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  #1  
Unread 12-30-2009, 11:59 AM
mesh removal

Hi,
I'm facing a 4th surgery. This time, to remove the mesh. I'm fighting depression and anxiety. One of the fears I have is: the doctor says she will only remove what mesh is exposed. Right now, the posterior incision is coming open in 3 places. But it didn't open until 7 months after surgery! So, I'm afraid that I'll have the surgery, and the other incision (the anterior) will come open. I honestly don't think I can face a 5th surgery. I can understand not wanting to cut into an incison that "appears" to be holding, but the posterior incision "appeared" to be holding for 7 months, too. Can anyone comment on mesh removal and if your doctor removed "all" or only that which is eroding and exposed?
Thanks so much!
writinggal
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  #2  
Unread 12-30-2009, 03:59 PM
Re: mesh removal

The roller coaster surgery...we should own shares in the hospitals by now right. I just had my 4 surgery! I don't remember us signing up for this.

I had my TOT mesh removed a year ago, 9 months after the initial surgery. I had no erosion except for one teeny spot but it caused incredible pain. i found an excellent pelvic reconstruction surgeon at a teaching hospital she removed the entire middle section. All but the arms because there are so many nerve endings in the pelvic region the risk of trauma to the nerves out weighed removing the arm-sections. I felt so much better when I woke up.


The removal surgery was much easier on me than I thought. But you do need a specialist that has experience. At the risk of forming adhesions (scar tissue) I would insist it be done at one time. And how many vaginal incisions do have to bear.

There was enough scar tissue to hold things in place for six months and now I just received a pubovaginal sling (old fashioned kind with your own facia) and rectocele repair. This was chosen because of my young age and it produces better long term results.
  #3  
Unread 12-30-2009, 04:35 PM
Re: mesh removal

I had mesh erosion in one small area--but had other areas that were painful to the touch, that weren't eroding. Needless to say, sex was not fun. I had as much as possible of the mesh removed and am very happy I had it done. The original doctor also put in a tot--that did not work at all. I didn't get it removed because it wasn't causing any problems. The doctor that removed the prolift put in a sling made of my own fascia to help with stress incontinence.

I had all of this done two years ago and am so happy I had the mesh removed and the autofascia sling put in. I have no more pain, discharge and sex is good now. Also--no more stress incontinence!!!!!

My advice is to search for a doctor who is willing to help you and has a lot of experience removing mesh. My doctor works at the Mayo Clinic. Email me privately if you want his name. I saw another urogyne at the same clinic who didn't want to help me--so its worth it to keep searching until you find the right doctor.

Good luck! I had to go to 5 doctors before I found one who would and could help me. It was a very difficult journey. Some of the doctors I went to were very rude to me. My own family doctor accused me of doctor shopping. She was the one who recommended the quack who did the original surgery. I am looking for a new internal medicine/family doctor. If anyone likes the one they go to and live in the Minneapolis, MN area--email me privately.
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  #4  
Unread 12-30-2009, 06:13 PM
Re: mesh removal

I am going to have to get my surgical report and see exactly what type of bladder sling I received.
  #5  
Unread 12-31-2009, 11:12 AM
Re: mesh removal

Thanks so much for your answers. cheryltwin, I will check on Mayo Clinc--though that is not near my home. Nicoler 76, did you by any chance go to the teaching hospital in Iowa City?
Thanks again. I am truly looking for an expert in mesh removal!!
writinggal
  #6  
Unread 12-31-2009, 02:12 PM
Re: mesh removal

No I went to KU in Kansas City. The surgeon I have there now did his fellowship at the Mayo and have really good credentials.
  #7  
Unread 01-01-2010, 11:27 AM
Unhappy - mesh removal Re: mesh removal

Thanks so much for your answers on mesh removal. This is such a terrible travesty. I wonder if you have the seen FDA warning issued to physicians regarding the use of mesh for pelvic floor repair. (Over 1000 women have written letters to the FDA. That means probably several thousand more could have written and haven't.) You can find the report by googling. I extend my heartfelt sympathy for all of us who have become victims. One report suggests that certain kinds of mesh do not allow for adequate blood supply and oxygen supply. In my case, I feel it is much more a case of product failure than of surgeon blunder.
Thanks again,
writinggal
  #8  
Unread 01-01-2010, 12:17 PM
Re: mesh removal

I have and also reported to the FDA. One of the urologist I saw after I had the sling procedure told me about it and the he would never have used it. I have heard that from my two subsequent surgeons also. It is referred to as the "poor man's sling" because they can do these surgeries like sardines in a can.
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