I haven't posted for awhile...been busy trying to get off this rollercoaster called hysterectomy.....I am now 7 months post op hyst..ovaries intact and still trying to get back to normal....the main thing I have noticed physically is that I seem to have lost alot of my clitoral sensation and engorgement....its like it has shrunk and even when I am in the mood there is no swelling or sensation....does anyone know why this would be? I am thinking perhaps it is a blood flow issue?
I've asked my doc and the NP, and no one seems to know. I've had others on this board suggest using estrogen on the area. Don't know if that works. My creme also has lidocaine in it, so it would give it even LESS sensation. I called it "clitoral atrophy". It used to be pink and vibrant and easy to find, now it is grey and dull and frequently "hides".
I thought I was the only one with this problem. In addition to a total hysterectomy, had 5 weeks of high dose pelvic radiation. I was beginning to think the radiation was responsible for shrinkage of my labia........ and now I feel that I've loss my womanhood.
Same issues here. Three years post op, little to no clitoral sensation. Decreased libido. Vaginal dryness and pain. When I talked to my doc about loss of clitoral sensation and the shrinking to almost nothing, she was quite surprised, said she'd never heard such a thing. . .which led me to believe that women weren't talking about it. She put my story into her anecdotal file. . .
If you click on resources and scroll down to sexual dysfunction there are lots of good articles. I found one that mentioned having a hysterectomy cuts down on blood flow to the pelvic area and that can decrease satisfaction. Reading that really helped me, because I know I'm not imagining things. A quick fix mentioned was a hot pack on your pelvic area. That's also why they're doing studies on women and Viagra.
My uro-gyn who specializes in sexual dysfunction actually participated in some studies of the Eros device. She suggested I get one, they can be a bit pricey and insurance may not cover it. I did get one and I can say that it does seem to increase blood flow to the area (I'm not as strict about using it as frequently as they say so might help if you use it more). I also use vaginal estrogen and due to a labial skin disorder also massage some into the surrounding tissue, I also take a little testosterone cream and massage it as well.
All of these things seem to help, I have also heard that sometimes the surgery can disrupt the blood flow and nerves.
If you can find a Dr. who specializes in sexual dysfunction it may help as well, mine was recommended by my gyn-onc.
Sending wishes that you all find what works for you.