Welcome to HysterSisters!
I hope we can offer you some support and information to help you as our make your decision regarding a hysterectomy!
First, since you do have endometriosis and it sounds like some complicated issues involving endometriosis, have you consluted with an endometriosis specialist
? An endometriosis specialist should know the latest and best treatment options as well as possess superior surgical skills to remove and excise endometriosis including what is on your bowel walls. An endometriosis specialist should use a method other than cauterization (burning) to remove the endometriosis. Cauterization on the bowel is not recommened. You are going to need a surgeon who is capable of working with the bowel in order to have your bowel safely seperated from your uterus.
We have several Endometriosis Resources
you may want to read through to learn all you can about endometriosis before making your final decision. A hysterectomy is a major, irreversible surgery and it is not a cure for endometriosis. In fact, there is no cure for endometriosis, only treatment options. The more skilled your surgery, the more endometriosis that can be excised, the less chance of recurrence. However, endometriosis can be microscopic and it likes to hide so endmetriosis can be missed during a surgery and then rear its head down the road.
You also need to consider your hormone issues. If you retain your ovaries as I did, then your body will hopefully be supplied with all the hormones you need for your overall health. However, the same estrogen that benefits our heart, bones, skin, eyes, etc. also feeds endometriosis. Some doctors feel it is best to remove the ovaries of women with endometrisois and avoid all hormone replacement therapy (HRT) as the risk of future endometriosis is too great. Others feel that either the ovaries or HRT benefiting the overall body is a greater pro than the risk of future endometriosis. So you need to talk to a doctor who is knowledgeable regarding both endometriosis and hormones to decide what might be best in your specific case.
We do have an Endometriosis Support
where there are both pre op and post op ladies discussing their situations and how endometriosis has and is affecting them. You may find some support there from those women who are also dealing with this nasty disease.
As you are struggling with the decision regarding your loss of fertility, I would suggest asking your doctor, pastor, etc. for a referral to a counselor who could help you work through your feelings so you can decide what the next best step for you might be. One thing to consider is that if you choose to have another child, there is no guarantee you would be able to conceive again. I know in my case, I had two children prior to my hysterctomy. When my doctor did my laparoscopy a few weeks before my hysterectomy he told me I was blessed to have my children. From what he saw inside I shouldn't have had them. Further more, had I tried to have another child (which we did not due to the continuous bleeding that cropped up and led to the laparoscopy), I probably would not have been able to conceive. For me it would have been harder to have tried and failed than to have not tried. But that is me, I can't tell you how you will be affected. Emotions can be very fickle and hit us when we least expect them!
I wish you all the best as you do your research, seek at least a second medical opinon, and try to decide what is best for you. The decision to have a hysterectomy should not be made lightly so you are doing the right thing asking quiestions!
S your way!