Hey all - sorry if this is really long...
I'm new here and first of all - what a FANTASTIC network of information and support!! I'm so glad I found this site...
A little history on me: I am currently 38 years old. I started my period at age 12. I was on birth control from age 16 off and on until age 35. I had the Essure procedure done when I was 32 because I've never wanted children and was tired of being on the pill. Due to severe PMS, my doc kept me on BC pills even after the Essure. When I was 35 (2006) I decided I'd had enough and have been off the BC pills ever since. (I now manage the PMS w/ vitamins, determination, and a lot of apologies for my mood swings...)
I have a high tolerance for pain but day one of my menstrual cycle completely side-lines me if I don't catch it in time with a handful of Ibuprofen. I miss 1-2 days of work every month because of my periods. It used to be that day 1 was unbearable, but the days after that were manageable. Then day 1 and 2 were really bad, etc. Eventually it's gotten to the point where I have cramps ALL FREAKING MONTH.
I've had too many doctors tell me it's all in my head over the years and throw antidepressants at me so I figured I just had to live with this. On August 31st of this year I ended up in the ER because I thought something had ruptured because the pain was so unbearable! (It felt like a rabid badger with claws made out of razor blades was trying to escape from my uterus...) They did an ultrasound and found three cysts and referred me to an OB.
My OB did an ultrasound and found fluid built up around my Essure sites. So I figured the Essure was the culprit and scheduled a laparoscopy. My OB said they'd probably remove the tubes and the Essure coils. My surgery was on September 10th but when they got in there they said my Essure sites look perfect. My tubes are perfect. They found three large cysts on my left ovary (one was about the size of a golf ball) they scraped the two smaller ones and removed the large one; cauterizing the wall to prevent another one from forming. They also found and removed endometriosis.
I went home with some Percoset and hopes for relief. Well, two weeks after surgery I got my period and went through the hell again; and there it is - the flippin' cramps all month long. I had my follow up visit with my OB yesterday and told her the pain is STILL THERE. Exactly the same as it was before my lap. I told her I'm taking 3 Motrins every 4 to 6 hours to keep the edge off but I can't live like that.
First she tried to push Lupron or BC pills at me. I told her about my experiences with artificial hormones and that is not an option for me - I do NOT tolerate them. I asked her if she thought there was ANYTHING ELSE that could be causing this. Then she said 'well your Uterus DID look a little boggy; it could be Adenomyosis'. I've never heard of that but after doing some research I believe that very well could be the issue. My doctor told me to think about what I want to do next and call her when I've decided.
I don't have the severe bleeding (thank God) - I bleed very heavily the first day but then it levels out. It's the PAIN that I can't cope with anymore. I've decided that I want to have a partial hysterectomy. Looking at the photos from my lap - the endo looks extremely minor; so I think that by keeping at least ONE (if not both) of my ovaries I should be okay.
My question is about the cervix: do I keep it or have that taken too? What is the difference? I didn't know there were so many different types of hysterectomies until I got on this site... I do know that I want to keep at least one ovary so I don't have to do hormone replacement. Other than that - I'm completely lost.
Sorry for the novel and thank you to anyone who reads it!!