I am 26 and have 'mild' endo. I have had two dermoid cysts, the right one removed along with the entire ovary, and just the cyst on the left removed one month later. It was during the second surgery that my doctor said she found some endo behind my uterus. Why she didn't see it the first time kinda concerns me...but ok.
I was back in to see her a few weeks ago cause of course I am having continuous pain and was trying to get her to switch me to a different birth control pill, which thankfully she has. But when we were there, she did a pelvic exam and said that i was tender because my uterus and ovary were swollen. Anyone have any idea what would cause them to swell? This can't be a positive but she acted like it was nothing. I of course have to test it out myself occasionally and see if it is still tender or better and my ovary seems to be more tender. I just was wondering what causes them to be swollen? I would imagine a cyst on the ovary would do it, but what about my uterus?
I am sorry that you are having continued pain issues.
First, endo can be microscopic and it can hide very well. So it is possible the endo was not visible for your first surgery and/or it was well hidden so it was not detected.
This endo could be causing some of your pain issues. Did your doctor remove the endo during your surgery?
If your doctor is not concerned about your swollen uterus and ovary, my guess is that she may think that the birth control pills may be helpful. Birth control pills are used for so many GYN issues, including endometriosis and cysts. Did your doctor happen to mention adenomyosis? Adeno could cause a swollen uterus and it is similar to endo however it is the endometrium growing into the interior of the uterus wall. So endo is outside the uterus and adeno is inside the uterus. The birth control pills may help with adeno as well by controlling your periods.
Because you have a lot of questions and concerns about your situation, you may want to schedule another appointment with your doctor to sit down and talk, no exam. I have request this type of appointment before when I needed to understand what was going on. You may even want to take someone with you to help you ask all of your questions and be sure you understand all of the answers. That, too, has been very helpful for me.
She did remove the endo during my surgery. I have been on BCP for about 4-5 years, originally just for birth control, and now i take Yaz continuously or I have very painful periods. My doc never did mention adenomyosis, and after reading symptoms of it I don't think it's something I have. My periods have never been the heavy gushing that people on these forums have mentioned. I know back in high school they were pretty heavy where i would have to use pad and tampon, but the BCPs must have helped with that.
I plan on making an appt with another gyno cause my current doc and i aren't seeing things the same way. She sees the depotLupron as a long term (5 yr) solution, I don't view it as an option for me at all as I don't like the side effects listed and my body tends to be real touch with medicine; and especially because of my Diabetes making everything complicated. Tried telling this to her a couple of times and she just keeps telling me to consider it even though I explained to her why.
Unfortunately there is no endo specialist near me. There is a listing for one in OK City, which my husband says would be worth it if they can help.
Getting a second opinion might help you decide what your next step should be. You may also want to consider and endocrinologist if you do not already see one. An endocrinologist may be helpful regarding the hormone issues along with the diabetes. You really want a doctor who understands the importance of diabetes and its affects on your entire body.
And as a side note, you could have adeno even without the heavy gushing. There are women who's main symptom was horrible pain, bleeding was not the problem. Whether or not you have adeno or some other issue is something a doctor would have to decide, but adeno was the first thing I thought of while reading your post as painful periods and a bigger, boggier uterus is often a sign of adeno. Fibroids can also cause a larger uterus. As well as a host of other things! Hopefully your new GYN will have more and better answers for you!