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Possible Endometrioma or Hemorrhagic Cyst Question Possible Endometrioma or Hemorrhagic Cyst Question

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  #1  
Unread 01-06-2009, 11:50 PM
Unhappy - Possible Endometrioma or Hemorrhagic Cyst Question Possible Endometrioma or Hemorrhagic Cyst Question

I figured that this would be the best place to post this. I had a partial hyst two years ago due to fibroids and adenomyosis. At the time my ovaries looked fine and so they were left in to avoid surgical menopause. About two weeks ago I found myself in a miserable amount of pain and I wound up in the ER twice. They did an ultrasound and the doctor there told me that I have a 5.5 cm endometrioma in my left ovary. I met with my gyne yesterday and he said that he is doubtful that it is an endometrioma because I didn't have any endo at the time of my hyst. He thinks it is most likely that I have a hemorrhagic cyst. I guess those are caused when a blood vessel is broken when an egg is trying to be released. That causes you to bleed into your ovary. Apparently, ultrasound can not tell 100% whether or not I have an enometrioma or a hemorrhagic cyst. Yesterday I started on birth control pills to see if the cyst would shrink or not. I am supposed to have an ultrasound next Monday. I had a flare up of pain again tonight and it feels miserable. When this happened a couple of weeks ago, the onset of this was rapid and intense for me. I have had two children without the use of pain meds during labor and I handled it like a champ. This pain from my ovary had me balling like a baby and writhing around in pain. I felt like I had a charley horse in my left side and I was experiencing a constant deep pain accompanied by stabbing pain. I also had a fever of 102 and my belly swelled up like I was three to four months prego. Since the first episode a couple of weeks ago, I have had problems with urinary frequency and pain when I try to stop the flow of urine. My doctor put me on Vesicare to help with those problems. It has helped with the urgency but not much with the cramping pain at the end of urination. Passing a BM is very painful. I have so much discomfort in my perineum that it is miserable. I plopped myself down in a chair at the dinner table tonight and I about went through the roof! Apparently both types of cysts can cause all of the same symptoms and they can both leak. The only difference is that with the endometrioma, the leaking contents of the cyst can spread endo. The hemorrhagic cysts can bleed and cause clots that cause the same type of urinary and bowel problems, but they eventually resolve without surgery.

If you have had any experience with either type of cyst, I would like to know if you experienced any of the same symptoms that I am experiencing and what was done for you.

After tonight, I am ready to just call my doctor in the morning and schedule the surgery to have my ovaries out. This pain is too much.
  #2  
Unread 01-07-2009, 07:50 AM
Possible Endometrioma or Hemorrhagic Cyst Question

I have had a long history of dealing with endometriosis. I have had mulitple laparoscopic procedures. This past August, my pain was BACK pretty bad and I had ALOT of bloating. My doc sent me for a sonogram and that's where they saw 1 "mass". The doc decided it was an endometrioma based on my medical history. I underwent my hyster about a month later and another endometrioma had formed on my other ovary. It grew VERY rapidly as it was not there the month before. Both ovaries were removed along with everything else. LAVH/BSO.

My endo has been on my colon for years so I do have the painful bm's you describe. However, I do not think I have ever had a fever associated with the endo. The endo is also on my bladder so the frequent urination has always been an issue.

All that being said, my endo was Stage IV and I have been diagnosed as having endo for over 9 years. It took years to spread to other organs. Back in 1999 it was just a few small patches.

Good luck at your appointment with your doctor, I hope you get some answers and relief from the pain soon! Maybe if you call the doc they can move the ultrasound up since you are in so much pain?
  #3  
Unread 01-07-2009, 02:43 PM
Possible Endometrioma or Hemorrhagic Cyst Question

Thanks, LookingforaSis. I called this morning and they moved my ultrasound to tomorrow morning at 8:00 a.m. rather than waiting until Monday. Hopefully, the ultrasound results will help in making the decision of whether or not I need surgery. I will update this thread as I know more.
  #4  
Unread 01-07-2009, 05:47 PM
Possible Endometrioma or Hemorrhagic Cyst Question

((frustrated 1))

I am sure you are in a lot of pain and I hope the issue is resolved soon!

I tend to agree with your doctor that likely the cyst is a hemorrhagic one vs. an endometrioma since you did not have endometriosis at the type of your hysterectomy. Of course, there are ladies on the site who did not have endo at the time of their hysterectomies but ended being diagnosed with it down the road.

I have had a hemorrhagic cyst. The cyst was found on a CT scan ordered by my gastroenterologist who was looking for any GI reasons for my chronic pelvic pain. The radiologist who read that CT scan listed the cyst as a "mass." It concerned my gastro greatly (pretty much put her in a bit of a panic) and she sent me to my GYN ASAP. I had two ultrasounds, the final one done by the radiologist himself to be sure the mass had indeed been a hemorrhagic cyst that was (and did) resolve on its own.

I do hope you have some answers tomorrow about what exactly is going on and what the best course of action might be. Take it easy this evening and if the pain increases call your doctor or head to the nearest ER in case the cyst has burst. Sending gentle s your way!
  #5  
Unread 01-07-2009, 05:59 PM
Possible Endometrioma or Hemorrhagic Cyst Question

Perhaps your doctor will do a CA 125 test for you. Endo tends to elevate the number so you can have a better idea of what the cyst is before surgery.
  #6  
Unread 01-08-2009, 12:59 PM
Possible Endometrioma or Hemorrhagic Cyst Question

Frustrated 1,

I have had a few hemorrhagic cysts in the past along with endo. When I had my RSO last fall, my gyn told my husband he was pretty confident the ovary contained an endometrioma. When the pathology came in, it was deemed a hemorrhagic cyst.

My doctor said depending on the pathologist and where they section it, it could go either way and given that the cyst had more than doubled over 2 months' time instead of resolving like a hemorrhagic cyst would, he still felt it was an endometrioma.

Regardless, I had severe pain similar to what you describe, nausea, pain that would extend down into my inner thigh or radiate to my right hip sometimes, bloating, and a lot of fatigue. I was prescribed Tylenol 3, Naproxen, and eventually Percocet to manage the pain so I could function.

Hopefully your ultrasound will give you a more definite answer but in the meantime, perhaps your doctor can give you something to help you now. Please let us know how you're doing.
  #7  
Unread 01-10-2009, 12:22 PM
Possible Endometrioma or Hemorrhagic Cyst Question

I went in for my ultrasound on Thursday morning. In addition to the cyst, there was also a solid mass. I was very worried about that because solid masses are more often cancerous. I guess the mass was present at the ultrasound that I had in done in the ER, but it wasn't mentioned to me. Shortly after I got home from the ultrasound on Thursday, I got a call from my doctors office. They wanted me to come in as soon as possible and they asked me when I had last had anything to eat. I had a feeling that I would be having surgery later that day. My husband came home from work and took me to the doctors office. It turned out that the ultrasound showed that there was no longer any blood flow to my left ovary. My ovary had twisted and cut off it's own blood flow and my ovary had died. This is called ovarian torsion. My doctor believes that my the torsion occurred around December 20th or 21st when I had the terrible pains that sent me to the ER. It must not have completely cut off the blood flow until a later time though because there was still blood flow to my ovary on the 20th when they did the ultrasound. Now, knowing that my ovary had died, my doctor knew that he needed to do surgery and get that dead ovary out right away. So, I went straight to the hospital after the appointment and my surgery began around 4:00 p.m. My doctor had said that surgery would probably take about an hour. When my doctor got in there he was surprised at how bad things were. My ovary was twisted twice and was dead. My colon had wrapped itself around the ovary and two masses and was adhered to the big mess. All of this was sitting right on top of my bladder. I had a lot of adhesions everywhere and my intestines were all twisted up and adhered to eachother all the way up to underneath my ribcage. My doctor disected all of the adhesions, removed my dead left ovary with the masses on it, and tacked up my right ovary to help prevent it from torsing in the future and he filled my abdomen with some kind of special fluid that is supposed to prevent adhesions from developing. I have had two previous abdominal surgeries, so some of the adhesions were probably from those surgeries. But, the majority of them were caused by my body's response to having a dead ovary inside of me. All in all, the surgery took a little over two hours and my doctor managed to do the whole thing laparascopically. I have four one inch incisions in my abdomen. I am very sore because of all of moving around of things inside of my belly and I am very bloated. The initial tissue samples that my doctor sent to the lab did not indicate any cancer. I am grateful for that! I came home from the hospital yesterday at around 4:00 p.m. Yesterday actually marked the two year anniversary of my partial hysterectomy. Kind of ironic. My uterus and ovary are now together somewhere in the land of hyster!
  #8  
Unread 01-10-2009, 12:43 PM
Possible Endometrioma or Hemorrhagic Cyst Question

Well I am glad to hear that your surgery is behind you. I have never heard of anything like this. I hope that your recovery goes very well. I am impressed that your doctor was able to accomplish so much without doing a laparotomy. Keep us up to date on your day to day progress please.
  #9  
Unread 01-10-2009, 05:50 PM
Possible Endometrioma or Hemorrhagic Cyst Question

(((frustrated 1))) No wonder you were hurting! Ovarian torsion can be very painful I hear!

I am glad your doctor was able to take care of you so quickly! Now that you are home, remember to ! Take care!

S
  #10  
Unread 01-12-2009, 08:46 AM
Possible Endometrioma or Hemorrhagic Cyst Question

Frustrated 1,

I'm glad you're on the road to recovery. I know torsion is quite painful as I had it with my left ovary too years before my hyst but it was partial, not complete like yours when found.

Hope all goes well from here on!
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