Thank you Orah Deb for your reply.
I am very careful to take the meds correctly and follow the doctors directions exactly as well as I want to get this fixed so badly. I have taken them for 10 yrs now almost constant and wonder if that is part of my problem.
I was set to have iv's at the hospital when they found out the bacteria had changed . This one is sensitive to Sulfa but my problem is when I take the antibotic that the bacteria is sensitive to it kills it but whlle on the medication I become infected with one that the medicine doesn't work on .
I tried to get in to see my UroGyn who did my last surgery , I told them how bad I was but it did no good.
I ended up going to a new Urologist who is doing much more testing and seems very concerned . He is not covered by my Insurance however but if he can help it is worth it.
I was born with kidney disease and a diabetic so I am sure that makes things worse.
This time I am on 14 days of antibotic and having imaging today.
I will have a cystoscope this month also.
So far I have not been to a nephroligst.
I have so far been to dozens of doctors and no one is able to figure this out. I was told the last operation would 'cure' my problems but actually they are worse now.
I just am starting to feel I am the only one with this problem and becoming so depressed I can hardly function and about to give up.
Sorry to vent so many of the ladies have worse problems than myself.
I asked about the mesh because I want no part of that, I am told it could be a path from another part of my body to my bladder that is doing this .
I do not leak any urine and can finally go normal which is a blessing after 23 years!
I hope your daughters problems are a distant memory now! My mom also struggled with me I was in the hospital four yrs from birth and on iv antibotics from the hospital every day for a few years. She never did them herself however.
I am sure I could do the shots myself if they would show me the correct way to do in the muscle as I think they have to be given. I have gave insulin injections which are very easy but imagine it is almost the same only a bigger needle
I also wonder if the scar tissue has grown back but I don't feel the pain and 'pulling' sensation I did before the surgery to remove it.
Thank you again OrahDeb, I do appreciate you taking the time to reply to me.
Blessings and Hugs,