Lieomyosarcoma fears

Well, probably about 3 years ago, I started having heavier periods. They got progressivly worse, until I finally went to the gyn to see what was going on. He told me I had fibroids about 14-16 weeks, and needed to have a hysterectomy. He did a D&C, had ultrasounds done. Then, the week before my surgery was due, he got sick. I thought I would wait for him to come back. And was patient for a year. By the time I found another gyn, he estimated me at 22 weeks.

So, I have TAH BOS. And then he calls and says that there was cancer cells in my uterus, but they were all inside. During my surgery, one of my ureters was damaged, and had to have a stint put in. I really wasn't concerned with the "C" word. It was all inside, right? He did refer me to an oncologist. So, I go to the oncologist thinking that I would just be told that I might have to have more frequent exams.
But, instead I get there and am totally floored, because he says that I need to go ahead and have radiation and chemo treatments, because there is a chance that some of the cancer cells escaped, since my uterus had to be cut.

And this was the point that I also had the name of my cancer. And I went home, done some research, and really didn't like what I saw. The dr is having a second opinion done on my slides, since lieomyosarcoma is so rare, there is a slight chance that it was misdiagnosed, and could just be abnormal cells.

Now, I am on this huge see-saw. Some days, I think ok, I will just do these treatments, it's mostly a precaution. Then, other days, I know that I'm going to back for my next appointment, and find out that it's spread, and I may not make it through the year.

When I had my ureter stint taken out, the urologist did see a mass that he said may just be calcification. But, in my mind, I wonder if it's not, if it is a tumor. And I don't go back to either dr. until next week.

I just don't understand why there is so much waiting time between appointments. You would think, with such an agressive kind, that they would be more proactive! It took me 7 weeks from the time the gyn gave me the diagnosis until I saw an oncologist, then, I have another 2 week wait until I get the second opinion!

Frustrating!