Scared about Surgery!! Please help

Hi everyone! I am 30yrs old. I was diagnosed with endo when I was 18. I have had 5 laproscopic surgery's to help with pain. I am in pain all the time. When my Hubby and I have sex it hurts. We have NO kids. We have been trying with no luck for 2 years. I am scheduled for a hysterectomy. My only scare is will I still be in pain. I just wish I could make up my mind about surgery. I flip flop back and forth because we have no kids. Any advice???

The decision to have a hyst is a big one and an irreversible one. If you are not 100% this is the right thing for you, then I would suggest postponing surgery for now.

Is your doctor an endometriosis specialist? An endo specialist tends to have extensive knowledge with regard to treating endo. They also tend to have additional skills that allow them to carefully remove endo from the various places it likes to hide and from the various organs where endo implants.

Because a hyst is not a cure for endo, you can have pain after a hyst if there is any remaining endo and this endo grows and spreads. Whether or not you keep your ovaries or if you use HRT can affect your outcome.

We have several Endometriosis Resources you can read through to learn a lot about endo. There is also an article that might interest you: Endometriosis – Can it return after a hyst?

We each have to do what we think is best for us. If you do choose to have the hyst, I hope the surgery and recovery go well for you and you are a success story. If you choose to wait, I hope you find a doctor who will work with you to help you ease your pain.

Have you considered counseling regarding your situation? It might be helpful for you and help you with your deicision. You may also want to make a list of all the pros and cons and see how things weigh out for you!

Many best wishes and lots of s to you!

Good Luck On Your Journey.. My Heart Goes Out To You And Your Dh.. Endo Is A Terriable Thing To Go Thru And Having A Hysterctomy Isn't Always A Fix All And It Can Come Back.. Hang In There And Good Luckk..

My advice to you would be exactly what Weiser said. Make sure you are going to a specialist for a lap and if you have never had a lap with a specialist, maybe you have just never had a good enough, surgery? If you had an efficient surgery, maybe you could have a baby? A good surgery with a specialist is supposed to give you at least a few years of pain relief and reverse infertility, at least for a while. I would never let a regular gyno go in there, especially if there is possible endo on bladder and bowels. That requires someone who knows their way around the entire abdominal cavity, not just the reproductive organs.

Aww hunny I know what your going through pain wise. I was diagnosed with it when I was 19 after I had my 1st child. Its the most painful thing ever. I used to be on my hands and knees some days trying to cope with the pain. I was fortunate enough to have 2 more children and after several procedures, hormone injections and other treatments, enough was enough and I had a hysterectomy in Feb this year. My ovaries were left, dont see why though, but I have never felt so great in my life!! No more painful periods and now I have my life back.
I too was so,scared about the surgery but honestly it wasnt that bad. The first few days were painful but the morphine really helps! I went in on the monday and on the wednesday morning I was home!!!!!!!!!!! Yes that shocked me a bit but I was fine and recov ered much better at home. Try not to worry x x x x

Thank you all for your advise....Sometime it is nice to hear others point of views.

I too had my hysterectomy for endo. I do agree with what Weiser has suggested.

I had multiple laps, laparatomy, and many different types of medications. I was also unable to have children so I can relate to the flip flopping back and forth.

For me ..I wanted my life back. I couldn't do anymore. Do I regret my decision?? NO. I am greatful I have my Dh and my new life that is pain free.

The big thing for me was getting my life back. But, I knew when I had my hysterectomy there was no turning back.

Allow yourself time to accept and do what is best for you. Do it in your time and what it is right for you.