Endo and possible adeno

Hi, my name is Esther. I am 35 yrs old. I was recently officially diagnosed with endometriosis, moderate to severe, via laparoscopy. I have suffered from endo for many years, some years better than others. I chose to have children first before going the surgery route. I was quite fortunate in being able, with the assistance of natural progesterone cream, to have two lovely children.

Since the birth of my 2nd child, my health has been steadily declining. I did not suspect my endo for quite awhile because my predominant symptom was fatigue, and my periods took awhile to get more painful. I think nursing my daughter for 2 years must have helped some. This past year things were getting much worse pain-wise, and when I bled profusely for 2 hours and passed 2 golf-ball sized clots during one cycle, I finally went to the gyn.

I had had a cyst on my right ovary the year before, seen via ultrasound, but it wasn't that big and so I chose to leave it. This year it was bigger, the size of an orange, so I decided it was time for the lap. The lap was beneficial in diagnosing endo, draining the cyst, and that was about it. I am now in more pain, almost constant, and by the feel of things the right ovary has either regrown the cyst or reattached itself to the cul-de-sac, or both. No fun. But I wasn't expecting any better. For reasons best known to myself, and even those I'm not so sure about anymore, I chose to not go to an excision specialist for this first lap. Now I am making my plans for excision surgery within the next 3 months.

One of the doctors I sent my records to called me yesterday and told me that based on my uterus (indentable, soft) and my symptoms (clots, etc.) it looks like I may also have adenomyosis, for which the only "cure" is hysterectomy. He would be able to do an LSH when he excises the endo and take care of it all in one operation. One ovary looks fine at this point. The other I'm not sure I want to keep since it has been so troublesome this past year. He recommended keeping whatever is good, including the cervix. Although, just to complicate matters, my gyn's office called today to tell me that I have just had my first abnormal pap smear and need to come into the office for a colposcopy.

So here I am, researching hysterectomies, because my husband and I are pretty much decided to go that route. I have tried alternative therapies extensively in the past 2 years, naturopath, chiropractic, acupuncture, integrative medicine, and nothing there has helped.

Hopefully removing all the disease and the diseased organs will give me my life back.

Esther

Welcome to HysterSisters! You don't have a hysterectomy date mentioned in your profile (click here to add it if you know what it is!)

For helpful information and resources you will find specific help by clicking these links: for Treatment Options, for Pre-Op Or for Post-Op.

You will find wonderful information in our Hysterectomy Checkpoints.

For more information about managing your journey around the site, visit New Here. General answers to basic questions about the site can be found in our FAQ.

We are glad you registered!

Again, welcome to HysterSisters!

P.S. This is our "Introduce Yourself" forum and its purpose is to point you in the proper direction for the best support for your needs. Only staff can reply here for the purpose of helping you find your way around the HysterSisters.com website. Support by our members is offered in our support forums (links in this reply above) where you can ask your specific questions and receive replies from our members. We look forward to seeing you on the support boards of this site!

azchicita

I'm sorry that all your problems are pointing you in the direction of a hysterectomy, but glad you're researching all the options. This is a great place to do just that!

Princess Ruby has provided several links, including the Treatment Options information page, and you may also want to visit the <link> Hysterectomy Options & Alternatives forum, where you can start a new thread right away with any questions, if you wish. The Pre-Op Message Board is available for support (if or when you schedule a hysterectomy) and we have an Endometriosis Support forum, also!

Wishing you all the very best and I hope you enjoy your membership!