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Radiating pain from tailbone down leg..... Radiating pain from tailbone down leg.....

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  #1  
Unread 05-29-2008, 11:15 AM
Radiating pain from tailbone down leg.....

Hi sisters. I have been having pain coming from my tailbone, going into my right hip, and radiating down my right leg to the point where I feel my leg go numb at times. It is truly hard to walk when this happens. I was diagnosed with Stage IV endo in Feb. 08 and I am currently taking Lupron Depot and Aygestin to help keep it at bay the best it can......considering a total hysterectomy soon also even though I know it is not a cure for endo. Anywho.....I was wondering if anyone else has had this problem and what you have experienced. I have been told that sciatic endo is not very common but I am truly unsure as to what this actually may be. My doctor knows I am having this pain but didn't really address it......

Any advice is always great and I am grateful for all of you.
  #2  
Unread 05-29-2008, 11:32 AM
Radiating pain from tailbone down leg.....

is the Lupron the shot? are they giving it to you in you right buttocks? that could be it. maybe they hit a nerve. I have siatic pain on my right that goes down my leg and it makes my leg numb. thats from my endo being on my spin and everywhere else. I would think thats whats bothering your leg
  #3  
Unread 05-29-2008, 11:53 AM
Radiating pain from tailbone down leg.....

Yes, they give me the Lupron but switch hips every month. It is in the upper right quadrant of the hip.
  #4  
Unread 05-29-2008, 12:22 PM
Radiating pain from tailbone down leg.....

its been 10 years since I was on it. I can't remember if I had that issue I did however gain a ton of weight. I would ask the OB if that is a possibility of them hitting a nerve
  #5  
Unread 05-29-2008, 12:44 PM
Radiating pain from tailbone down leg.....

I appreciate it sweetie. I have been lucky....I haven't gained any weight. I feel like a goodyear blimp though. Stay tired all of the time, feel like poo, and my doc and I are talking now about a hysterectomy (even though we all know that is not a cure for endo.) just to try and bring back my quality of life. I am definitely going to ask him next week when I go for my injection. I appreciate your info sweetie!
  #6  
Unread 05-29-2008, 05:35 PM
Radiating pain from tailbone down leg.....

any time. I know what you mean I need to be able to have some what a normal life even if I am far from normal my self. hehe

I am forever tired and irratable. Its a good thing I have a way understanding DH..
  #7  
Unread 05-30-2008, 09:42 AM
Radiating pain from tailbone down leg.....

My endo pain is left groin, back of leg, tailbone. I did steriod injections, mri and they could find nothing...so they tried Lupron.

I just got off 6 months of Lupron and it did help with my pain I described. I actually deflated on Lupron, lost weight and had energy again. Could the add back you are be giving you the problems?

The only strange pain I had on Lupron was...my heels felt like they had NO padding. Endo is just strange!
  #8  
Unread 05-30-2008, 09:52 AM
Radiating pain from tailbone down leg.....

I wish I knew honey. I don't like the way I feel at all since I have started taking Lupron and Aygestin. I actually feel worse than I ever did since I started taking this medicine. My doctor and I are actually considering a total hyst. even though we know it is not a cure for endo but it may help me. Since I cannot have children because of this terrible disease, I seriously considering that option. I just don't know what to do.
  #9  
Unread 05-30-2008, 10:47 AM
Radiating pain from tailbone down leg.....

Are you taking Aygestin for hotflashes? My Dr wanted me just to do the Lupron alone, no hormones added...unless I could not handle it.

I am now on the Seasonale BC pill. I am giving it six months...then total hyst for me. I have only been on the pills for 6 days...not sure if it is goint to help or not?

It is a hard decision, I am dealing with it also. I just wish it was a gaurentee...but I know there is not one!
  #10  
Unread 05-30-2008, 12:10 PM
Radiating pain from tailbone down leg.....

Yes, he wanted me to take that for the hot flashes and bone density loss. I tell you girl......it truly is a hard decision to make! But at least we know we are there for one another to talk to. :-)
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