I am so sorry you had to have your hyst at such a young age at that you are still dealing with pain issues today.
While dealing with endo all of these years, have you ever seen an endometriosis specialist
? An endo specialist should know about the latest treatment options and be skilled at treating long term endo issues.
Do you still have your ovaries? If not, are you using HRT? (When you get a moment you can update your profile to show this information along with your hyst type.
) Any estrogen your body produces or you take in can of course feed any remaining endo. And as you are probably aware, endo can be very microscopic and it likes to hide in all the nooks and cranies of our abdomenal and pelvic regions.
Therefore, if you have your ovaries (which I do because of my age at the time of my hyst), they are producing estrogen which feeds your endo and allows it to grow and spread. On the other hand, if do not have your ovaries and you are taking estrogen as part of your HRT, the same thing could be happening. This is one reason why HRT is either very limited or not allowed for those of us who have endometriosis.
Since you have pain on your right side, do you have your appendix? My endo took over my appendix so it had to be removed at the time of my hyst. The sensations I had been feeling on my right side all those years we now think was my appendix that was about to burst from all the endo and inflammation!
I also have endo on my bowel walls which causes me problems. Do you know where all you might have endo? And of course, having endo and having had surgeries, there is the dreaded adhesions as well.
Besides surgery, have you had successful treatments for the endo in the past, such as using Lupron, Depo, progesterone, etc.? Have you ever tried anti-inflammatories? Have you ever visited with a pain management specialist?
Unfortunately, as you know, there is no cure for endo, not even a hyst. Many of us with endo will deal with pain to some degree for the rest of our lives.
We have many Endometriosis Resources
we try to keep updated you can read through to see if you can learn more about endo that might be helpful.
I wish you the best and hope you can find a specialist who is knowledgeable about endo who can guide you through a plan to decrease your pain.
in there and lots of