I'm so glad I found this website and you guys!
My story begins when I was 15 (1990)and had to be rushed to the hospital one night, emergency surgery was done the following morning as they discovered three dermoid cysts (hair, teeth, bone) that shredded my right ovary. Right ovary was taken out completely along with half of my left as I had 2 other dermoids there.
In 1999 I had to be rushed to the hospital again as I was on my way to work because I passed out from horrible pain on my left side...enter surgery #2 for dermoids on my left half ovary. My H who was my boyfriend at the time & I were prepared for surgical menopause and a future with no children as they were not going to be able to save any of the ovary (the cyst was twisted around the ovary). Doctor was able to save a tiny piece of ovary and told us that unless we conceived within a year we would never have children, we came to terms with that.
2002...to our surprise, I was pregnant and had our son.
March 2007 pain again and was scheduled for a hysterectomy in April because I had more dermoids, decided to go for second opinion and was told to not have it and monitor instead...July 2008 we found out we were pregnant again.
March 2008...our daughter was born and during my C-section it was discovered that I did not have another dermoid instaed it was so much scar tissue that it made it look like another dermoid, the doctor cleaned me up and everything looked good.
Normal PAP and exam Dec 2008, all was good.
Last week I stared having a clear discharge tinged with blood, PAP was within normal range but sonogram came back that I have another dermoid 6cm large. Doctor wants to take the cyst out but also perform a hysterectomy as I have PCOD/PCOS and he wants to "alleviate" this issue for me (no ovaries, no cysts).
I'm torn as to what I should do, I see his point of this is a recurring problem and how many more surgeries will I go through, but I'm also nervous about this being too rushed or a possible mistake.
I'm also very scared of what's going to happen afterwards, am I going to be a crazed moody person, will sex be different, will the hormones be more harmful than good, will my life expectancy be shortened as is reported in women who have a hysterectomy with ovaries removed...I'm so confused!!!!
I hope to hear any and all advice and stories of what you guys have gone through...thanks for listening!!!