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Endo Hyperplasia w/o atypia not regressing Endo Hyperplasia w/o atypia not regressing

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  #1  
Unread 09-28-2009, 11:07 AM
Endo Hyperplasia w/o atypia not regressing

Hi,
I was diagnosed with endometrial complex hyperplasia without atypia 3 months ago and prescribed Provera for 3 months. I just had my follow-up biopsy and the hyperplasia has not regressed (and thankfully has not progressed to atypia). I only spoke with the nurse, and she has to talk to the doctor to find out what the next steps will be.

Has anyone here had this experience? I've found a couple of sites that say that hyperplasia without atypia that does not regress is a "cause for concern" or "cause for alarm," but no explanation as to why. Is it more of a risk to progress to cancer? I know I have to ask my dr these questions, but I'm just nervous waiting. Also, I am a bit more concerned because she says it is bizarre that I even have this condition, as I just turned 38 and am thin -- basically no risk factors.

Thanks for any information you can provide!
  #2  
Unread 09-29-2009, 11:40 AM
Re: Endo Hyperplasia w/o atypia not regressing

I do not have an answer for you. I am in a similar situation, except mine is simple hyperplasia. I am on Provera and I am not sure it is working. I will go back in November for a biopsy to check. I am also young (40) and thin. My doctor just told me that some women stop ovulating reguarly and that is why we have unapposed estrogen. I am having light spotting still and my periods are still extremely light. I keep thinking that my lining is growing thicker with each passing month. Let me know what they tell you. Good luck and I hope that you get some answers. Hopefully it will be an easy solution.

Take Care,
Kate
  #3  
Unread 09-29-2009, 01:22 PM
Re: Endo Hyperplasia w/o atypia not regressing

I had the same Dx in June. My drs said that it is "two steps" from cancer. Since I had already been on progesterones for a year, I was advised at the very least to have a d&c or a lap hysterectomy. Since I have had very heavy irregular periods for over 5 years and chronic pelvic pain for over 4 yrs, I went with the TLH. And I'm so glad I did it! I'm post op day 13 and I'm feeling better every day! I would advise that if you are told to have a hyster, find a very experienced surgeon who can do a laprascopic hyster.to see if your case can be done that way. I had 2 c-sections and my TLH was so much easier!

Good luck!
Hugs!
  #4  
Unread 09-29-2009, 02:11 PM
Re: Endo Hyperplasia w/o atypia not regressing

Hi Kate,

I heard from my doctor and I have to get another biopsy in 3 mos. I now have an IUD, which I got inserted at the same time as my last biopsy, so I guess she's hoping that this will do the trick. When I was on Provera, I had one heavy period then spotting the rest of the time. I also wondered how that was going to rid the thickened lining. I guess it didn't! Hopefully yours will clear up with the provera.
  #5  
Unread 09-30-2009, 06:51 AM
Re: Endo Hyperplasia w/o atypia not regressing

Dana,

I'm glad your hysterectomy went well. I'm hoping that it doesn't come to that for me, as I 've never had children, and would still like to keep that option if possible. I figure if this doesn't progress to aytpia, I'm ok with keeping everything where it is. Did you also have hyperplasia without atypia that they treated with progesterone without success?
  #6  
Unread 09-30-2009, 12:16 PM
Re: Endo Hyperplasia w/o atypia not regressing

They discoverd my hyperplasia after I had been on progestrone for a year. So I guess my answer would be yes that I had no siccess with the peogesterone. I've heard of a iud being used and also the dr said I could go the d&c route first before going with a hyster. (I chose the hyster because I was hoping that'd also cure my chronic pain). My pathology rpt came back clear. Praise the Lord! But back to you, if your dr suggests a hyster ask about the iud treatment or a d&c options!

Good luck and keep us posted!

Hugs and Prayers!
  #7  
Unread 09-30-2009, 12:28 PM
Re: Endo Hyperplasia w/o atypia not regressing

I am glad that you are able to try something before a hysterectomy. I have already had a D & C. My dr. scheduled that in April and the pathology came back simple hyperplasia. I know that is the least concerning hyperplasia, but i also wonder how quickly it progresses. It can be so confusing. I do not have painful periods, they are also really light so I am hoping this provera will take care of it. Good luck with the IUD.
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