I had a hestorectomy last Wednesday May 5th went in today for post opp visit and was told I had Endometrial Cancer Stage 1 B but they had not recieved all of my pathology back, as soon as they do they will set me up with a specialist and go frim thier.
I kind of thought maybe something was up, my appointment was for Thursday and was told to come in early. The Dr took everything except one overy and I do kind of worry about having to get that one removed but I really feel good that we cought it early the dr was totally took by surprise he never thought it would be any thing. I think I went numb when he told me and I still am a little. But I am still recovering from the Hystorectomy so Ive just got to focus on getting well from this.
My faith in God and I my family will help me through. Im glad to have web sites like this one to learn what others have went through in simular circumstances. Anyone ealse going through this it would help to know what you are going through!
I can totally relate to how you must be feeling right now. Ten days ago, I too received a phone call from my gyn that the pathology on my D&C came back positve for endometrial cancer Grade 1. All I can think about is the cancer, the surgery, waiting for insurance issue to be resolved, the cancer, my family, the cancer, etc. I don't have the stage yet because I have not had my hysterectomy yet. My gyn is referring me to a gyn-oncologist to do the surgery. Other wise women on this website have advised me to take it one day at a time. You also have major surgery to recover from and that shoudl be a priority for you so that you will be strong for whatever the specialist recommends. Your doctor will hopefully refer you to a gyn-onc who will help you figure out the best next steps. On the bright side, from what I have read in my endless hours of internet searching, endo cancer is very slow growing and has an excellent prognosis when caught early. Easy to say, but hard to remember when you are just processing the word cancer as it relates to your life. Also on the bright side, you are not alone. There are the other ladies on this website for support and good advice. I wish I had more practical advice, but I am a cancer newbie myself and for the most part I am in sheer panic mode on the inside, but trying to be positive and upbeat on the outside. Hang in there, you are not alone!
You need to get all of the info.. complete pathology, and then when you and your doctor discuss a plan you will feel better... Right now you are still reeling from surgery, and then to get hit with the diagnosis added to the stress. Most of us have been where you are. My doctor told me mine was very early stage and not to worry. But sometimes things turn out differently than expected.
Did you have a gyn/onc included in the surgery? If not, perhaps you should get a 2nd opinion from one to see if you need more surgery (lymph node sampling, removal of 2nd ovary, etc).
Best to you.
I'm so very sorry you find yourself dealing with this but am very glad you found us!
Your new specialist should be a gyn/onc (gynecological oncologist). They are the experts for gyn cancers, and you want the best for your health. It helps if you can take someone with you to that appointment (another set of ears!) and write down any questions/concerns you have. Also, get copies of all your reports, scans, etc.
I know it feels overwhelming right now but take a deep breath. Remember, there are lots of ladies here who made it, and if we did, SO CAN YOU!!
Christylee, I am just one week ahead of you, total labroscopic hysterectomy, both ovaries and cervix, Grade 1a, Stage 1b; 3 centimeter tumor, but only 3mm into the uterine wall. My doc is not an oncology gyn, so he is having me meet with an oncologist on May 21st. Depending on what the oncologist recommends, I may get a second opinion from the oncologist who treated my husband for his 3 cancers. I guess because of my husband's cancers and him being in remission for over 10 years (cure?) I am not stressing over this, because I know that 1. Cancer can be cured, 2. my cancer (and yours) was caught at a very early stage, and 3. any radiation they would do would likely be just to make sure they just catch any stray cancer cells, so would probably be minimal. (My gyn said they do not do chemo for this type.) The gyn's nurse called today and said a small polyp that he took out at my first post-surgery appointment came back benign, so that also is good news. Hang in there and try not to stress over this. I will try to keep this site updated on my experience. Yes, you are so right on both counts; faith in God and family will so help carry you through, and all the information you can gather will help! Take Care!
You are not alone. There are many of us on here. I had a hysterectomy in March. They didn't expect to find cancer. Got called 2 days later and told I had Stage 1C (over 50% through uterine wall). Because of how far it had gone through the wall, I had to have surgery again one month later to remove 21 lymph nodes for sampling. All were clean, thank God. My gyn-onc doesn't recommend radiation at this time. I just have to go in every four months for pap smears, pelvic exams, and for her to feel lymph nodes. I'll be interested to see what your doctor recommends for followup.
I am so sorry you had this unexpected news. It is important that your doctor is sending you to a specialist and I hope s/he will be a gyn/onc the cancer specialists as they are the experts. Often surgery alone proves to be the cure for early stage endometrial cancer but the specialist may want to do a lymph node check; etc.to better stage your cancer.
I also think your faith and family support will go along way to help you overcome new fears, uncertainties; that is what I relied on almost entirely. Getting better informed helps too so pls don't hesitate to ask any questions; etc. as someone seems to be here just about 24/7. Pls keep us updated and may your appointment with the specialist go very well.
Yes, it can be quite shocking to hear that diagnosis. My faith in the Lord has made all the difference in the world to me!
I found out I had cancer following a D&C. The doctor's office called me the next day, asked me to come in the following week, but didn't tell me why. I didn't ask because I assumed he wanted to check my stitches (also had a tubal and ablation at the same time.) To say I was shocked when he told me would be an understatement! I was by myself, too, a 40-minute drive from home.
After my total abdominal hysterectomy, I was stage at 1B, since it was exactly 50% through my uterine wall. I had a high-grade (3) and ended up with 25 external radiation and two internal treatments.
There are many wonderful women here who totally understand what you are going through! Remember this verse from Isaiah: "You will keep in perfect peace him whose mind is steadfast because he trusts in You."
Surgery for 2nd stage cancer like yours happened in 2006. I still am alive and feeling well. My lymph nodes were 25 in number which the Doctor felt necessary to remove as they are carriers and possibly a spot
for reoccurring cancer. Also if the % of 80% chance of survival was given that changes to about 40% on a second reoccurring return of the disease.
it is best to watch what you eat to beat the odds. I researched a lot of literature and found that the reasons for cancer to begin with are quite interesting. Children breathe in the exhaust fumes from an open window or from standing at a bus stop. The Early years cancer can happen because of that and they say 75 percent is food related. Stay away from refined sugar. Also if your litmus test are high in acid there is still a reason for cancer to live. If your system is acid free Cancer is not able to survive in such a blood stream.
I hope this has helped. There is a wealth of info out there. Just keep reading.
There are many here who understand exactly what you are going through, so that's a blessing. I highly recommend seeing a gyn/onc if you haven't already as they specialize in our specific types of cancer.
I too kept an ovary and will have to have it removed once I'm done with treatment but I'm glad I kept it until the final path came back so I could make an informed decision. I wish you the very best on your cancer journey. Keep us informed of your treatment plan.