Scared, confused, angry, getting ready to schedule.

Hello all.
I finally bit the bullet, followed my trusted Dr's recomendations, and on the 18th of june, I go in for my appointment with him where we will schedule my hysterectomy, and go over my various options.
I know that my doctor used the Davicnci, and researching that has eased my mind some, and even though I have been pretty certain this was coming for a while, it still throws me for a loop.
I am 29. For all of my menstruating life, I have had irregular, heavy, long, painful periods. Within the last two years, it has become a pattern of cramping for a week, spotting for a few days, bleeding heavily, spotting, a day or three off, and the bleeding and spotting cycle, then back to the cramping. I just got so tired of no one being able to help.
After my most recent d&c. myomectomy, resectopy, and biopsies, all they were able to determine is that I have abnomrally dense uterine lining, and my fobroids grow back rapidly, in locations that are 'odd'.
Being all standard, and some not so standard, optons are not working, we have agreed, my Dr, my husband, and myself, that this is it.

I am angry that I am only 29, I am angry that I have been dealing with this for 13 years with no relief, and I am scared.
I am trying to compose a list of questions for when I go in. I am also trying to anticipate howsoon this will actually happen, as well as what to expect.

To our knowledge, at this time, I will be able to keep one, if not both, ovaries, so on some regards, that will be a help.
Any advice, support, or words of wisdom or soothing will be apreciated.

Lena-Andrea

Hi Lena-Andrea!
I am so sad to hear you are going through this physical turmoil! Try to think about how good it will feel to be pain-free. This month is one year since I reached what I call my 'crisis point' with the chronic bleeding and cramping. This past January I had my hysterectomy. My body is still healing, but regarding what I was going through one year ago, I am feeling like a whole new me! I understand that you are much younger than I am, so I know there is much about how you are feeling that I can't genuinely relate to. However, I want you to know that having relief from that physical pain doesn't remove the fact that you are still very much a woman of substance! My prayers are with you!
Much love and hugs,
Robin

I'm sorry to hear you have suffered for so long. I had many of the same problems you have after getting my tubes tied. Whenever I feel any pressure and pain, I just tell myself not much longer. I'm looking for to being pain free. But try not to worry too much. Hang in there, I know every thing will be all right. My prayers are with you.


LSH-Enlarged Uterus and Fibroid

I'm so sorry that you're feeling so angry and frustrated! I'm 34, and scheduled for a TAH due to severe endometriosis. My doc was willing to try surgery alternatives again, but we'd already been through them all once, and I'm just tired of hurting and bleeding. I can empathize with the anger - life stinks sometimes! It would have been wonderful to be the "no-cramping, regular cycle, baby-machines" that most of my friends are. But I'm not. For whatever reason, God made me this way. Perhaps He did this so that I would appreciate what I had to work and pray very hard for and that others take for granted. I'll be praying that you have a spirit of peace about your decision. Please make sure that you have all your questions answered before you have the surgery - it's a huge decision to make. I'm hoping for the best for you!

Hi and Welcome,

This site is awesome!! The ladies here will make you feel right at home. Read the posts and you surely find some excellent information. Good luck with everything!!

{{{Lena-Andrea}}}

Hello and Welcome. This site is full of information that will help you with everything from pre-op questions to post-op recovery ideas and everything in between. The sisters on here are amazing and full of willing shoulders and hugs.

I am sorry you have been suffering for so long and yet are so young in facing this decision. There is great information in the pre-op section, if you look at the top of the page, directly under the Hystersister logo is a line of pink flowers with different topics. The pre-op thread has articles that cover just about everything including sample pre-op questions.

I will keep you in prayer and hope your journey is filled with clarity and peace.

Take good care and Blessings,

I just want to say a brief thank you to everyne for all the support I've gotten so far. I really appreciate. I was going to say more than you could know, but I think you all have a fair idea of just how much this means.

I have been looking at all the preop info, and I looked over the laternative to make sure there was nothing that was missed, or not ruled out already.

I am making a list of questions to ask my doctor, and making a list of supplies I will want and need, and things like that. I figure the better prepared for this I am, the better it will be.

I keep reminding myself that there will be pain during recovery, but it will be better after that.
I was also looking at the thread about the average size of the uterus, and that really opened my eyes, as I see now just how much larger than 'normal' mine is- something that the docs didn't quite realize until they, to quote them, "got inthere and had a good look around". My doc jokes that I have a spare bedroom hiding in there.

Hi!
I suffered for many years prior to my hyst. The pain was intense. However, please let it be a comfort to know that even with the surgical pain when I woke in the recovery room, I felt better. The surgical pain for me was an improvement. I know it is frustrating and emotionally exhausting to have had problems for such a long time and now having to face a major surgical procedure. Just keep your chin up and remember that we are praying for you. Also, know that it is normal to be alittle apprehensive. Good luck and keep us posted.

I wish you the best of luck with your surgery. Do you have a date yet?
I am 25 and have been going threw almost the samething since I was 18. So not as long as you but I understand where you are coming from. I have had to many DNC's, Biopsys, people touching me and not know what is going on. Last fall I had the ablation and tubal and thought that would work. It did for about 8 months and the pain came back but worse. I have cancer cells in my uterus, fibroids, endometerosis, and now the doctor thinks I have Adenomyosis. I have had fibroids as large as a grapefruit before and it stinks. I am hoping this will take care of my pain and bleeding.
I am sorry that you are going threw this. I am sorry that any women in means is going threw this at all. But in my mind god does it for a reason. Hopefully you got the chance to have a child. I have had the great chance to have a little boy who is now 6 but children is always something that I wanted and now this crushes me. But I am thankful for the one I have because some people can't have children at all. Good luck with everything, let me know how it goes.

theyoung1-
My doctor is thinking Adenomyosis, as well. After the last round of procedures, he realized that some of my most persistan fibroids seem to always grow in the same area, and we are getting sick of them being there!
I am sorry you are dealing with this so young, but at the same time, it is nice to know that someone else young is going through it, does that make sense?

I will keep everyone posted to how things progress, and I have my appointment scheduled and recomfirmed (my doc actually called me to verify that I could only go in on a wednesday right now, as he would have cleared space for me- he understands how much this hurts, both physically, and emotionally)