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I would like to hear from women who experienced recurrence of fibroids, please. What procedure did you initially have, and how many years passed before you developed fibroids again? How many fibroids were you initially diagnosed with having, and how many fibroids recurred? What treatment/procedure did you/will you pursue following recurrence?
I am 39 years old and have two fibroids, 10 cm and 3 cm. Mine are symptomatic and necessitated a transfusion for severe anemia. It has been very difficult deciding what to do.
My younger sister had an abdominal myomectomy several years ago for the removal of a grapefruit-sized fibroid. She just had a laparoscopic hyst (LSH), the same hyst type I had, a couple of years ago for reoccuring fibroids. She went 17 yrs. between her myomectomy and her hyst.
If you are looking at a hyst...I might suggest you go to the *Hysterectomy Checkpoints* link at the top of the web site. Click on it and go to the *Pre-op* link. Scroll down and it goes over different questions to ask the Dr. when contemplating a hyst and it also goes over the different types of hysts. Possibly you are a candidate for a less invasive hyst such as a TVH, a LAVH, a LSH or the newer DaVinci Robotic??
In my case, my 1st Dr. wanted to do an abdominal hyst (TAH) due to the size of my two fibroids. My 2nd Dr. recommended a LSH, a less invasive hyst after I did (3) months of lupron shots to shrink my fibroids enough for the hyst type. I went from 15 cm total with my fibroids to 9.1 cm total at the time of my hyst.
Hope that helps. In the end...just do what is *best* for you. That is what is most important. Do all the research you can and ask all your questions. We Hyster Sisters are here to help if we can.
I had a myomectomy 3/07. I had 4 total all ranging in size, the largest was/is 6 cm. Sounds small but it makes up for it in pain. 3 removed, largest remains due to position. My doctor did not want to attempt removal because he would be cutting blind and was afraid it would end up causing a hysterectomy. By June of 08, they found another one on the opposite side considerably small but back none the less.
I am at a loss as to what to do. I heard about this website though a friend of mine. I have been checking it out for the last 2 days. I have been home from work due to the pain. I am considering a hysterectomy because I can not take the pain any more. I have been on bc pills, depo shot. Because I was afraid I would miss my chance, my husband and I attempted fertility treatments in 08 w/o success. Fibroids and endo being blamed for the failure, my age, I am 36.
Sorry to get long winded but I don't have much of an oppotunity to talk to someone (a lot of someones) that know what I am going through. thank you for listening or reading...
Hyster Sisters has a great bunch of ladies to help you with your questions.
Fibroids are not fun...that is for sure. Generally, a hyst for fibroids is an elective surgery...so that can sometimes make the decision to have a hyst a little tougher. I asked myself that several times in pre-op. Why have a hyst????????
For me, my quality of life was lessened with fibroids. I had pelvic pressure 24/7, heavy periods, bladder incontinence and no energy. My life WAS my fibroids and dealing with them.
As I mentioned to Healthyin09...you might check to see if you are a candidate for a less invasive hyst. As I replied before on this thread, my sister had an abdominal myomectomy and then she went on to have two C-sections with my nieces...and her Dr. suggested a laparoscopic hyst, which she had.
It is ironic that you posted about this very question, I was going to start a post, also! I had a DaVinci myomectomy for a 6 centimeter pedunculated fibroid on outside of uterus, in Feb. 0f 08. Also had a d & c for a polyp in the lining. Not on birth control, but have been having pre-period spotting since Oct. 08 so I figured I better get it checked out. Lo and behold, at my ultrasound yesterday it turns out i now have 2 new fibroids on the outside, and also a 2 centimeter cyst on left ovary. The ultrasound tech showed me everything but I don't know how big they are, will have to wait for the dr. to look at the reports and call me back and advise what to do about that cyst. I've had cysts before that were just fluid filled and went away by themselves.
Feeling sort of down today that they came back so fast.
Jennrg and Angelkitten, I am sorry to read of your recurrence and related setbacks. I am grateful that you have responded to my post. Perhaps we can all learn something from each other.
How coincidental that my 2nd fibroid, the 3 cm one (near my cervix), was found in June of ’08, too! I had an MRI at that time. The ultrasound I had in January of ’07 detected only the bigger one, which was 8 cm then, but in June it measured 10 cm (in the middle of my uterus). I, too, am at a loss as to what to do although I have not undergone any procedure to date. All I have done is read and fret and take Loestrin and vitamins with iron, and it all started with a transfusion for severe life-threatening anemia. So, technically, I have not suffered recurrence, I am just petrified of it. Absolutely petrified. I cannot go down that horrific path again suffering every fibroid symptom under the sun. It was never even my intention to be on BC pills, so the whole fiasco has been doubly difficult for me to embrace. My 3rd opinion doctor, who will ultimately be my surgeon, would prefer that I have a myomectomy. He says that a 20% recurrence rate means I have an 80% chance they won’t come back. But where are the women who constitute the 80%? I read the Yahoo! Uterine Fibroid Group in addition to HysterSisters. The other message board may be more myomectomy-oriented than this board, but a lot of recurrence is mentioned there following all types of procedures --- ablation, UFE, MRIgFUS, and myomectomy. How can we find the 80% who has escaped recurrence?
I am 40, unmarried with no children, and willing to adopt if Mr. Very Right and marriage is to be my destiny. So, for me, the crux of the issue is my long-term health. That being said, do I choose myomectomy and gamble on recurrence or hysterectomy and win the jackpot on a fibroid-free rest of my life? I have often remarked that it is like choosing between my arm and my leg. How is that a choice?!?! Yes, ideally I would like to keep everything God gave me intact even if I do not bear children, but I have yet to hear or read a convincing argument. Knowing me, if I were to have the myomectomy, I would spend every day thereafter walking on eggshells, worrying that fibroids were coming back. Doesn’t sound like much of a splendid life, does it? Honestly, the way I feel emotionally now, I could spend the rest of my life in a state of indecision. Can anybody help me with that?
Gosh, talk about long-winded…. I hope there is enough space left for you to write!
Have you considered seeing and endocrinologist or hormone specialist?
Three main glands are the adrenal, thyroid and ovaries and all need to be in balance or it can affect a lot of things in the body, fibroids can be estrogen dominance and progesterone can help that, but the specialist would be able to find all that out..
Healthyin09…you are literally speaking my story…how did you know what I was going thru? LOL.
I am 39, unmarried with a 16 yr old, and have been diagnosed with 5 fibroids, 1 large one (don’t have the dimensions yet) and 4 little ones. The largest one is smack dead in my uterus where a baby could be. It’s attached inward to my uterus. Back in the fall of 2005, I had a laproscopic myomectomy for several fibroids, one being the size of a baseball. Back then, my periods were so bad, heavy, painful, and lasting about 3 weeks. My gyne offered the LM, partial hys, or birth control pills. I tried the bc pills for a few weeks, but could no longer deal with the lack of energy, having to go to the bathroom every 2-3 hours because I was soaking thru everything including my clothes, barely being able to walk due to the blood loss, the painful cramps, etc….I came back and said, I’ll take the LM, but not the hysterectomy because I was only 35 at the time. That was in 2005.
After that, my periods decreased to 1.5 to 2 weeks, with the pain lasting only 2 days, instead of 5-7, and the heavy bleeding only being 3-4 days, instead of the 7 days it used to be. To me, it was much better than where it had been. What I didn’t realize, is that it still wasn’t right, with what I was experiencing, especially with me being on 2 weeks, off 2 weeks. This on and off made it hard to get back for my annual, never knowing when I would be on or off, etc..Roll the clock to 2009, not quite a full 3.5 years later, and I’m back to 5 new fibroids.
My options are no longer the pill, but to keep them, they may grow, they most likely won’t go down, and if I ever met that Mr. Someone that wanted kids, I would have to contend with the fibroid currently taking residence down there, potential miscarriage, potential complications, and having a high risk pregnancy because by then I’d be in the “over 40” crowd. OR, I can risk having the surgery to remove the biggest one, but because it’s so deeply ingrained, there’s a high risk that the uterus will be compromised and I have no choice but to have a hyst….OR, have a partial hysterectomy, keeping the girls (my ovaries and cervix via a laproscopic vaginal hysterectomy.
I went thru the whole thought process of thinking, am I not believing that God can heal me? What if I did want more kids (I have a 16 yr old)? What if I was with someone that wanted more kids? Am I seriously thinking of all of this??? And I decided that after dealing with the issue of blood for over 11 years, I am tired, and my health and peace of mind is more important to me, at this point, especially knowing that it barely took 3 years for the new ones to come back. So, I am tired, and will be scheduling my LVH tomorrow. I’m done trying to put a bandaid on the problem, and ready to attack it head on. I’m tired of the clothes mess-ups, heavy bleeding, tiredness, lack of energy, pain, planning my last 11 years over when my period is coming or going.
I don’t know if there is one right choice for everyone, but do believe that you have to do what’s best for you. I considered a 2nd opinion, but really just thinking, what am I really trying to save for, and endure for some more years???? I think I’m ready to make that jump..I can’t imagine how life will be without my period and issues that I’ve had for so long..who knows…I may just enjoyed it more. p.s. sorry about being long winded too, and I’m looking for my LVH to be scheduled around 4/15.
I had extreme pain with my fibroids, even though they were very small. The first one was only 1 cm. It was removed through a hysteroscopic resection, done at the same time as a D&C and endometrial ablation done for heavy bleeding. I had about 14 months of no pain (and no bleeding). Then, the pain began to return.
I first thought about a myomectomy. But then I realized that if I had gone just over a year between fibroids, the chances were pretty good that I would continue growing more. My mother had her last period at 56, so I was facing ten or twelve more years with an intact hormone-responsive uterus. I did not want to be a serial fibroid sufferer and go through surgery every year, only to be followed by a brief period without pain before going through the same cycle all over again.
The next option I considered was the uterine artery embolization. It is possible that this could have worked. Because I experienced such severe pain (to the point of nearly passing out while driving), I was concerned about two aspects of the UAE: the fact that it takes several months before you can tell whether it has worked and the likelihood that my overly sensitive uterus might still react to the continued presence of the fibroids, even after they shrank a bit and lost some density.
I then decided that for me, hysterectomy was the best option. I am very glad that I had tried something else first. Otherwise, I always would have wondered if there was something else that could have worked. I really struggled with the idea of a hysterectomy. However, doing the research and understanding for myself what was the best option was extremely important. Once I did decide, I was extremely confident. I was still nervous, but I knew it was the right choice for me.
Whatever you decide, be sure you make your decision with you in mind. Your symptoms are not going to magically improve without some treatment, and it's important that whatever you do is something you can be comfortable with. The two years I had between my myomectomy and hysterectomy were extremely valuable to me. They gave me time to continue thinking and reading about fibroids and about hysterectomies and adjust to the idea.
I wish you in making your decision. Whatever your choice, I hope it is one that greatly improves your quality of life.
also here because of recurrence of fibroids. I had an abdominal myomectomy 10 years ago come this october. They are back and kicking my butt. I look pregnant (5 abdominal surgeries will do that) and I am depressed about the whole thing. I am not sure what I am going to do yet as I have not had my ultrasound yet (will have it on wednesday this week and the doctor will call me to discuss). I am not sure if I want a hysterectomy at this point. I am 44 years old, don't want any more children. However, a healthy sex life is very important to me and I am not sure how the quality of my life will be affected after a hysterectomy.
I hope you find the right answer for you. If you are not satisfied or comfortable with your doctor, please get a second opinion. I have been with my doctor for over 10 years and she has taken great care of me. However, I knew there was a chance the broids would grow back (and they have). I'm just here weighing my options. Good luck.