Uterine hyperplasia

Hi,
Jumping from preop to here to see if anyone else has been diagnosed with hyperplasia, I have simple hyperplasia.
How has your doctor dealt with it and how you have dealt with it. My Dr. believes that it's best to take the uterus now before it has the opportunity to develop into something else in the future.

Finding out that there are many "opinions" out there on the subject and not a whole lot of useful information on the net.

How has anyone else dealt with this and your outcome?

Thanks for listening.

Hello and welcome to the cancer concerns forum. My cancer was cervical so I dont know alot about uterine. There are other girls here who will be able to help. Just remember that we are always here to support you. take care x x

I had my surgery for complex atypical hyperplasia, which is different from simple hyperplasia. Did your doctor give you any progesterone to take to attempt to help it before recommending surgery? It didn't work for me. My thought is that you are having second thoughts about having surgery. I also was scared and didn't know if I really needed surgery. I obtained a second opinion and eventually, because of the time he took with me to explain what was going on, I decided to have the surgery and asked him to do it for me. I was 52 at the time of my surgery. That may also be an issue for you if you are still of childbearing age. You will need to get these questions resolved, but don't waste time. I don't want to scare you, but they have no idea how long it takes before hyperplasia turns to cancer. My type "atypia" is more advanced and I did have early stage uterine cancer at surgery. Fortunately, this is one of those cancers that, if you get cancer, you would want. By removing the uterus, it removes the cancer--if caught early enough. Mine was 1mm into my uterine wall. I did not need any treatment for it. Also, they found ovarian cancer (Stage Ic), but a second opinion (and a third) re-classified it as borderline. Although I go for a pelvic exam once every 3 months, it sure beats the alternative had I waited much longer. Take care of yourself now. If you want another opinion, get it soon and make your decision. If you would like to e-mail me, my e-mail address is Norwaylin@aol.com

I am adding to the and sharing the support!! You are not alone here!!

My LAVH on May 30th was for complex hyperplasia with atypia -- the type that is one step away from cancer. I am 40 and this was a shock. I tried synthetic progesterones (usually a first-step for simple hyperplasia, according to many experts) for 3 months and it didn't work. I'm doing great physically; still learning to cope emotionally. Just be sure to check out all your options.

Laura in GA
LAVH (kept ovaries) 5/30/01 for complex hyperplasia with atypia

Dear 2Unsure -
If you have simple hyperplasia, I would definitely get a 2nd opinion about surgery since there is only about a 1% chance of it progressing to cancer! Usually surgery is recommended with complex hyperplasia atypia which has a 29% chance of developing into cancer, but even that is sometimes treated with progestins. So, please, unless there are other factors involved, go see another Dr. And even if there are, I would seek a 2nd opinion. Let us know your decision!!!

Hi, Please go for a second opinion. A hysterectomy for simple hyperplasia sounds radical to me.

SUSKI
LAVH/Dec.'00
Endometrial Cancer

Hi! I just found out today that I have complex hyperplasia with atypia. My Mom had surgery for uterine cancer 3 years ago. My surgery is scheduled for Sept. 5. I'm 42 and it was quite a shock when the Dr. told my. My Mom's advice to me was "Don't wait". She did, and it turned to cancer. Her cancer, unfortunately is back. She has vaginal tumors. I'm glad the Dr. can get me in so quickly. Doesn't mean I'm not scared half to death. You'll be in my prayers.

Beth

Hi,

I don't have any personal experience with hyperplasia. I do want to second the opinion of the ladies about getting a second opinion. You might consider having it with a Gyn Oncologist, they might be able to put your mind at ease as to what your risk factors truly are.

I wish you the best on your decision, I can only imagine what a hard one that would be to make given the option. Please let us know how you are doing when you can.

{{hugs}}

Vicki

Thanks everyone for the response(s) and support.

I haven't responded because my DH and I left on the 14th to spend a few days just north of us to canoe the Au Sable and fish on Lake Huron.

Today, saw a gyn oncologist at UofM, a woman fortyish, so I felt more like could relate. The cancer center limits her new patients but saw me within 7 days of calling. She is ordering the actual slides from the diagnostic clinic for my biopsy to make her own evaluation, but she does not even prescribe progestins for simple hyperplasia as it is considered non cancerous with a very small chance of it turning into cancer. Fast growing fibroids, approx 1% chance of cancer. Neither warranted removal for cancer as the cause. No urgency.

A pelvic exam, visually checked my cervix. The size of my uterus was "suitable" meaning that she also concurred that it was about a 14 week size which quite often is large enough to start creating discomfort. That she could understand having surgery based upon that. No signs of going into menopause soon. Even being on progestins, I'm still having periods, which it normally stops.

So it appears that size and "comfort" are the real issues here. "Quality of Life"

As I sit here, my abdomen has bloated to the size of half a basketball. Where did that come from?


Boy, this whole thing stinks.
Guess I'll keep my Sept 11 appt at the castle and start getting ready for it.

Thanks everyone.