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Focal adenomyosis? Focal adenomyosis?

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  #1  
Unread 12-01-2006, 04:36 PM
Focal adenomyosis?

Thats what my pathology report said. Has anyone had this? From what I can google, its a rarer form of Adenomyosis called Adenomyoma where the Adeno forms a tumor all its own. Oh and I had some fibroids too. I know that my u/s before my hyster showed a large "bulge" on the side of my uterus and the radiologist speculated that there was a large fibroid hidden in the muscle. I wonder now if it was the Adenomyoma that was there. Oh the things I think of to ask AFTER my dr appt.
  #2  
Unread 12-01-2006, 09:11 PM
Focal adenomyosis?

My path report says the same thing, I just wish I knew more about what it acutally is! Maybe someone else will come along and help us to understand it!
  #3  
Unread 12-01-2006, 09:37 PM
Focal adenomyosis?

From what I can gather from my GF who had her hyster almost 3 years ago, it's similar to endometrosis, but instead of the uterine lining growing outside the uterus, it grows into the walls of the uterus. When this happens, it's normally combined with fibroids, and it retards the uterus from contracting during your monthly, which makes the bleeding stop. So, along with the fibroids causing heavy bleeding, the adenomyosis causes the long term bleeding. I would imagine that the focal part is that you did not have adenomyosis throughout your whole uterus, that you had it localized in that one spot. I also know that adenomyosis is VERY difficult to diagnose, and normally it's only found in path reports.

I thought I had that too, but it was just my fibroids that were causing me to basically bleed out.

Now, this is what was told to me by my GF. Her Dr. told her...so I'm sure I'm pretty well on target with this explanation, but it's always good to ask your Dr...just to make sure.

Hope you are healing well!!!
  #4  
Unread 05-03-2007, 10:57 PM
Focal adenomyosis?

Well...it's 2007 so not sure if you all still read this post someone started. just got my path report today and I, too had focal adenomyosis. When i researched it on the internet, that's what i found too was something similar to endometriosis but can be diagnosed only thru an MRI and a hysterectomy (done for other reasons). Best treatment the net said was a hysterectomy believe it or not and that would explain why my doc had a hard time pinpointing my bleeding and pain when my paps and even an endometrial biopsy showed pretty much nothing. Luckily he did my hysterectomy based on my past history of cancerous cells and the fact that I was having 2 periods a month,heavy bleeding w/clots, etc.. but he had to take my word for that (obviously). My mom had cervical cancer so w/my bad paps...it just was the right thing to do. Glad in a way something was found on my path report (and that it wasn't serious) just so the doc can know it wasn't all in my head (not that he ever said that but you know...) Hope all is well w/everyone
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