Hi Ladies, I've been reading this board for a few weeks now while waiting for the official word....here is my story: (sorry a little long)
I am 29 years old, married, no kids. In my early 20's I ballooned in weight without much reason for it and fought it for years. I also developed facial hair, bad adult acne, a few skin tags, only one or two periods a year since puberty, etc. For years I went to several doctors and not one of them could offer anything other than the advice to diet and exercise (well Duh!!) and a few offered antidepressants. :burning: Well, last year after googling my symptoms I learned of PCOS, polycystic ovarian syndrome, and just knew that was my problem...the symtoms fit to a T. (Isn't it sad that you have to diagnose yourself these days?)In November I found a specialist (a reproductive endo/ob-gyn) who is one of the leading docs for PCOS in the country. I made an appointment but it was for 6 weeks out.
A few days later I got really run down feeling, excessive thirst, frequent urination, blurry vision. A co-worker said those are the symptoms of diabetes and to go to a doctor NOW. So, made an appointment with a new GP and the blood test came back with my fasting blood sugar at 480! I was a diabetic. (Untreated PCOS leads to diabetes) They sent me to the hospital for a crash course in managing diabetes. My whole world was turned upside down. I told the diabetes doctor that I thought I have PCOS and she said, yes, definately.
I started on Metformin and after about a month the weight slowly but surely was melting off. My blood sugars went down to normal rather quicly and stay there without much effort....Luckily I don't need insulin or any other diabetes drugs other than metformin, which is prescribed for PCOS anyways. Oh, I was also hypothyroid...and none of the stupid docs told me that either!!! All that effort I put into trying to lose weight was just all in vain...no wonder I was just spinning my wheels.
I kept my appointment with the RE (PCOS specialist) and treatment was to continue on the met and started taking YAZ bcp to regulate my periods....which only came about twice a year since I was 11. My first period on Yaz started April 10 and by May 4 it was still going strong and the heavy bleeding and cramps were getting horrible. I expected it to be heavy since I hadn't had one in a while. Well, After days of vomiting from the pain, doubled over, not being able to leave the house because the flow was getting worse, I called the docs office and he had me come in the next morning (on Saturday). He did a vaginal US and the ling was 38mm thick. In Dec. when I first started seeing him it was 19mm thick. I think he thought the prometrium and then the Yaz would take care of it. So he said I would need a D&C. That was done at the hospital that Tuesday evening. Afterwards the pain was GONE!! I don't think I realized how bad the pain had been until I was back to normal. I don't know how I tolerated it so long.
Well, after reading here and other places online, I see that 38mm and even 19mm is REALLY thick, and I realized that I had all the risk factors for Endo cancer...the weight, PCOS, diabetes, early menarch, etc. So, for two weeks I worried a bit about it.
Yesterday was my follow-up appointment and the doc, after trying to sugar-coat by just saying the cells where a little abnormal, I finally got out of him that the pathology showed endometrial hyperplasia with atypia. I don't know if it is simple or complex. The tissue was sent to M.D Anderson for a second opinion and the results are not back yet.
He said that a few months of (I think he said - started w/ a P anyways) promarin/provera would probably take care of it.
Okay...so my issue is....I think he may be too concerned with preserving my fertility due to my age and since i have no kids. I do not want children...at least not biological ones. I have a lot of health issues and mental illness in my family and I DO NOT want to pass that on. My hubby and I have always agreed that adoption was our plan A with starting a family. With him specializing in fertility...I don't think doc understands this since most of his patients desperately want kids.
If M.D. Anderson comes back with the same DX, should I go ahead and push for a hysterectomy? If the options are surgery now (so over and done with it)...or meds now and possabilty of surgery and chemo or radiation later, I would rather take it out now. I think by doing it now a lap assited vaginal hysterectomy would be fine...if they can leave the ovaries...but it sounds like if we don't and later end up with cancer, a more invasive surgery would be needed.
Would a hysterectomy be overkill for endo hyperplasia with atypia?