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chemo and low white blood counts...anyone have Neulasta shot? chemo and low white blood counts...anyone have Neulasta shot?

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  #1  
Unread 02-06-2009, 10:00 PM
chemo and low white blood counts...anyone have Neulasta shot?

I couldn't receive my third chemo treatment on time due to very low white blood cells. They will attempt next week again. Hopefully it will come up.

Nurse said I need Neulasta shot from now on after all my treatments to keep the white count up.

I have read horror stories about this shot causing MAJOR HORRIFIC bone pain.

Anyone out there who has taken it and has NOT had a bad experience?

Who needs more crummy pain (and I've read the bone pain has made grown men scream) when chemo does enough to us?

My vein pain from nearly four weeks ago from the IV drip is STILL there...I swear the vein in permanently damaged. I think I may need the port put in.

Please, anyone on chemo, share your experience if you needed the shot to boost white blood cells.

Thanks...I'm such a nervous wreck!
MaryAnn
  #2  
Unread 02-06-2009, 11:11 PM
chemo and low white blood counts...anyone have Neulasta shot?

Hi MaryAnn - I am really sorry to hear that you missed your treatment - but glad to know that you're considering the neulasta shot. I was getting my chemo this time of year 2 years ago and received 2 neulasta shots = the bone pain was the worst part, I'll admit but it's part of the 'battle'. I'm glad that you can be a 'nervous wreck' with us so we can help bolster the warrior spirit to keep fighting. Hang in there!
  #3  
Unread 02-07-2009, 01:21 AM
chemo and low white blood counts...anyone have Neulasta shot?

I also had Neulasta & Procrit from treatment 3 through 5. I honestly didnt feel the side effects were drastically worse than they were the previous cycle but the side effects are cummulative so Iguess I just assumed that is why I felt worse after each cycle. Hang in there you will do this!
  #4  
Unread 02-07-2009, 02:28 AM
chemo and low white blood counts...anyone have Neulasta shot?

I didn't have neulasta but two of my friends did. My woman friend said her hips hurt, enough that she didn't feel like walking long distances, but not enough to keep her from teaching every day, going to their vacation home at the beach every weekend, going out to dinner, etc. MY guy friend said he was surprised that his hips hurt, no one told him, so he called his oncologist. His pain was very mild. He's a professor and went to work everyday, walking across campus. Just remembered, another friend, ovarian gal, has been getting neulasta forever. She's never mentioned any problems and I was at a party with her last weekend.
  #5  
Unread 02-07-2009, 07:29 AM
chemo and low white blood counts...anyone have Neulasta shot?

I was getting Neupogen shots last year after my treatments, and again this year, and had similar side effects as those one gets with Nuelasta. Now that my Dr. has switched my chemo and my platelet count is way down he has put me on the Neulasta shot. I got the first one on Wed, and so far have had no side effects of any kind. I do know that when I had the bone pain from the Neupogen that Tylenol was able to take care of it with no problem. Just be careful not to overdo - I moved a lot of boxes around and did a lot of climbing up ladders when putting up Christmas decorations and was in horrible pain for several hours. Prior to that the pain was only fleeting - would come in a wave for maybe a minute and then go away. Hopefully I wont get any of the pain from the Neupogen, but if I do I know that I can deal with it. I dont recall anybody who was getting it really being in horrible pain.
Good luck.
  #6  
Unread 02-07-2009, 08:51 AM
chemo and low white blood counts...anyone have Neulasta shot?

I had a Neulasta shot the day after each treatment. I did experience some bone pain, but it was very bearable -- nothing like the screaming bone pain of your fears. Some believe that taking Claritin (over-the-counter anti-allergy med) helps (if you search online, you'll find lots of references) -- I can't imagine why that would be, but I figured it couldn't hurt. I also sometimes took pain meds to counter the Neulasta bone pain, and that helped, too. To me, dealing with the pain was a lot better than cancelling chemos because of low blood counts.

I'd also really recommend getting a port.

Of course you're nervous. This is really scary. But you can do it, and I hope that you get great support from the folks here.
  #7  
Unread 02-07-2009, 09:41 AM
chemo and low white blood counts...anyone have Neulasta shot?

I had just one Neulasta shot... it was much too strong for me, so I switched to Neupogen shots. It took 4-5,, but no side effects from them.
I am small..only 5 ft so maybe for larger women, it may be ok.
Very expensive shot also..I think around 4K? compared to Neopogen.. around $300.
But as Bonnie says, it is much easier to just have one shot.
I dont remember too much bone pain.. but achiness all over. It did go away after a couple of days.

Re: getting a port.. if you are only having 6 chemos, I would not get a port. Have they tried different veins?
I had that problem every time. Once it took 4 different nurses to get the IV in.
Ports are costly procedures and can be painful (from what I heard)
My dr said it was not necessary for me..
I had my last 2 chemos delayed one week , because of low white counts. they eventually will come back up.
Maybe try one Neulasta shot next time.

I understand how you feel. I was a nervous wreck also.
Its been almost one year since my last chemo. I am finally almost getting back to normal.
Best of luck to you. We are here for you.

Chris
  #8  
Unread 02-07-2009, 10:24 AM
chemo and low white blood counts...anyone have Neulasta shot?

I had six Neulasta shots during my first round of chemo. I also had to give them to myself (something about insurance coverage...). It gave me some bone pain - I wouldn't call it 'horrific' though.

If you have to give yourself the shot, please don't worry about it! I used a little lidocaine cream, and that numbed the area prior to the shot. The needle is very thin too. After the first one, it was very easy. I never thought I'd have to give myself a shot!

I am so sorry about your vein pain. I can't comment, because I had a port put in prior to my first treatment. I have heard that drinking a lot of water prior to chemo can help with veins?

I like having a port. It has caused no problems, and is not noticeable to anyone. Check with your doctor - with only a couple of chemos left, s/he may want you to tough it out.

Take care
  #9  
Unread 02-07-2009, 10:26 AM
chemo and low white blood counts...anyone have Neulasta shot?

I had Neulasta with every round of chemo -- all 8 of them. I was also on Aranesp (like Procrit) for most of the last 6 rounds. I had bone pain during the first 2 rounds while I was on Taxol/carbo, but none while I was on Gemzar/cis.
  #10  
Unread 02-07-2009, 10:26 PM
chemo and low white blood counts...anyone have Neulasta shot?

  Quote:
Originally Posted by SisC
I was also on Aranesp (like Procrit)

Ahhh, that is what I had Aransep NOT Procrit. I knew i had the shots for both red and white blood cells
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