Newbie on board

I wanted to say hi to everybody and tell you I have read so many of the posts and have been so encouraged. I am probably a little premature in posting here, but I feel it has helped me so much in the last 24 hours. I am 63, never had any symptoms at all until two weeks ago, when I woke up with vaginal bleeding. Went thru vaginal ultrasound, and then an endometrial biopsy, all the while have Docs tell me not to worry. Well get the biopsy results yesterday and they have come up MMMT - that was a real shocker. In the back of my mind I suspected some sort of cancer diagnosis, but certainly not something as rare and radical. Hard to deal with, and I dont want to seem too down around my DH - his first wife had breast cancer, and his daughter, so I know this will be so hard for him to cope with.
I am in a quandary about the surgery - have a consult appointment with a gyno/oncologist in Iowa City, but have read about maybe being better off at a specialty hospital. From what I have read MMMT is so rare most docs have never had to deal with it.

Anyhow, thanks to all of you for being here, and I welcome thoughts and suggestions.

bj, welcome to our wonderful group of caring ladies. I'm glad you will be seeing a gyn/onc for your surgery. I'm afraid I know absolutely nothing about MMMT, perhaps someone will come along with more info. But I wanted to wish you well and hope you can find the right dr. who knows how to deal with your situation. Keep us updated.

sending you a hug and prayers

for you as you go through this wait and see period. It is so hard but the pieces will come together. I too have not heart of MMMT can you share what you do know? I do so hope someone here can help you out.

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Originally Posted by Faithfirst for you as you go through this wait and see period. It is so hard but the pieces will come together. I too have not heart of MMMT can you share what you do know? I do so hope someone here can help you out.

Thanks for your hugs!
I still don't know a whole lot, other than this is an extremely rare cancer, found in only a handful of every million women. It is in the carcinosarcoma group, with a poor prognosis. I wont really know much more until I see the Dr. for a consult on Aug 20. I am sure they cant tell me much more until they do surgery.
BJ

Dear bj,
I don't know anything about this type of cancer either, but I'm glad you've found us!
Please keep us posted on your condition. I'm sure after your consultation you'll have a better idea of what you'll be dealing with.
Just know you're not alone in this....we'll be there for you every step of the way!

MMMT=Malignant Mixed Mullerian Tumor

I know nothing else yet. I'm headed to Google.

Hi BJ,

There used to be a member on HS....who started a website for rare cancers. Her name is Sharon and you may track her down through the website she started. If you can't get to it by the address below- try googling 'rare cancer alliance'.

I am sure it must be very overwhelming. The only other thing I can suggest is that you make sure that someone on your medical team is an expert on this type of cancer. At some point you may want to find a cancer center/well know hospital that has some experience in the treatment of this rare cancer.

You can also search on this website as there have been a few women who have had this type of cancer and have posted about it in the past.

Good luck dear....I'll keep you in my thoughts.


www.rare-cancer.org

Hugs, Diane

BJ I'm so sorry you got this news. I know that the waiting is SO DIFFICULT. My prayers will be with you as you begin this journey. Keep us posted on how you are doing! We'll all be pulling for you!

Take care,

Vicky

Hi, first of all, hugs and I am sorry you have to deal with this. I found an interesting article on this type of tumor that you might find helpful, its in plain english and not dr lingo so that helps lol.

Here it is..........
http://www.baymoon.com/~gyncancer/library/blqa7mmt.htm

All good thoughts and prayers for you!
Jenn