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keep or remove ovaries with endometriosis? keep or remove ovaries with endometriosis?

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Unread 04-19-2009, 02:29 PM
keep or remove ovaries with endometriosis?

I am 31 years old. I am scheduled April 27th for hysterectomy (in 1 week). My doctor says it is my choice about keeping ovaries. I have endometriosis; the doctor said he would get rid of what he could see. I am worried that keeping ovaries will let implants that the doctor couldn't find continue to grow. Also I have read that it is possible for ovaries to fail after hysterectomy. The only good thing about keeping ovaries is not having to go on HRT. Any suggestions?
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Unread 04-19-2009, 03:32 PM
Re: keep or remove ovaries?

IMHO at your age if you can retain your ovaries there are benefits of not dealing w/ osteo and heart risks right away. I didn't have my surgery for endo purposes and so can't tell you from experience. I do know that some say the endo comes back after hyster but don't know how frequently. Also from what I've read the ovaries are more likely to restart (although they may stop at first) then they are to fail but it's always a risk. I hope some of the endo people reply to you.

Unread 04-19-2009, 06:01 PM
Re: keep or remove ovaries?

Hi jmal, and

You can always have your ovaries removed later if you need to, but once they're out, you can't change your mind and have them put back.

On our Pre-Op Resources page, we do have some articles about keeping ovaries (scroll down toward the bottom of that page). Perhaps these will help you with your decision.

Has your doctor talked with you about the pros and cons of each option? If not, perhaps this can give you some insight.

with your decision. I hope everything goes smoothly for you.
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Unread 04-19-2009, 06:12 PM
Re: keep or remove ovaries with endometriosis?

is your dr an endo specialist? ive seen other women post about the importance of seeing someone that specializes in endo. also, if you arent sure..a second opinion is always helpful. good luck with your decision!
Unread 04-19-2009, 09:12 PM
Re: keep or remove ovaries with endometriosis?

That only good thing--not having to go on hrt--is a biggie! I am very glad that I still have one ovary even though I had endo. My doctor is a very big proponent of keeping at least one ovary if possible to avoid hrt so, it was easy for me to make my decision. I know that it is a big one to make. Hope you make a decision that you feel sure about as well. Good luck to you!
Unread 04-20-2009, 04:14 AM
Re: keep or remove ovaries with endometriosis?

Even if you plan on keeping your ovaries, do some research about HRT before hand. I was supposed to keep my left ovary, but the endo had decided differently. I was unprepared for the instant menopause after surgery.

I am on HRT and it has been the best thing that could have happened to me. My ovaries had not been working properly for years. Now I have some emotional stability. If your doctor wants you on HRT, make sure that you have some progesterone with the estrogen. This will decrease the possibility of the endo coming back.

If your moods are OK and you don't have any issues with your ovaries, keeping them might be the best option.

Talk to your doctor and do the research.

Hang in there.
Unread 04-20-2009, 10:59 AM
Re: keep or remove ovaries with endometriosis?

I am 34 years old. My TAH/BSO was on April 15th. My Dr. told me everthing would be removed including ovaries, because the ovaries hold the hormones that make the endometriosis thrive! Now, for at least 6-8 weeks after my surgery, Dr. said no form of hormones of any kind: artificial, food related, herb related, supplement related... to make sure the endometriosis that might not have been removed dies off. For me (given family history, and previous surgeries for Endo.) I wanted everything removed so that I don't have to go back at a later date to remove what was left. In addition, I have decided not to go on HRT after my 6-8 week period, because there are other things that can be done nutritionally and excercise wise that help with menopause.
Unread 04-20-2009, 05:39 PM
Re: keep or remove ovaries with endometriosis?

I am scheduled for TAH/BSO for June 12, my doctor told me to think about whether he should take ovaries or not if the endometriosis is not affecting them. At first, I said "I will leave this up to your professional judgement." The final visit with the doctor, we talked about this too. He said if the ovaries need to be taken later, it is a very difficult operation. I am having the ovaries out because I have spent a month reading everything in books, online etc. and think that by leaving them in a greater chance for endo to continue. The downside is obviously surgical menopause. I am 45 so am closer to natural menopause. It sure is a big decision.
Unread 04-20-2009, 06:44 PM
Re: keep or remove ovaries with endometriosis?

I am 42 and will be undergoing my TAH on May 15th. I have had severe endo for 15 years and have multiple lapros to clear it up. the need for the hyster is something all together different but my doc who has been with me from the beginning, has suggested losing the ovaries due to the endo growing back and attaching my ovaries to other organs or to the abdominal wall. He says that if that happens the pain can be worse than usual and could mean another surgery. So, I've opted to lose my ovaries and go with HRT after much research and discussions with doc. For me, I dont want to go through any more surgery, and the pain that I have endured in between them. I wish you luck. my suggestion is do your research.
Unread 04-20-2009, 10:52 PM
Re: keep or remove ovaries with endometriosis?

I have endo as well. IMHO, I have had 3 other laparoscopies specifically because my ovaries got "rediseased" with the endo, and I didn't want to get a hysterectomy until now--I am 38.

My obgyn got rid of "what he could see" as well, but endo is a beast. It grows back, unless you go on Lupron, or Danazol or the like and those medications have nasty side effects. Its all your choice....

I wish I had better advice for you, but hope I helped with my experience and all the best to you! I don't feel well, surgery Wednesday.

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