It sounds like you have had a pretty rough go of it! I am so sorry!
I do have a couple suggestions that will hopefully help!
One, keep a journal detailing all of your symptoms. Be as detailed as you can. List all the options you have tried and how they helped or didn't help. You might want to try using ReliefInsite’s online pain diary
. The more information you can show a doctor, the better! Sometimes being able to see how this condition is impacting your life on a daily basis can help a doctor be more determined to find a solution for you!
It is also important to have at least a second opinion. It sounds like your current doctor has tried all of the options he is aware of but is not ready to perform a hysterectomy for you. Another physician may know of additional options for you to tyr or may feel that it is time for a hysterectomy.
I would recommend that you look for an endometriosis specialist
. If you can't find one in your area and traveling is not an option, look for a doctor who specializes in pelvic pain issues rather than an obstetrician. You can also call area hospitals and ask if they have an endometriosis department. Some women have found help with a reproductive endocrinologist and others have found surgical success with a gynecological oncologist. It is important that you have a physician who has exceptional skill and knowledge when it comes to treating endometriosis. But don't leave your GP out of the picture. Your GP can help you find the right doctor for you and help you stay on top of current symptoms while looking for the right specialist.
As far as options, have you tried Danazol? An aromatase inhibitor? Has your surgeon been able to excise your endo or has some been left with each surgery?
Keep in mind, neither hysterectomy or oophorectomy are cures for endometriosis. Additionally, there are risks with any surgery, as I am sure you are awre. There are women who end up regretting their hysterectomy because of all the complications and new problems they acquire so you want to very carefully weigh your pros and cons before consenting to one. Mine definitely wasn't smooth sailing!
Whatever you do, don't give up! Keep looking for help and answers! Unfortunately, it does take some of us a bit of leg work and time to find just the right doctor to help us! But it can be worth it! I have often wished I had saw my endo specialist long before I did! My whole story could be so different!