I'm sorry you are having such problems. I can't address the endometriosis issue, but I did have Adenomyosis and still do have PCOS.
I would like to very strongly encourage you to try to talk to an endocrinologist before you make your decision. It can be very difficult to get in to see them for "first" appointments, but if you called and explained that you need surgery and would like to get a second opinion and some advice about whether or not to keep your ovaries, they might be able to work you in for a quick chat. It would sure be worth a try. Endocrinologists are the hormone and endocrine experts.
The reason I suggest this is because PCOS is a disorder of the entire endocrine system. It involves way more than your ovaries, and although the ovaries are frequently involved, they are not always. For me, it was definitely better to have my ovaries removed, but I can't say that having yours removed would be best for you.
However, some things to think about and ask your Dr about
1) Having your ovaries removed WILL NOT cure PCOS.
2) a) If you keep your ovaries, and your ovarian hormones are out of whack, you will need to have that treated. The common treatment for PCOS with ovaries is the Birth Control Pill. So, if you have a hysterectomy, but keep your ovaries, you may still have to take the Birth Control Pill to keep your ovaries under control. The BCP is associated with much higher risk than ERT
b) I had my ovaries removed, but in order to try to bring the other issues of PCOS under control, am using a bio-identical HRT. All of our hormones work together and try to attain a "balance". Without the Estrogen, according to my endocrinologist, this cannot happen.
3) There are many serious issues regarding PCOS that you need to discuss with your Dr. PCOS puts us in a "high risk" group and causes us to be at higher risk for some types of cancer and heart disease and diabetes. I can't stress enough how important it is to find a Dr who is knowledgeable about the disorder and encourage you to see a Dr who would be up to date in the latest research and treatments available.
Having said all of that, I am willing to share that since I had my ovaries removed, I feel better than I ever have. I always knew my hormones were not right, but was never able to get a Dr to understand it and do anything about it.
For further reading about PCOS, and to understand what kinds of treatments you will likely need if you keep your ovaries, you might want to go to soulcysters.com and look around. I will warn you though, that I have never seen any information there regarding PCOS after hysterectomy/oophorectomy and most of the women there are dealing with the infertility aspect of PCOS and therefore most of the forums are focused on that goal. If you do a google search for PCOS, and focus on the endocrinology and .edu sites, you may find more of the information you are looking for. That is how I get a lot of my information.
I hope this was a little bit clearer than mud. Let me know if you have any further questions regarding the PCOS.
Hopefully someone will be along soon to discuss the endometriosis aspect with you.
s and Best Wishes,