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Endometriosis and Kidney Pain Endometriosis and Kidney Pain

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Unread 02-03-2010, 06:49 PM
Endometriosis and Kidney Pain

Hi everyone! I have endometriosis and everytime I get my period I get pain in my left kidney. Has anyone else experienced this? I suspect possible endo only because I feel the pain there a week before and 3 days into my period. Ultrasound guy said it looks like calsifcation on my kidneys but I really think its more than that.
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Unread 02-04-2010, 01:09 PM
Re: Endometriosis and Kidney Pain

I have moved your thread here to the Endometriosis Support forum were there are many of us dealing with endometriosis issues, both pre and post hysterectomy!

One of the frustrating things about endometriosis is that it doesn't generally show up on ultrasounds, or any other test! So, without surgery, we and our doctors have to pretty much "guess" that endo is the problem until surgeon can be done to see what is going on! What treatment options have you tried for your endometriosis? Have you tried birth control pills? What about Lupron or Depo Provera? If one of those options helped with the symptoms, then you might have a better idea that endo is indeed the culprit for the pain in that area!

Have you been keeping a symptom diary detailing all of your pain and symptoms?

Will you be following up with a urologist regarding the calcifications? I can assure you, kidney stones can be excruciatingly painful--the worse pain I have ever experienced in my life! Because it sounds like you may have kidney stones and you have pain with your kidney, a urologist might be able to offer you some help. Will one be assisting with your surgery? Are you working with an endometriosis specialist by any chance? If you have surgery and there is endometriosis affecting the kidney, you want a skilled team who will be able to address that endo.

I hope your upcoming surgery goes well for you and eliminates your pain issues! If you have specific questions about endometriosis, you might want to read through our Endometriosis Resources.

Unread 02-04-2010, 04:20 PM
Re: Endometriosis and Kidney Pain

I've got severe endometriosis and currently I'm undergoing treatment for some kind of kidney problem. I thought it was a muscle strain in my back but when it got extremely bad I also had a lot blood in my urine and ended up in the hospital for possible kidney stones. It turned out to be a kidney infection so I'm having exploratory surgery ASAP to see if the endo is affecting my kidney since the symptoms are worst during my period. Nearly 20 yrs ago I had the same kind of problem on the other side, tests showed that kidney was failing & I had an obstructed ureter that was repaired surgically and I felt great after that.

Due to other problems (bleeding from fibroids & adenomyosis, chronic pelvic pain and adhesions affecting my intestines) I'm going ahead with a total hysterectomy and surgical menopause at the same time that they are exploring my new kidney problem. Hopefully surgery will provide relief like it did on the other side. Last surgery was a regular Gyn & a Urologist, this time an endometriosis specialist/Gyn-Onc will do my surgery since I'm convinced the endo is the primary problem. I'll follow up with the Urologist later.

It seems like the tests are inconclusive when they try to diagnose endo on or around my kidney. I recommend finding someone who specializes in endo. I found a regular Gyn, an Endo specialist who is a Gyn-Onc and a Urologist who does a lot of laparoscopic surgeries. There are Uro-Gyn specialists too. Hope you find a good doctor to help you too!
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Unread 02-04-2010, 06:59 PM
Re: Endometriosis and Kidney Pain

Dear Weiser....thank you for your reply and your redirection....I'm still learning lol. I have been to a urologist and he said looks like calcification on both kidneys worse on the left and I have had kidney stones twice four years ago when I was pregnant with my last child. You are so right, they are definitly like no other pain I have ever experienced in my life!!!!!! AS for seeing an endo specialist.. I didn't realize there was such a thing until I started seeing it here. I have always just dealt with my ob/gyn for the last 15 years....as for a urologist assisting her with my surgery, that has not been mentioned as of yet.

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Unread 02-04-2010, 10:37 PM
Re: Endometriosis and Kidney Pain

I had a run in with a kidney stone last fall. There is no explaining the pain because I can not remember it after a certain point. Just the way I was acting. Not very ladylike I can assure you. The initial pelvic pain and left side pain I felt was a lot like my endo pain. But by the end of the day I knew it was not. I never "lost it" in natural childbirth. I was WAY out of control with the stone. I have had 4 CAT Scans in the last 2 years. They all showed calcifications inside my kidneys. Too many to count, like a snow storm I was told. More studies are planned but life gets in the way sometimes. Probably early March.

Were the calcifications inside or outside your kidneys?

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