Did Endo return after total hyst? - Endometriosis Support - HysterSisters
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  #1  
Unread 02-10-2010, 04:51 PM
Did Endo return after total hyst?

I am having everything removed and will not be taking hormones. Since reading about people who have had endo return after surgery, I am wondering about that.

Anyone have everything removed, no hormones, and still have endo return?
  #2  
Unread 02-10-2010, 05:25 PM
Re: Did Endo return after total hyst?



Yes, there are women on the site with endometriosis recurrence who have had a total hysterectomy with a BSO and chose not to use HRT.

The key is having a surgeon who can successfully remove as much endometriosis as possible. Generally, continued and future endometriosis issues occur because some endometriosis was missed. It can start out microscopically and it likes to hide. Additionally, it has many appearances and not all doctors recognize those various appearances.

Also, endometriosis itself has been found to create its own supply of estrogen. Fat cells can produce estrogen. Our bodies can continue to make estrogen by converting dietary cholesterol to progesterone, then to testosterone and then on to estrogen. And some women find problems with plant estrogens such as in soy.

The best thing any of us can do is find the most skilled surgeon we can find and then hope for the best. No two of us will make the same decision and even if we do, we aren't likely to have the same outcome. Our bodies are unique and respond to the same set of circumstances differently!

If you have any doubts, seek a second opinion. If you can't see an endometriosis specialist, look for a gynecological oncologist or a gynecologist who deals primarily with women with chronic pelvic pain. Those types of doctors can have some extra skills regarding endometriosis.

I wish you all the best for your upcoming surgery!

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