Let me see how much information I can give you without causing overload!
for doing research! The more you know about your medical condition, the better able to are to make the best decision for you. We have several Endometriosis Resources
you may want to read through as well.
Second, I want to make sure you are aware that a hyst is not a cure for endo. Having your ovaries removed is not a cure either.
Thus, your hyst may provide you with relief depending on where your endo is location, how much is removed, etc., but you could still run into problems down the road. Knowing this in advance is benefitial to you as you are not hit out of no where like some women have been.
Third, some drs do not even stage
their endo patients. The reason why is that symptoms do not dictate stage
. For instance, I have stage
IV endo. My symptoms in no way indicated that my endo was this advanced. I basically had no pain prior to my hyst, I just bleed for 2 years. I had "sensation" on the right side which was more likely the endo on my appendix than anything. (I was on birth control pills for the majority of my menustration years as my periods were so bad, so it is possible in my case they helped with the pain.) I have times of pain now, as endo was left on my bowel walls as the risk of removing it was too high.
Your symptoms do sound like what many of us experience with endo during our cycles. The lower backache is pretty typical of endo patients along with bowel issues. Cramping can vary, but some ladies find after their hyst that they also had adenomyosis, sometimes refered to as "endo in the uterus."
My hyst for endo was when I was 25. My GYN and I felt it was best for me to keep my ovaries for the benefit of my overall health. Have you discussed whether or not you will have a BSO along with your hyst? If you will be having a BSO, it is very important that you make sure you have a dr who is very knowledgeable about endo and HRT prior to your surgery. HRT for endo ladies can be very tricky. And since endo can be microscopic, it can be unintentionally left behind and then feed on any estrogen, whether from your ovaries, from what is stored in your body fat, from supplements such as black cohosh and soy that contain plant estrogen, or your HRT.
If at all possible, you might consider visiting with an endometriosis specialist
if you do not have one already. Have you had a second opinion regarding having a hyst? Have you considered alternatives such as having another lap, trying one of the various medications to treat endo
, or Lupron or Depo Provera? The hyst is permanent, but as it is not a cure, you might want to see if an alternative might be an option for you.
Also, talk to your dr specifically about the pain during ovulation as this could be related to cysts rather than endo.
Fourth, if you are having issues with a leaking bladder, I would suggest you talk to your dr as soon as possible. This way if you need to have repairs done at the time of your hyst, you can have the appropriate surgeon on hand, such as a uro/gyn, and the right amount of time can be scheduled for your surgery, rather than having to have more than one surgery. You also may need to be referred to a uro/gyn or urologist prior to your hyst to see exactly what is occuring.
I wish you the very best and hope you are finding answers to your questions!