Oh my gosh,
I just got back from the urologist (with a sore urethra) yikes, they stick that catheter in without any kind of numbing stuff. But really, it was not as bad as I had feared. He told me the only thing they use for slinging a bladder up is synthetic mesh. No other options period. Well, since the my "damage" is moderate, I have decided not to do it at all. There is a very good chance that with the sewing and tightening the other stuff up, it will really help. This, and pelvic floor floor work afterwards and for the rest of the forseeable future, will most likely take care of the problem. I can always go back later if it does not. At this point, I am just not willing to risk of using mesh without trying everything else first.
I am so grateful to this site and all the info. Wihout it, I would not feel able to make a more informed choice. Feedback?
Only you can make the best decision for your body and it sounds like you are making an informed one. If you've read here, then you KNOW there are more choices than just synthetic mesh for supporting your bladder. [There are biological ones including autologous, cadaverous, porcine, and bovine- based; for instance.]
If you are still interested in doing anything about bladder support, you may want to still keep looking for a different doctor--one who DOES use either an old-fashioned 'no mesh at all' type of repair or a type of material that does NOT have rejestion issues (using autologous tissue meaning your OWN body materials) or something along those lines.
There are definitely doctors who use those and they are not always urologists (URO's). I personally have had all my surgeries done by urogynecologists (UroGYN's) who are considered the pelvic floor specialists for women after all. You can find a UroGYN in the US by going to the augs.org website and clicking on the 'information for women' tab and going through all the steps there.
I think it's also an excellent choice to choose to do nothing at all and to live with the condition you may be in. Pelvic exercises and pelvic floor therapy are wonderful things that can help you cope. Many times I have wished that I had taken that route and had NEVER stepped into the surgical pit I seem to be in now. <sigh>
I wish you the very best in your health decisions!
I wish you the best blessings for your situation. I hope it gets better and look forward to reading more from you about it. Is there another thread I can go to see your story?
I am a KAISER member and as such, changing doctors would be very difficult. Going outside of KAISER is financial suicide. My GYN originally told me he would use my own connective tissue (collogen, elsastin, smooth muscle fibers) to make the sling. He sent me to the Urologist for a consult prior to surgery. The Urologist (Chief at that) says different. He says mesh even after I told him what the GYN said. He says all the other things do not last or work as well as mesh. He looked like he believed himself too! So, I don't what the heck is going on. But be sure, I will get to the bottom of this and do everything I can to get the best outcome for myself.
Having been through some other hospital things for others, I know that I am the one who ultimately takes care of myself. If I leave everything to others, (who have their own opinions, make mistakes and are humans, not doctor gods) the results can cause great regrets. I know I am not a doctor nor a cynic. But I am not a dummy either. So I am doing my best to walk that fine line between paranoia and total trust. I will be plain with my surgeon, if my own connective tissue cannot be used, don't do a sling. I also think I am going to write things down, sorta make a list. Like; don't forget I gave my own blood to use if needed, I am horribly allergic to surgical tape, I need a pediatric IV needle and tubing etc. I will give a copy to my DF who will be taking me to the hospital and getting me settled in my room post surgery. I think making sure one gets into my chart is probably a good idea. Anybody
else do this? Off to do more crunches!
that is the question. I've had two large babies, about 9 & 11 lbs. vaginally......believe me.......not by choice. My doc was an arrogant SOB that looked pretty and didn't give a rat's *** about the women he cared for. I was having urinary difficulties for 2 years, went to a male urologist, who deemed I had "psychiatric problems" and humiliated me. I had suffered child sexual abuse & developed a lot of protection. They had to knock me out to see the problem, which was like "pouring water through a colander". At that time they did a "periureteral bladder suspension, using collagen and no mesh. That was 17 years ago. It was supposed to last only 10 years. It started to fail at about year 15. I had a great urogyn repair it, my vagina, & I had a hernia repair as well.
I don't know about mesh, however, if it lasts longer, or is better, then it might be something to consider.....I'm not familiar with this whole thread. I'm just wondering why you don't want mesh used? And why you have to have a "pediatric needle". Generally needles are measured by gauge, the bigger the number, the smaller the needle. With IV catheters I believe the converse is true. A smaller gauge needle can be harder to get anesthetic through.
I have been reading other threads about women suffering problems after using syntheic mesh. Having it poke through into their vaginas, and pulling apart in areas creating holes involving infections and bad smells/discharges. I also read a lot of those links on this board for more information. I have yet to hear of a woman having problems with her own tissue being used. Other than it wearing out, that is.
I guess I am using the wrong words for the pediatirc needle IV.
I am a small person and I have very small blood veins. I have been a massage therapist for 15 years. No matter how good your body mechanics, things start go. I have chronic tendonitis, carpel tunnel, and deqravins involving my wrists, hands, digits, and arms. Placement location and size of tubing can have enormous consequences for me later. My hands are my livelihood. I have had two surgeries. The first one, used regular sized stuff. I could not use my hand for 4 weeks after it. The second surgery, the doctor was very curt almost mean to the nurses about the size of the IV stuff they were about to put in. I felt sorry for the nurses and nervous for myself to have somebody in such a bad mood about to cut me open. They went scurrying off and found another smaller size. The needle looked the same but the plastic tubing was much smaller. I just assumed it was pediatric. My hands were just fine afterwards. If you know more about a correct term to use, that would be wonderful.
Are you going back in for repair? The only negative thing I can find about using our own tissue is that as we age, our collegan and elastin production goes down. Hence, less of it to use for a sling. I would guess it stretches out faster too. I still think it is the best option but I am being open also. There is also pig skin and cadaver skin too.
I'm glad you decided to not get the sling. I am one of the many who has had new surgeries and nothing but trouble with mine. I can't believe your surgeon didn't tell you about autologous slings and pig and cadaver slings. Probably doesn't do them.
My OR report said the tightening up from the hysterectomy fixed the bladder prolapse but they went ahead and put the sling in anyway. I never did have incontinence. I wish I had done the homework you're doing. Peggy
Thanks, I have an appointment my doctor to talk about all this stuff. If he insists on synthetic mesh, (I don't think he will) I will refuse it. It was actually the Urologist who I saw that insisted that mesh was the only way to go. My GYN originally told me he would make the the sling out of my own Fasia. I guess sending me to the Urologist after our first visit, is standard procedure. They each gave conflicting information and opinions as to what to use for a sling. Thank you very much for your concern and feedback.
After careful research, and reading everyones input... I decided to not get a sling. It is a procedure I can do without.
I was having horrible leakage, even with bladder medication. The doc changed the medication-major improvement. I also started biofeedback classes on pelvic floor muscles. Wow, am I in bad shape! But in these 2 weeks there has already been some improvement. Between the two urges and leakage has lessened noticeably.
I see my doc today for the biopsy and the bladder test. I think I will ask him to skip the bladder test if he can.