I think my endo is back?

I'm so confused, depressed and upset with this whole endometriosis. A few months ago my doc took my left ovary out because of a cyst and found that I had endo behind it. After the surgery he put me on Lupron depot and I felt like a new person. Now all of my symptoms are back and i'm feeling worse then ever...Is it possible for the medication to NOT work and the endo to come back that quick?

Well I met with my doc yesterday to discuss a possible hysto but he said since my ultrasound came back clear he couldn't help me and i should find someone else to see. He told me it's impossible to get the endo back on the Lupron

Someone please help me, I don't know what else to do

I would get a second opinion. I don't know all that much but I had endo very very bad and the Dr. put me on Lupron hoping it would shrink it, it did not!. Although it didn't seem to spread either according to the ultra sound. Is it possilbe that they missed some when they took the ovary out? I have learned since being on this site that endo likes to hide and can continue to spread?
Let us know what you find out.

Thank you starfriend....I'm hoping to see another doctor soon, this pain is so rediculous!

Just got off the phone with my "second opinion"... going to see her on nov. 5th...hopefully she has an answer

((Hode42807))

I hope your upcoming appointment goes well! Be sure to take a list of all of your questions and concerns so you be sure to get them all answered! It is so easy to forget some of the most important questions when we get caught up in conversation!

There is no cure for endometriosis. Not a hysterectomy. Not an oophorectomy. And certainly not Lupron. Lupron can cause endometriosis implants to shrink, but it doesn't remove them and is more effective for some than others. The key for treating endometriosis is to have the endometriosis removed skillfully by a knowledgeable doctor. Any endometriosis that is not removed has potential to grow and spread.

Typically, endometriosis does not show up on an ultrasound or x-ray. Thus, even with clear results on those tests, endo can still be present.

While you wait for your upcoming appointment, keep a diary of all of your symptoms. Be as precise as you can. The more information you can share with your doctor(s), the better!

Take some time to read through our Endometriosis Resources to learn all you can about this condition and the treatment options for it. You have some time, so do as much research in advance so you and your second opinion physician can hopefully come up with the right treatment plan for you either at your appointment or soon after (she may want to run some of her own tests first).

I wish you all the very best! Keep us posted!

A journal is a great idea.
Thank you, and I'll most definitely keep u posted

Hi Hode42807~

It seems to me that your first MD must not be very educated about endo - an ultrasound means NOTHING when it comes to endo and Lupron doesn't guarantee a thing. The only way they can actually confirm endo is by seeing it during surgery and even a skilled surgeon can miss some when they try to remove it.

I had some endo laparoscopically removed five years ago but it came back. During my hyster (two and a half weeks ago) they found significant implants of endo behind my uterus, in the cul-de-sac of Douglas and the rectosigmoid; I understand these are typical places for endo to hide. I am also suspected of having adenomyosis, which is endo that grows into the muscle tissue of your uterus rather than outside your uterus, but I am still waiting for the pathology reports to confirm it. I've seen some posts on here of women who have endo penetrate into their bowels; that sounds awful. I am hoping that since my uterus is gone, my endo will not rear it's ugly head again. I'm also hoping that menopause will help nip it in the bud. I understand that nothing can guarantee endo will go away forever.

I'm glad you are going for a second opinion and I applaud your persistence - believe in yourself and what your body is telling you. Any doctor that says "That's impossible" is not listening to you, or at the very least, not sympathetic to the pain you are experiencing.

Thank your for the info Molly... I'm hoping my second opinion will be more sympathetic since she is a female.

When all of this started the doc's told me it wasn't endo, that it was IBS... But I knew something else was wrong, it was just my gutt feeling. They told me that removing my left ovary would not get rid of the pain... Well during the surgery they found an excessive amount of endo hidden behind that ovary and burned it out.... The doc did however tell my hubby that even if the smallest spec of endo was missed it could cause horrible pain and spread. Since the surgery 4 months ago I haven't any pain on my left side at all.... So right there proved the doc didn't know what he was talking about... Now I'm going through the same exact symptoms as before justnon my right side tho... Something just tells me that it's back .. I was right before and I do beleive that I'm right again.

I just want my life back, endo is ruining everything!
I'm so glad I found this site.... Thank you!
Hode42807

I hope you get the relief you need soon. I did not know I had endo until I had my surgery to remove an ovarian cyst, even though I had a vaginal and abdominal ultrasound. I am just stopping Lupron and it did nothing for me, well except make the pain worse. There is no cure for endo, unfortunately for us who suffer from it.

good luck with that appt. I am having an endo flare up, dr is treating with lupron. NO relief for me...it only helps like 65% of women. And sometimes the pain comes right back. Hope you get some relief.