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Pain on left side of TAH scar = endo back? Pain on left side of TAH scar = endo back?

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Unread 10-31-2009, 01:48 PM
Question - Pain on left side of TAH scar = endo back? Pain on left side of TAH scar = endo back?

Hi all....been a LONG time!

Almost exactly 3 years ago, I had a TAH/BSO because stage IV endo had invaded my ovary (3x normal size), adhered to bowel and bladder, and was causing ascites with every period/ovulation. I ran a fever for 9 months prior to the TAH due to the ascites, and haven't run a fever since.

Anyway...noticed a few months back that the side where the ovary/bowel had been attacked by the endo was hurting off and on. Nothing horrible, just enough to make me notice it; which means it was something enough to be noticeable, because a year ago I felt nothing.

Went to the OB/GYN this week both for yearly exam and to ask about this. She examined outside, palpated to see if she felt anything - nothing. So she scheduled a sonogram, external/transvaginal on the left side to see if something was going on.

Dr. had not Rxed any estrogen post-TAH/BSO because he said he wanted to allow the area to "settle down" and that it would help kill off anything that was left. He then put me on premarin .9, which has since been dropped to premarin .45. (He retired; my current ob/gyn is one of his partners).

The doctor also switched me to estrade 1mg; don't know why. (just some more info)

Anyway, the pain comes and goes. She did mention it's possible that there was some tissue left she couldn't feel. I also hurt after she palpated (she pushed pretty hard from both sides), and it hurt after the transvaginal ultrasound, more than the left.

It seems like endo is probably back to me; she's supposed to get the results monday or tuesday.

Does this sound familiar to anyone? Am I being paranoid, or am I going to now end up having another lap?

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Unread 10-31-2009, 06:05 PM
Re: Pain on left side of TAH scar = endo back?

You could have some issues with some endometriosis or you could be having some issues with some adhesions. Over time, the adhesions can shorten and start to cause pain issues.

It is unlikely endometriosis or adhesions are going to show up on any ultrasound. Generally, both are diagnosed via surgery only.

I would suggest you start a symptom diary to help you and your physician(s) figure out what is going on. You don't want to rush into a surgery situation unless you and your medical team are pretty sure endometriosis and/or adhesions are the problem!

If at all possible, you might consider consulting with an endometriosis specialist.

Try not to worry and fret--I know, much easier said than done! Work with your doctor to determine what is going on and what your options might be! Before scheduling surgery, your doctor may want you to forgo HRT for a time and see if that helps. Other options might be Depo Provera or Lupron.

in there and keep us posted!
Unread 11-02-2009, 08:45 PM
Re: Pain on left side of TAH scar = endo back?

Hi. I just posted on another thread about my situation which is similar to yours. I am not on any HRT as he left one ovary. I had my sonogram on Friday and, of course, nothing showed up. It was weird that I experienced pain during the transvaginal portion. I told the tech and she said when I said it was painful she had just touched my left ovary. I also had some blood after the sonogram. The doc said he might have to do a lap. I am really hoping that the endo has not attaked some other protion of my insides.

I like the idea of a pain diary, but I awlays fail at those things. The pain hurts least when I am lying down and most when I'm standing/moving. Sometimes it's a period cramp-like feeling; other times it's a heavy feeling like there's something solid in the way. It hurts on both sides even though I only have an ovary on the left. I also have back and right hip pain. These have been present for years, but seem to have gotten worse with the recurrance of my abdominal pain.

I know I haven't really helped you, but hopefully you know you're not alone. You're not being paranoid. Thanks for sharing your story.

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