New member & struggling w/pain again!!

Hi! I am 29 yrs old I had my hyst. 7 yrs ago this month. I have had several surgeries since and before for endo. and adhesions. I am starting to have trouble again the worst I have had in years. My pain is in my right side (this is been the side that it starts with) and in my lower back. Plus several other symptoms. I am just confused on what to do. Just wondering if anyone else has had these problems. Suggestion more than welcomed.

God Bless!
lk

I am so sorry you had to have your hyst at such a young age at that you are still dealing with pain issues today.

While dealing with endo all of these years, have you ever seen an endometriosis specialist? An endo specialist should know about the latest treatment options and be skilled at treating long term endo issues.

Do you still have your ovaries? If not, are you using HRT? (When you get a moment you can update your profile to show this information along with your hyst type. ) Any estrogen your body produces or you take in can of course feed any remaining endo. And as you are probably aware, endo can be very microscopic and it likes to hide in all the nooks and cranies of our abdomenal and pelvic regions.

Therefore, if you have your ovaries (which I do because of my age at the time of my hyst), they are producing estrogen which feeds your endo and allows it to grow and spread. On the other hand, if do not have your ovaries and you are taking estrogen as part of your HRT, the same thing could be happening. This is one reason why HRT is either very limited or not allowed for those of us who have endometriosis.

Since you have pain on your right side, do you have your appendix? My endo took over my appendix so it had to be removed at the time of my hyst. The sensations I had been feeling on my right side all those years we now think was my appendix that was about to burst from all the endo and inflammation!

I also have endo on my bowel walls which causes me problems. Do you know where all you might have endo? And of course, having endo and having had surgeries, there is the dreaded adhesions as well.

Besides surgery, have you had successful treatments for the endo in the past, such as using Lupron, Depo, progesterone, etc.? Have you ever tried anti-inflammatories? Have you ever visited with a pain management specialist?

Unfortunately, as you know, there is no cure for endo, not even a hyst. Many of us with endo will deal with pain to some degree for the rest of our lives.

We have many Endometriosis Resources we try to keep updated you can read through to see if you can learn more about endo that might be helpful.

I wish you the best and hope you can find a specialist who is knowledgeable about endo who can guide you through a plan to decrease your pain.

in there and lots of s!

First of all I would like to thank you for your reply and your compassion. It is nice to know there are other's out there that have been where I am.

I have seen gyno specialist. He has removed adhesions from my colon and endo. When I had my hyster. they took everything not only because of the endo but because of my uteras never went back to normal size after my son was born. Also I kept developing cyst that would rupture and I kept getting infection from the cyst before they could remove them. I stop taking estrogen because of the growing of the endo. But even after stopping i had hernia surgery and 6 months later I started have pain again they went and found endo. under the mesh they used for the hernia. So even after the stopping the estrogen I still had it. But I am also taking testor. shots and progesto.
What really worries me is the benefits of estrogen and what is doing to my body by not taking it. I did have my appendix out, one of the surgery they thought it was that only to get in there and find it was a rupture cyst and choc. cyst. I have tried anti-inflammatories, they seem to work for awhile. It has been around 2 years with no problems and it started about 6 months ago with pain that came and went. But I have started have bladder problems and consipation that I have not had before plus the pain has become constant and severe at times. I did finally called the doctor (with a push from my husband). I am to the point I have been through this so much I hate going to the doctor. I had a bad experience with a dr telling me it was in my head so I put off calling the dr till I can't bare it any longer. I went to a diff. dr. that proved it was not in my head but I still worry they will not believe when I tell them what is wrong. I know that sounds crazy.

Thanks again for all your help i will check out the endo resources you said.

God Bless!
lk