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Severe Pelvic Pain  3 yrs after partial hysterectomy Severe Pelvic Pain 3 yrs after partial hysterectomy

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  #1  
Unread 01-14-2009, 02:46 PM
Severe Pelvic Pain 3 yrs after partial hysterectomy

Hi

I am hoping someone may have some advice - or has been through this. It has been 3 years after a hysterectomy with the right ovary removed - I still have the left one.

About a year ago I started developing alot of pelvic pain. Went to the dr. had a CT scan - they found nothing - made me feel like a crazy, menopausal woman (ya all know how male drs can do that without saying a word ) I am 44.

So - I endured. It would come and go. I live an active healthy lifestyle, including regular exercise and healthy food. Weight at around 128 - then in the last 6 months - I have gained 14 lbs - and my right side hurts all the time, so bad I went back to the dr and insisted he find out what's wrong. 2nd CT scan - nothing . Went to the GYN - he says I need a colonoscopy (UGGH!) (and sent me to a gastro dr )which is scheduled Friday and after that he said it MIGHT be necessary to do a laproscopy? just to see AFTER I asked him if it might be endo coming back or adhesions.

So I am out of work (sick leave) because my job entails driving all day and in and out the car. I am miserable, frustrated on pain killers and 2 strong antibiotics and have to endure a colonoscopy AND all the time I am thinking it is probably somehow related to adhesions or endo. The pain has NOT stopped this time since Thursday morning.

One other note - and I know this is long winded - but I have always been active - gym, weight training etc and started doing yoga about a year ago - there are some poses I have trouble with because my Right hip/side is not flexible any longer. I have limited range of motion - went to a trainer and he said it was like night and day compared to my left side.

Would adhesions cause this? I had alot of endo in the right side - it may have been in my bowels but I can't remember. That is something else - chronic diahrea - which is fun when you DRIVE all day and have to constantly stop at stores to use the restroom (urgently).

So - I think my drs (the 3 so far I have seen) think it is just IBS causing the pain and will go away - I most likely have some bowel issues but it really angers me that drs use the easiest diagnose without listening. I have real pain, the kind that wakes you up and night and hurts all the time. Vicodin eases it a little but does not stop!

So - do adhesions cause this much pain? Does it get worse (like its worse now than 1 year ago)? and does surgery help? or do I just live with it??

thanks -
  #2  
Unread 01-14-2009, 05:18 PM
Severe Pelvic Pain 3 yrs after partial hysterectomy



I am sorry you are hurting and feel you are not getting help and answers.

First, IBS can hurt HORRIBLY! It can also go in spells. I can have constant IBS issues or I can go through spells with little or no symptoms. And besides childbirth and a kidney stone, the worst accute pain I have ever had was IBS related. For me medicines don't help IBS.

Next, adhesions can hurt or they might not hurt at all. Pain with adhesions can worsen over time as they can shorten creating more pulling on the ograns to which they are attached. I have had pain with adhesions, espcially those invloving the bowel. I have had surgery for lysis of adhesions but the problem with surgery for adhesions is that the very surgery that should help can create more adhesions. Barrier methods can be helpful but they may not be 100% effective for everyone. And of course, there is no way to know before surgery if you even have adhesions, if surgery will help, or if the barriers will be beneficial for you. So you could have surgery for nothing.

Endometriosis can also be a problem. If you feel that endo is the problem, you should consider visiting with an Endometriosis Specialist. Mine is also considered a pelvic pain specialist so he was able to help me with other issues that were causing pelvic pain. You may even want to consider a consult with a specialist before you have a lap with your doctor the reason being that the more skilled the surgeon who does the lap the more that could be taken care of during surgery.

Many of us with endometriosis and possible adhesion issues do end up with colonoscopies earlier than our peers. I was only 30 when I had mine! When there are any kind of bowel issues involved it can be a good idea to have a gastroenterologist on board to treat any issues that might be compounding any problems. Mine was very helpful for me and helped us minimize the gastro issues so we could isolate the symptoms that were likely from the adhesions and endometriosis.

Personally I have not found that the sex of my doctors has been a problem (though my mom's worst doctor was a female OB/GYN) but if it is an issue for you then you might want to consider finding a female doctor with whom you can have a confident relationship.

Doctors do try to find the "easiest" disgnoses to try to avoid unnecessary treatments for you. It can be quite surprising what small medical conditions sometimes cause such horrific symptoms. And the opposite is true as well, sometimes major illness have little or no symptoms!

Are you keeping a journal detailing all of your symptoms so that you can be sure to share as many details as possible with all of your physicians? You may also want to ask if a physical therapist may be able to help you with the flexible issues involving your right hip/side. Sometimes a physical therapist or chiropractor can have helpful suggestions even for adhesions.

I so wish you all the best and hope you and your medical team can find the source of your pain soon! Best wishes for your upcoming colonoscopy! in there!

S
  #3  
Unread 01-14-2009, 06:26 PM
Severe Pelvic Pain 3 yrs after partial hysterectomy

priscillainFL - I am so sorry that you are dealing with this pain. I think that Weiser has said everything perfectly. I had my first colonoscopy last month at 33. I think its just the docs way of checking for everything before they go on to surgery. The journal is a great idea. Its a great way to track your problems and see what if anything leads to your worst attacks. Plus its very easy to forget things as we are sitting in the office telling our stories. Best of luck to you. I hope that they are able to find the source of your pain and get to feeling better soon.
  #4  
Unread 01-15-2009, 09:58 AM
Severe Pelvic Pain 3 yrs after partial hysterectomy

Thanks so much! for both replies!

The journal is a great idea - I don't know how many times I have been to the dr and forget details that could be important. I am going to do that starting today. I also know IBS is real - just didn't realize it could be so painful. The gastro doc gave me pills but they don't help at all.

My frustration is from all the tests and all the drs visits. That in itself is exhausting trying to keep up with who knows what already.

One the up side - not feeling well these past few weeks has slowed me down enough that while not working and laying around babying myself - I really have had the opportunity to decompress and relax - I have to admit is gives me time for some much needed rest.

I know I moan and complain but I am a healthy woman except for this issue and I am thankful that it is not worse. There are plenty of women that have really serious issues and I just have to remind myself that it could be worse. My mom and dad both passed away from cancer so I do know what it was like for them to deal with a serious life threatening illness.

Thanks for listening and your advice, encouragement. I am a strong smart woman and I will find a way to deal with what ever is going on (not knowing is the worst most frustrating part!)

And in fairness - my docs, family and gyno - while men - have been great - I guess I just feel crazy when I try to tell them or anyone - I hurt and there is no clear answer - I know its hard to deal with female issues for them when its not 100% clear what's going on. And I am sure they have to distinguish between patients that really are sick, those of us with chronic non life threatening symtoms and those handful of people out there who are true hypochondriacs.

Well - I guess I better start drinking those clear liguids! Not looking forward to tonite/tomorrow with that colonoscopy. I hear the prep is the worst part!

thanks again for your help!

Priscilla


I
  #5  
Unread 01-16-2009, 01:53 PM
hi

Add me to the list of woman who "knew" they had adhesions but had to go through the colonoscopy, ct scans and all the rest BEFORE the surgery! While I know this is frustrating, I have been there, and you just want surgery to make it stop!, a good doctor will make sure that nothing else is causing your pain before going in there. Chances are they will find nothing else, but better to know that before you have additional surgery! Get your appt.s over with ASAP so you can move forward. I told my daughter (A RN), when she came with me for my pre-lap consult, and I was armed with all my "normal" other tests, that I felt like Dorothy in the Wizard of Oz!!!! You know, when he sends he out to get the broom, then she comes back for help after sh did everything she was told!! HAHA, little joke, but that was exactly what I told her! I was like, OK wizard (dr), I did what you told me to do, know do what YOU told me you would! And, I had great success with my lysis of adhesions, he used a barrier, and although I will never be pain free, I am much better, so I wish the same for you!
  #6  
Unread 01-22-2009, 08:56 AM
Severe Pelvic Pain 3 yrs after partial hysterectomy

Hello
I also had a partial Hyst and still had pain but my pain and constant having to go to the bathroom was from what they call is iterstitial cystisis a bladder problem. Just like endro it causes a tone of pain and burning. It can feal like you have a uti but you dont.
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