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I had my hysterectomy on 4/13/2007 and 13 days afterward I started leaking urine out the vagina I went to the gyn who put a cath in me and sent me to a uroligist that day. The uroligist was able to do a scope and tell me the gyn had put a big stitch through the bladder. I had surgery on 5/1/2007 to remove the stitch and they burnt the inside and outside of the bladder and reinserted the cath to try to get it to heal so far it has not worked the leakage just continues to get worse and today is 5/15/2007. The urologist says if this does not work then I will have to have surgery again in 12 weeks to repair the bladder. I am tired all the time, I don't sleep well because if I don't get up during the night and change depends and pads I wake up soaked in urine. I know I am in a real rut my daughter told me I need to go see my family doctor that I am depressed, I am trying to stay positive and keep my head up but it is really hard. I go back to see my gyn and urologist tomorrow I was supposed to go back to work on 5/14/2007 but I don't know how I will be able to go back with a cath and this leak that I have, I can't even go the the store without urine running down my legs before I get out of the store. I would like to know how some of you are doing after having this problem if you would send you responses to email@example.com Thanky you so much.
I am also a fistula sister and am just recovering from my repair op which was on the 3rd May. My surgeon was able to do the repair vaginally although I was borderline and all he kept saying was he could get his index finger through the hole. My understanding is that the larger the hole the less likely it is to be fixed first time. My surgeon has done it vaginally so that when I go back at the end of May and have a cystogram to see if it has completely healed or not if it hasnt then he can book me straight in for repair abdo.
It is a devasting complication of hysterectomy and I really feel for anyone with a fistula as it is just awful. To me it is apparent that my gyne would have known he put a 2cm hole in the bladder and I am now taking legal action. Not necessarily for the hole but for the fact that I had classic signs of bladder injury and pain (that is another story) and I did not see a urologist for 9 days and he's exact words were I do not think you have a hole in your bladder as you would be vomiting.
Please stay strong there is lots of support from women on here who have been and are going through the same as you.
My surgeon has promised me he will get me dry but it may take a few operations.
Have you been able to work? I don't know what the size of the holes are I just know that the leakage is bad. I have really been feeling bad the last couple of days I am weak and to day I feel sick to my stomach I guess it must be nerves. Thank you so much for your answer so I have some type of idea of what to expect. Good luch on your recovery my prayers will be with you.
I am sorry to say I havent been able to work since end of Oct when I had my hysterectomy because of the urine leaking. Its not just been the leaking of urine. With the size of the hole I had it gushed and I would soak a pad in 20 mins. You also tend to get a lot of urine infections because the bladder is not meant to have a hole in it and I was on low does antibiotics and I still got infections.
I wont kid you that this easy...it is not but please stay strong and positive and all will be well in the end. I have to believe in that.
Find a urogyne if you can as they specialise in this. Also I had a CT scan, cystogram and cystocope which all showed a 2cm hole in the base of the bladder.
If you want to pm please feel free to do so and I will help and support you as much as can.
I'm so sorry to read about your fistula. This problem is so stressful and depressing! I've been there too. But I am writing to give you hope, because as awful as things are now, it WILL get better. I am 6 months post-op from a vaginal repair of my fistula, and things are good! No more pads, no more wondering if I smell like urine.
I am not a patient person, and all the tests and the waiting for the repair were hard to deal with. But you will get your life back!
My surgeon sewed my vaginal vault to my bladder during my hysterectomy. My vesicovaginal fistula was large enought to pass a golfball through. I have pictures..... I had mine repaired abdominally, success the first time. It was a difficult surgery to recover from, restrictions for a year, but I am now FINE. My TAH was 8/2005, the repair was 11/2005. I have to take a low dose antibiotic for the rest of my life, but other than that, I am GREAT.
I know from experience how terrifying and depressing this is to go through. The tunnel is long, lonely and dark, but keep the faith. You will get through it and emerge a stronger person.
I tried to go back to work in betweeen surgeries, but could not handle it. (I had a very physical job) I do know many woman who did though. I opted not to wear the cathetar while waiting for the repair surgery. I am allergic to latex and just could not stand that horrible thing. It helped my emotional state a great deal to loose it, I was able to take long walks with the dogs to get my strength back before the repair surgery. I did have to wear a large diaper and large pad to get through a one hour walk, boy do those things get heavy when there full.
My #1 piece of advise is to drink lots and lots of water. I did not get my first infection until 6-months after the repair surgery. Iwas on daily anti-biotics the whole time as well. It is so critical to keep your bladder clean so it can heal properly.
Hang in there..... you will get through this. You are not alone! Use this site to vent when you need to. It saved my sanity!
I too had sutures put through my bladder by my surgeon during my TAH. It didn't start leaking until about 3 weeks after TAH. I went to a URO GYN and he removed the sutures and I had to wear a catheter for 5 weeks but it finally healed!! I haven't been back to the original surgeon, I just don't think that I can trust someone that makes that mistake and isn't aware of it. 4 times in my surgery report it states " no sutures present in bladder". I am not sure what she was looking at but as soon as the UroGyn put in the cystoscope he and I both saw that something was wrong. It can heal on it's on but you have to keep uring from going through the hole, so that is why I had to wear the catheter for so long. Keep thinking positive and hopefully you will have good results.
I had a stitch put in my bladder as well. I had severe pain in the hospital any time I tried to urinate and spent a week inthere. I had signs of a problem with a fistula even before I was sent home with a Foley. I had my abd. Hyst. on 5/25 and today is my cystoscopy to remove the sticth. I may have to go right in for surgery today as well. My GYN told me what a "piece of cake" my surgery was and I can't help but be angry. I have a foley in but I'm leaking urine out my vagina anyway even though I'm on anti-spasm meds.Not knowing what will happen today is driving me insane. I can't stand the thought of being opened up again. I choose an abdominal hyst. just for that reason.
During my surgery, my uterus was on my bladder and the dr. had to call in a urologist and have him put 3 stitches in. I had to wear a cath for 10 days so I didn't stress my bladder. Doing good so far, just seems like my bladder gets full quicker.