Anyone have pain all the time versus with menses cycle?

My pain is exacerbated with my cycle. Boy howdy!

However I do not have super heavy bleeding and I always hurt like a stab jab pain into or coming down from my uterus/cervix.

From my laparoscopy, doc said I have endometriosis and adenomyosis (which I know is not 100% b/c only confirmed via path report and I've not had a hyst.... yet).

So... do you have pain ALL the time?

I had constant pain that was severe before my hysterectomy!

I still have constant pain. I had pain with the Lupron, BC, and now the Danazol which is why the MD suggested and TAH.

Yep, I've had some level of pain everyday since I was 11! It has gotten worse through the years, and is definetly worse with my cycle (and when I have cysts). Actually after I had my ovary removed back in 2003 I was in no pain for a few months, and I really didn't know what to do with myself!! It was truly the most bizarre feeling!

	Quote:
Originally Posted by locachica21 I still have constant pain. I had pain with the Lupron, BC, and now the Danazol which is why the MD suggested and TAH.

locachica (I like it!) if you are interested in a little hindsight: one question I really wish I had asked/gotten a real answer to is "if the Lupron didn't do any good, why do you expect the hysterectomy to eliminate the pain?"

Maybe you have already discussed it and have received an adequate answer. In my case I started the Lupron because my doc. said it would indicate whether or not a hyst would help. By the time my 6 months was up I was still in pain every day but I was in such a horrible place emotionally and mentally (lo-ong story involving cheating husband, increasing stress at work and more) that I just let her do the hyst. It didn't even occur to me that the only reason I was on the Lupron was the indication about potential outcome of hyst. (yes that's a 'silly' reason, it's part of the long story) and since I was still in pain the indication didn't bode well for 'successful' hyst.

As for pain all the time: yep, I'm there. Really reaching for a silver lining = at least I don't have periods any more so I don't have to worry about things getting worse during them.

Puppy Love-
You still have chronic pelvic pain even after the TAH? My doc and I had discussed it briefly and I was given a pretty satisfactory answer. I was only on Lupron for 2 months and was switched to the Danazol shortly after that. I had a laparotmy 2 mo. ater starting the Danazol where it was diiscovered that my uterus had adheared to my pelvic wall and trapped my bowel in the middle. She did what she could then as far as excision and separation but I told my family that if she asked not to give consent for the TAH unless it was life or death.

I was pain free for a while after that surgery (about 8 wks) but once my body hit a tolerance with the Danazol (I only have one kidney so can only metabolize a portion of the meds) it became faily ineffective. At that point I tried PT with little success. I have since started weaning off of the Danzol and noticed a scary increase in my pain (to the point where I'm back to calling off work and taking pain meds again).

SO, basically to make a long story short, she is going to remove the other ovary for sure (I has the left removed in 06) to remove the main estrogen source and see how the uterus looks. If it looks like it did last time (poss adeno) she will take everything. I think now that I want to give her a call and ask her that question- thanks for suggesting it!!

Please PM or e-mail me if you need to talk or have a rough day! I'd love to be able to possibly help you if at all possible!!

Yes--pain all month long in varying degrees. From what I have read, this isn't unusual with endometriosis. I'm scheduled for excision surgery and an LAVH for possible adenomyosis in July. Excision surgery isn't perfect, but it's supposed to be the surest way to complete relief. Everything else is just a band-aid. If you can, try to consult with one of the endo specialists at the beginning of this section.

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Originally Posted by ampyali ... Everything else is just a band-aid. If you can, try to consult with one of the endo specialists at the beginning of this section.

You just quoted one of my sisters. She said, "they're just giving you band aids and not a solution". I told her I agreed but it sounded like they were "hoops" I had to jump thru to eventually get to the true question of hysterectomy? or NO hysterectomy?

I am seeing an endometriosis specialist this week.

She's a Reproductive Endocrinologist and does microscopic laparoscopic surgery.

really havn't been pain free in 12 years! it come in different degrees...
since the hyst i might have had a few months,but it's been 5 years and now it's everyday!!!! somedays worse than others..

Yes.. constant pain. Currently taking continuous BCP to stop my periods, but I have a polyp and my RE says that is what's causing my sporatic periods. I hurt everyday, all day... but have been on my period this past week and it has been the most excruciating pain ever. But it's good (and sad) to hear there are others like me.