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Can you have endometriosis when you had your uterus removed? Can you have endometriosis when you had your uterus removed?

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Unread 01-12-2010, 03:14 PM
Can you have endometriosis when you had your uterus removed?

I had a partial hysterectomy 10 years ago. Still have ovaries. I'm in constant pain. It's like pressure and pulling. Sometimes sharp pains around the ovary area. Can't stand too long, walk any length of time, or exercise. Had U/S last week and I have a simple cyst on my right ovary. Dr doesn't think it's big enough to be causing all of this pain. She says it's probably adhesions and possibly endometriosis. I didn't think you could get that without a uterus ... do my symptoms sound like that could be possible? She wants to start me on depo shots, but unfortunately I'm having a breast biopsy tomorrow and cant do the shots until we know for sure i don't have breast cancer. Very frustrated right now!!
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Unread 01-12-2010, 08:57 PM
Re: Can you have endometriosis when you had your uterus removed?


You absolutely can have endometriosis without a uterus. In fact, you can have endometriosis without a uterus and without ovaries! A complete hysterectomy (removal of the entire uterus with cervix) nor a bilateral oophorectomy (removal of both ovaries) are cures for endometriosis. Sadly, there is no cure for this condition.

Endometriosis can be pretty resilient for one! For another, it likes to hide in all kinds of nooks and cranies and not all surgeons find all of it during any given surgery. Additionally, it can start out microscopically and thus be even more easily missed.

Your symptoms very well could be endometriosis and/or adhesions. Were you diagnosed with endometriosis either prior to or when you had your hysterectomy?

I would suggest you start keeping a symptom journal to help you and your doctors "see" a picture of what is going on. The only way to diagnose both endo and adhesions is surgery so you want to have a pretty good idea of what is/is not going on before scheduling a pelvic surgery!

If your doctor is serious about an endometriosis diagnosis, you should also consider consulting with an endometriosis specialist.

I wish you all the best for your biopsy tomorrow!

Unread 01-24-2010, 06:56 PM
Re: Can you have endometriosis when you had your uterus removed?

I believe I did have a small amount of endo when I had the hysterectomy. So if there is NO way to know for sure if there is endo without surgery, then does the dr just assume by what I tell her that that's what it is and then treat me for it? Are there any other treatments besides depo vera? I have some good days, but the bad days are really bad. Sometimes, I'm not even sure the dr believes me about my pain level.
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Unread 01-25-2010, 11:25 AM
Re: Can you have endometriosis when you had your uterus removed?

With endometriosis, your past history and current symptoms can help the doctor make an educated decision about whether or not you are dealing with current endo issues. Using medications such as Depo Provera, Lupron, Danazol, and others can help with the "diagnosis" in that the theory is that if the pain stops or eases using the meds, then likely endo is the problem. If the pain doesn't change, the condition could be something else (such as adhesions which also can't really be diagnosed without surgery).

I would suggest keeping a symptom journal detailing everything you are experiencing. A pain journal can help you see the big picture and help you decide if you are in pain enough days to warrant the various treatment options.

Right now, since using some of the meds are out because of your breast issues, pain medication might be an option to help control your symptoms. If your doctor doesn't want to help in this area, talk to your GP and/or ask for a referral to someone else, even a pain management specialist. Finding a doctor who is very knowledgeable regarding endometriosis could also be very helpful. They often are very compassionate doctors because they hav dealt with so many women with chronic pain issues from endometriosis and all the other issues we can have along with the endo.

in there!

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