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post menopausal fibroids post menopausal fibroids

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Unread 11-17-2007, 08:05 PM
post menopausal fibroids

Anyone out there in their 6th decade? Any info on fibroids increasing in size post-menopausal would be helpful. Have been unable to locate any significant research addressing frequency, probability of malignancy etc. Ultra sound performed on 11/16 with a finding of additional fibroid and previous fibroid has enlarged since originally found in 2000. Getting radiology report on 11/21 with referral to gyn/oncologist at University of Kansas for further opinion. Anyone with experience with this? Only info found states fibroids shrink after menopause rarely malignant unless post menopausal. Does anyone know any statistics on this? Mother died 31 years ago from adenocarcinoma of the ovary (papillary).
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Unread 11-17-2007, 08:28 PM
post menopausal fibroids

I had fibroids and post menopausal fibroids which were benign, but the problem was that they helped mask the ovarian cancer I had. I would say to be very careful. Go to the doctor regularly and have ultrasounds done!
Unread 11-17-2007, 08:44 PM
post menopausal fibroids

Thank you for your quick response. I had a CA125 done two weeks ago which was normal, however, I know these are not necessarily accurate. When I had the ultra sound done the technician was not able to get a clear picture of one of my ovaries which seemed troublesome to me. However, the waiting for the radiology report has me frustrated since my regular doctor is out of town until the 28th, I got an appointment with another doc so I can get a referral to a specialist asap. Am planning to try an schedule the specialist before I actually get the referral to save some time since we are heading into the holidays. I doubt if this will be a wait and see situation, since I am 62 years old with a family history of ovarian cancer. The research available on this seems to be frustratingly limited for post menopausal fibroids. May I ask your age and what your symptoms were?
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Unread 11-18-2007, 01:35 AM
post menopausal fibroids

I am 57 years old. My symptoms were fullness and I had to urinate frequently. Both of these symptoms were ones I had with fibroids all along. The doctors did not know that I had ovarian cancer until the surgery. However, both ovaries were enlarged and that showed up on the ultrasound and a CAT scan. My CA125 was 1000 at the time of surgery. It is down to three now, and I have completed my 5th chemo.

Also, fibroids are supposed to shrink after menopause, but mine did not. It was not cancerous, but both of my ovaries were cancerous.

Good luck and glad you found this site. Hopefully, they can get a better picture of your ovary. Also, with your mother's history, the doctors may recommend a hysterectomy. I think it is good that you are seeking out a gynecological oncologist. I was lucky that I live in San Francisco and my gynecologist had one on stand by during my surgery. When she discovered the cancer by opening me up, he took over from there. I love him! He is busy trying to save my life.
Unread 11-18-2007, 08:04 AM
post menopausal fibroids

I've been thinking about you all night, I certainly wish you god speed in your battle with this disease.

Thank you so much for your responses to my questions. My mother had the same symptoms you described, I frequently have to urinate and feel some fullness but not so much I was concerned. Maybe I should have been. The enlarged uterus was found at my yearly exam and I don't believe it was enlarged last year.

I do agree with you a gyn/onocologist may recommend a hysterectomy, at this point I think if she doesn't I'll look for a second opinion. I've been patient about this fibroid situation long enough and now there are two so the time has come for a hysterectomy. I've already made up my mind about the surgery, the question is how will it be done and when. The literature I've found on the subject, which is small in number, indicates hysterectomy if the patient is post menopausal.

You are fortunate to live in San Francisco where excellent health care is available. My husband is a retired naval officer and we use the military health care system at Fort Leavenworth, KS. I must say, the treatment has been very good and there is no hesitation to refer a patient out to a specialist.

BTW, my son lives in SF and just became engaged last night.

Please keep in touch regarding your progress and I'll pray for you and your family.
Unread 11-18-2007, 11:45 AM
post menopausal fibroids

I have been thinking of you as well. I know what it is like to wait and wonder. Maybe your ovaries are benign, but even if they are, I would definitely get them out if you are going to have a hysterectomy. I almost wish I had gotten a hysterectomy for my fibroids years ago and removed my ovaries. I was trying to wait out the fibroids, though, hoping they would shrink. They never did, though.

Keep me informed about what you are doing and thinking. It is good to have others who understand, and I have been down this road. So many others have helped me, and I want to give back that support because I care!

Congratulations about your son. He lives in a great City! I have a son out here. He works in Sacramento and comes to SF for the weekends.
Unread 11-20-2007, 05:11 PM
post menopausal fibroids

Hi Sister
I am 63 years old i had my surgery on the 22nd of dec 2006 for friboids, my dr thought i had cancer so everthing was done quickly. My endo was thick so he did a D & C but the friboids was blocking the mouth of the uterus so he did the hyst instead everything come back O K. try to get all your test done quickly my friboids did not shink the got bigger. Wish you all the best.
Unread 11-20-2007, 05:43 PM
post menopausal fibroids

Thanks for your response. I did get the results of the ultra sound today and nothing looks unusual, however, since the previous ultra sound was 7 years ago it really doesn't tell us much except give a baseline. They couldn't see the right ovary but no one seems to think that is anything to worry about. I am going to see a gyn for another opinion and proceed from that point with biopsy if needed. The report indicated the uterus has decreased in size from 7 years ago, but there is a second fibroid. The problem is we don't know when the second fibroid appeared, was it 3 months ago of 5 years ago? Everything else was normal so I'm getting another opinion and maybe another ultrasound in 3 months to compare. I'm a little uncomfortable regarding no visual on the right ovary but I'll see what a gyn says. This is my first experience with an GP doing my annual exam so getting a referral to a gyn is good.
Unread 11-20-2007, 07:56 PM
post menopausal fibroids

Also, maybe since you cannot see your ovary, that is a good thing. Mine were very enlarged and not to be missed. It sounds like you are doing fine. Just keep tabs on it!
Unread 11-21-2007, 02:11 PM
post menopausal fibroids

I have a friend who had a hysterectomy in her 60's. They did not remove her ovaries because they said it would be very difficult to locate them since they shrink at menopause. The internet confirmed this:
At menopause, "The ovaries will also shrink, but they won’t entirely vanish. Ovaries are known to shrink with age."
Perhaps this shrinking of the ovary is the reason they could not clearly
see it on the ultra-sound.
I had my hysterectomy at 50, and had the same symptoms as you:
a feeling of fullness and urinary frequency as well as periodic hemmorhaging. I had a benign but very large fibroid tumor as well as adenomyosis.
Good luck, and I hope you are cancer-free.

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