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Andometriosis Andometriosis

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  #1  
Unread 03-05-2008, 09:13 AM
Andometriosis

I went to see a specialist yesterday at a prominent women's hospital in Pittsburgh. The point was to have him give me a second opinion on endometriosis hysterectomy that my OB/GYN was recommending. This doctor within seconds said that he didn't think it was the endometriosis causing my lower back pain but endometriosis. He said I had a classic textbook case of it, enlarged uterus that was tipped 80% to the back, my age (43), having had kids, and soft or (gooey) uterus upon examination. He gave me choices of birth controls pills, IUD that had a huge dose of progesterone in it, shots (Provera I think he said they were), or extra strength Motrin for the pain as needed. He said that he wouldn't do a hysterectomy on me because of my age, not having gone through menopause yet, I'm not debilitated, and he just plain felt it would be an unnecessary surgery for me. I chose the Motrin because he's right, I only have a few days out of the month that my back bothers me. I was relieved to hear this was the diagnosis instead of going through a complete hysterectomy and being thrown into menopause. I went out on the web today and couldn't find much out there on andometriosis or even on here. Does anyone know anymore? From what he told me it is like endometriosis but the endometrial cells go into the uterine muscle instead of outside the uterus. I still have the endometriosis, but he feels it is minimum and not the cause of my particular pain. I just figured I'd ask if anyone had any more information on it.
  #2  
Unread 03-05-2008, 10:15 AM
Andometriosis

Hi Are you maybe referring to adenomyosis? That is the uterine equivalent of endometriosis, which grows outside the uterus. If you do a search here using 'adenomyosis' you will find lots of good discussions about it.

I hope this helps!
s,
-Linda
  #3  
Unread 03-05-2008, 11:14 AM
Andometriosis

Yes sounds like me ment adenomyosis where endo grows inside the uterus the only cure for it is a hyst but if you dont have bad symptoms then you dont need one and many women live just fine with adenomyosis and hormones and dont get bad symptoms. Glad since you dont have pain much you didnt go and have a hyst with out another opinion
hugs
lisa
  #4  
Unread 05-26-2009, 07:37 PM
Re: Andometriosis

I am a 43 yo female that just had a TAH-BSO, because of abnormal uterine bleeding which was causing so much blood loss I had chronic anemia (HGB down to 9.1 - I was even short of breath).

Originally, we were going to do a partial hysterectomy if my ovaries were viable, however, much to my surgeon's surprise I was covered in endometriosis and andometriosis. It was inside and outside - uterus, tubes, ovaries, bladder and bowels.

Although I have been surprisingly asymptomatic (other than shorter intervals between menses, longer lasting menses, heavier menses, and increased cramping during menses - hence the blood loss), I didn't know all of this was going on.

I am 7 days post op - and I can tell you I feel better already. I can't even imagine how much BETTER I am going to feel once completely healed from the abdominal incision.

I think the pendulum has swung too far the opposite direction - where people resist hysterectomy as a solution.
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