Beware making decisions based on "probable" diagnosis

Hi~
I finally learned the results of the pathology reports from my hyster and they were a bit surprising. My MD had recently diagnosed me with probable adenomyosis, in addition to my long-standing endometriosis. Frankly, that is what tipped the scales and made me finally decide on a hyster, since the only way to get rid of adeno is to remove the uterus. The pathology reports are now back and they did not find adeno but did find extensive endo. My MD said that it really didn't make any difference, since they can have very similar symptoms and getting rid of the pain is the point. I agree, and I also have had many years of abnormal pap tests with the accompanying worry that the "Big C" would sneak up on me. However, if I were younger and still wanted to have children, I would be pretty upset at this point. It just goes to show you, you shouldn't make decisions based on a "probable" diagnosis.

Humm... very interesting.
Although... I would think that if you were younger and wanted to have children you would have weighed other options and or re-considered they hyst. I personally wouldn't have had a hyst. based on a "possible" diagnosis if I was wanting future children. KWIM?

In addition- I have READ and READ and READ what verry little information is available on the web concerning Adenomyosis & learned that Just because the path lab didn't discover any Adenomyosis doesn't mean it wasn't there, they just didn't find it & that is not really unusual path results after a Hyst.

Soo.. I don't know. I just found this post interesting.

This is a sensible post and anything which encourages women to realise Doctors are not Gods and to keep actively engaged in their own Health care is a good thing. Many people do not question their Doctors decisions and recommendations, it is a Socially induced behaviour and needs addressing. It is very evident from the Hormone debacle that many women are suffering for many years because they refuse to use any sort of Oestrogen, Doctors do not present the results of studies so that women can choose for themselves, many find it simpler to choose the less possibly litigious road instead of giving a full account of the benefits and drawbacks of ERT.
Also there are many women who have undergone unnecessary surgeries, and when that woman is of child bearing age it is very upsetting to read. I do not comment because it is no good after the fact. But encouraging women to take responsibility for the decisions they make on their Doctors behalf is a good thing.

	Quote:
Originally Posted by cline2993 In addition- I have READ and READ and READ what verry little information is available on the web concerning Adenomyosis & learned that Just because the path lab didn't discover any Adenomyosis doesn't mean it wasn't there, they just didn't find it & that is not really unusual path results after a Hyst.

This is true, this is exactly what my surgeon told me. Since the path only tests a small part of the uterus, they may not have found it all. Or if you were on any type of hormonal treatment, that makes it hide too. I am younger and have no children, but the probable diagnosis of adeno was enough for me. I'm 2 months post-op and pain free, and no adeno was discovered on the path - but it was obvious to the surgeon (as per the operative notes and photos) that I did have it.