hyst and go on HRTs (as req'd at my age from what my gyn has told me). My in-laws are docs and are terrified of my doing that. They have terrified my hubby also - telling him that my personality will change, sex will stop, I will lose my femininity.
Now no worries - I know they are a bit dramatic here.. but I've read up on HRTs, etc.. and I don't look forward to taking them for a longer period of time than they have ever been tested. Scary stuff.
Any helpful thoughts, calming ideas, etc?
I'm feeling calm now, but I will be terrified again soon when we start planning the surgery date. No matter what, the gyn wants to do a laparotomy to remove the left side. Just a matter of how much will be involved.
Sorry for the super-long post!